Abstract
Purpose
American Indian and Alaska Native (AI/AN) peoples face disproportionate health risks. Understanding how AI/ANs seek out information can inform effective campaigns design that can help address these risks. We investigate preferred communication sources, health information seeking behavior (HISB), self-efficacy, perceived importance of health information, and prevention orientation of American Indians and Alaska Natives (AI/ANs).
Design
We administered a survey at 3 cultural events.
Setting
The National Tribal Health Conference in Bellevue, the University of Washington Winter and Spring Powwows in Seattle.
Subjects
Participants (N = 344) of the survey included people from tribes throughout the US, particularly from northwestern tribes.
Analysis
Independent samples t-tests and ANOVAs examined differences in HISB. Frequency analyses identified preferred health information. PROCESS tested the relationship between perceived importance and HISB, and moderation from prevention orientation and self-efficacy.
Results
Preferred health information source were doctor (M = 3.5), the internet (M = 3.32) and friends/relatives (M = 3.11). Females demonstrated more HISB than males (P < .01). Individuals with a college degree or higher showed greater HISB (P < .001). AI/ANs living on reservations (M = 2.34, SD = 1.53) preferred newspapers for health information more than those in metropolitan (M = 1.64, SD = .13) or rural areas (M = 1.45, SD = .16, P < .05). Perceived importance is a robust positive factor that predicts HISB (b = .48, t(315) = 9.67, P < .001).
Conclusion
This study offers advice for scholars and practitioners to design messages to increase accessibility of health information.
American Indian and Alaska Native (AI/AN) peoples face disproportionate health risks, including a heightened susceptibility to cardiovascular disease,1,2 Alzheimer’s disease,3,4 and cancer. 5 Effective health communication acts as a critical determinant to enhance well-being and reduce health disparities among AI/ANs. Health campaigns achieve greater success when communicators account for individual and population-specific characteristics, such as health information seeking.6,7 Understanding how AI/ANs seek out information can inform effective campaigns design, especially in the current media environment in which people have access to an unprecedented amount of information. 8
Health information seeking behavior (HISB) can be defined as a purposeful and goal-oriented pursuit of specific health information related to both reactive and preventative behaviors.9,10 This pursuit can include several activities, including searching for information on the Internet, consulting friends and family, and proactively speaking with a healthcare provider. 11 HISB is a crucial aspect of shared decision-making among patients and healthcare providers that can empower patient agencies in a healthcare setting. 12 HISB can have mental and physical health outcomes because health seekers gain a better understanding and greater knowledge about health problems they encounter.13,14 HISB also helps manage uncertainty about health problems; past studies have indicated that seeking health information can have health outcomes by giving participants more certainty about how these actions can benefit their health.15–17 HISB can help reduce healthcare inequality as patients can act as active information seekers to learn more health information themselves instead of relying on information conveyed from systemically discriminatory sources. 9 This is especially important for priority populations who historically have faced discrimination from the US healthcare system that has caused distrust within Native communities. 18
Purpose
To better tailor health communication campaigns to the intended audience, it is important to understand how both the sources consulted and the level of HISB might differ based on group-level differences. HISB among AI/ANs could be related to demographic differences such as age, 19 gender, 20 and education.9,21 Additionally, residence of AI/ANs in metropolitan, rural, or reservation areas could be related to HISB, 22 especially considering access to health services and the Internet varies widely based on residence.23–25 Health information sources require an evaluation of how media receivers perceive credibility, trust, and importance. However, little is known about how, why, and from what sources AI/ANs seek health information. To help communicators and practitioners develop health messaging that is effective and culturally appropriate for this priority population, it is critical to examine health information preferences among AI/ANs.
One concept that could impact health preferences among AI/ANs is perceived health importance. Perceived importance refers to the level at which people believe having health information is related to staying healthy in general. For example, even if a person agrees that being healthy is important, someone who has a low level of perceived importance of health information might not believe that knowing health information would help them keep themselves or their families healthy. 26 This concept could be related to HISB, as individuals who recognize the importance of health information for their well-being are likely to seek out that information more actively than those who do not see it as important.27,28 However, the relationship between the perceived importance of health information and HISB is unclear due to factors such as lack of time,29,30 low trust in healthcare providers,8,31 and information overload, 32 which may lead to undesired behaviors such as information avoidance. 33 Due to these mixed findings, we propose a research question to examine whether perceived importance of health information is related to HISB among participants.
We also consider two attitudinal concepts that could moderate the relationship between perceived importance of health information and HISB: prevention orientation and perceived self-efficacy. Prevention orientation is an individual difference where those who possess a prevention orientation show a higher focus on maintaining good health, living a long life, and exerting control over healthy practices such as eating fruits and vegetables. 8 Prevention orientation could moderate the relationship between perceived issue importance and HISB because it involves self-efficacy around caring for health, which has been shown in past research to be as important to behavioral intentions as acknowledging the importance of a behavior. 34 That is, those with more prevention orientation will tend to seek health information at a higher rate than those without, even if they have the same level of issue importance. Perceived self-efficacy for health information, which refers to the belief that a person could successfully find health information on their own,8,35 could influence HISB. Without self-efficacy for health information, participants might be less likely to seek out health information even if they think it is important as they do not believe they could be successful in gathering it. Put another way, prevention orientation and perceived self-efficacy for health information could moderate the potential relationship between perceived importance and HISB among AI/ANs.
