Acton, G. J. , Mayhew, P. A., Hopkins, B. A., Yauk, S. (1999). Communicating with individuals with dementia: The impaired person’s perspective. Journal of Gerontological Nursing, 25(2), 6-13.
2.
Adams, T. , & Clarke, C. L. (Eds.). (1999). Dementia care: Developing partnerships in practice. Toronto: Bailliere Tindall.
3.
Appell, J. , Kertesz, A., & Fisman, M. (1982). A study of language foundation in Alzheimer patients. Brain and Language, 17, 73-91.
4.
Bahro, M. , Silber, E., & Sunderland, T. (1995). How do patients with Alzheimer’s disease cope with their illness? A clinical experience report. Journal of the American Geriatric Society, 43, 41-46.
5.
Boden, C. A. (1998). Who will I be when I die?Sidney, Australia: HarperCollins.
6.
Burgener, S. C. , & Dickerson-Putman, J. (1999). Assessing patients in the early stages of irreversible dementia: The relevance of patient perspectives. Journal of Gerontological Nursing, 25(2), 33-41.
7.
Cohen, D. (1991). The subjective experience of Alzheimer’s disease: The anatomy of an illness as perceived by patients and families. The American Journal of Alzheimer’s Care and Related Disorders & Research, 6(3), 6-11.
8.
Dworkin, R. (1993). Life’s dominion. New York: Knopf.
9.
Fontana, A. , & Smith, R. W. (1989). Alzheimer’s disease victims: The “unbecoming” of self and the normalization of competence. Sociological Perspectives, 32(1), 35-46.
10.
Goldsmith, M. (1996). Hearing the voice of people with dementia: Opportunities and obstacles. London: Jessica Kingsley.
11.
Gwyther, L. P. (1997). The perspective of the person with Alzheimer’s disease: Which outcomes matter in early to middle stages of dementia?Alzheimer Disease and Associated Disorders, 11, 18-24.
12.
Innes, A. (2000). Training and development for dementia care workers. Philadelphia: Jessica Kingsley.
13.
Jacques, A. , & Jackson, G. A. (2000). Understanding dementia (3rd ed.). Toronto, Canada: Churchill Livingstone.
14.
Keane, W. L. (1994). The patient’s perspective: The Alzheimer’s Association. Alzheimer Disease and Associated Disorders, 8, 151-155.
15.
Kitwood, T. (1993). Discover the person, not the disease. Journal of Dementia Care, 1(1), 16-17.
16.
Kitwood, T. (1997). Dementia reconsidered: The person comes first. Philadelphia: Open University Press.
17.
Kitwood, T. , & Bredin, K. (1992). Towards a theory of dementia care: Personhood and well-being. Ageing and Society, 12, 269-287.
18.
Lyman, K. A. (1989). Bringing the social back in: A critique of the biomedicalization of dementia. The Gerontologist, 29(5),597-605.
19.
Lyman, K. A. (1998). Living with Alzheimer’s disease: The creation of meaning among persons with dementia. Journal of Clinical Ethics, 9, 49-57.
20.
Mattice, M. , & Mitchell, G. J. (1990). Caring for confused elders. Canadian Nurse, 86, 16-18.
21.
McGowin, D. F. (1993). Living in the labyrinth. San Francisco: Elder Books.
22.
Mitchell, G. J. (1994a). Look beyond the disease to see the person. Alzheimer Alert, Newsletter of the Alzheimer Society for Metropolitan Toronto, 10(3), 1-2.
23.
Mitchell, G. J. (1994b). The threat of verbal technologies. Nursing Science Quarterly, 7, 148-149.
24.
Mitchell, G. J. , & Kolodny, V. (2000). Exploring quality of life for persons living with Alzheimer disease and related dementias[Research report]. Sunnybrook & Women’s College Health Sciences Centre, Toronto, Canada. Unpublished manuscript.
25.
Mozley, C. G. , Huxley, P., Sutcliffe, C., Bagley, H., & Burns, A. (1999). “Not knowing where I am doesn’t mean I don’t know what I like”: Cognitive impairment and quality of life responses in elderly people. International Journal of Geriatric Psychiatry, 14, 776-783.
26.
Parse, R. R. (1996). Quality of life for persons living with Alzheimer’s disease: The human becoming perspective. Nursing Science Quarterly, 9, 126-133.
27.
Parse, R. R. (1998). The human becoming school of thought: A perspective for nurses and other health professionals. Thousand Oaks, CA: Sage.
28.
Phillips, J. (2000). A personal view of living with early onset Alzheimer disease: Opening a door to new understanding. Sunnybrook & Women’s College Health Sciences Centre, Toronto, Canada. [Available online: www.ycsi.net/users/laura/janmina.html]
29.
Phinney, A. (1998). Living with dementia: From the patient’s perspective. Journal of Gerontological Nursing, 24, 8-15.
30.
Post, S. G. (1995). The moral challenge of Alzheimer’s disease. Baltimore: Johns Hopkins University Press.
31.
Raushi, T. (2000). Alzheimer survivor. New York: Northeastern New York Alzheimer’s Association.
32.
Rose, L. (1996). Show me the way to go home. Forest Knolls, CA: Elder Books.
33.
Sabat, S. R. (1998). Voices of Alzheimer’s disease sufferers: A call for treatment based on personhood. Journal of Clinical Ethics, 9, 35-48.
34.
Sabat, S. R. , & Harre, R. (1992). The construction and deconstruction of self in Alzheimer’s disease. Ageing and Society, 12, 443-461.
35.
Snyder, L. (1999). Speaking our minds: Personal reflections from individuals with Alzheimer’s disease. New York: Freeman.
36.
Tappen, R. M. , Williams, C., Fishman, S., & Touhy, T. (1999). Persistence of self in advanced Alzheimer’s disease. Image: Journal of Nursing Scholarship, 31(2), 121-125.
37.
Tappen, R. M. , Williams-Burgess, C., Edelstein, J., Touhy, T., & Fishman, S. (1997). Communicating with individuals with Alzheimer’s disease: Examination of recommended strategies. Archives of Psychiatric Nursing, 11(5), 249-256.