Research Questions
Does participants’ HISB differ by age, gender, education, and/or residence (ie, rural, urban, or reservation)?
What are participants’ preferred sources for gaining health information?
Do participants’ preferred sources of health information differ by age, gender, education, and/or residence (ie, rural, urban, or reservation)?
Is there a relationship between perceived importance of health information and HISB among AI/AN participants?
Is the relationship in RQ3a moderated by prevention orientation and/or perceived self-efficacy?
Methods
Design
We administered surveys at three cultural events in Washington state during 2017. Events include the National Tribal Health Conference in Bellevue, the University of Washington Winter Powwow in Seattle, and the University of Washington Spring Powwow in Seattle. An Indigenous-led research institute at a university located in the Pacific Northwest guided this study. A large research and education unit hosted a booth at the 3 events to administer a survey to identify AI/AN health needs and to disseminate health information on various health conditions that affect AI/AN people. Potential participants could approach the booth and learn about the survey. If they were interested in participating, they were asked 2 screening questions to determine eligibility to complete the study: (1) “Do you identify as American Indian or Alaska Native” and (2) “Are you at least 18 years of older? Respondents who answered the survey were provided with a $5 gift certificate as a thank you for their time. All data was collected anonymously, and no identifying information was associated with the questionnaires. The study was determined to be exempt from review from the [Washington State University] Institutional Review Board (#19570-005).
Sample
Attendees at these events include people from tribes throughout the US, but particularly from northwestern tribes, eg, Tulalip, Yakima, and Skokomish. The National Tribal Health Conference was held in Bellevue, Washington, and included workshops, exhibitions, and presentations from health service providers and community members. Attendees at these three events included health officials, tribal leaders, the lay public, and students.
Measures
Questions on the survey included items to assess their HISB, dependence on health information sources, perceived importance of health information, prevention orientation, perceived self-efficacy for health information, as well as demographic questions. The questions and scales are detailed below.
HISB
We use six items from a scale developed by Maibach et al. (2006) to evaluate AI/ANs’ HISB. Items include (1) “I don’t have time to bother learning a lot of health information”; (2) “I make a point to read/watch stories about health”; (3) “When sick, I try to get information about my disease”; (4) “I like to get health information from a variety of sources”; (5) “When I take medicine, I try to get as much information about benefits and side effects”; and (6) “Before making a decision about my health, I find out everything I can about this issue”. A 5-point Likert scale (anchors: 1 “Strongly disagree” to 5 “Strongly agree”) is used.
Preferred Sources
To examine dependence on health information sources and frequency in obtaining health information among AI/ANs s, respondents were asked, “How often do you use the following sources to get information about health and well-being?” Response options for the type of source include newspaper; television; radio; your doctor; health professionals including your doctor; friends and relatives; internet sources other than social media; and internet sources including social media. The frequency scale included: never, very rarely, rarely occasionally, frequently, and very frequently.
Perceived Importance
This concept was measured using seven items. 8 These seven items are commonly adopted in health communication research. 26 A 5-point Likert scale (anchors: 1 “Strongly disagree” to 5 “Strongly agree”) is used. Items include: (1) “I would like more TV shows to use health issues in their storylines”; (2) “It is important to be informed about health issues”; (3) “Media spends too much time on coverage of health issues”; (4) “To be and stay healthy, it’s critical to be informed about health issues”; (5) “I feel better if I can confirm a health recommendation from several sources”; (6) “The amount of health information available today makes it easier to take care of my health”; and (7) “I need to know about health issues so I can keep myself and my family healthy”.
Prevention Orientation
To examine the degree of effort invested in disease prevention, we use seven items. 8 On a 5-point Likert scale (anchors: 1 “Strongly disagree” to 5 “Strongly agree”), respondents were asked to indicate their level of agreement on each of the following statements: (1) “Living life in best possible health is important to me”; (2) “Eating right, exercising, and preventive measures will keep me healthy”; (3) “Living a long life is very important to me”; (4) “My health depends on how well I take care of myself”; (5) “I try to understand my personal health risks”; (6) “I actively try to prevent disease and illness”; and (7) “I wish I had more control over my health”.8,36
Perceived Self-Efficacy
This concept was measured using six items. 8 Respondents were asked to indicate their agreement from 1 “Strongly disagree” to 5 “Strongly agree” with each statement: (1) “I am able to find good health information”; (2) “I never find good answers to my health questions”; (3) “I enjoy learning about health issues”; (4) “Most health issues are too complicated for me to understand”; (5) “I am overwhelmed by the amount of health information available to me”; and (6) “I have difficulty understanding health information that I read”.
In addition to the variables above, we ask 5 demographic questions including: “What is your age (in years)?”; “What is your gender?”; “Are you American Indian/Alaska Native?”; “What is the highest grade of school that you completed?”; and “Where do you live most of the year?”.
Analysis
This cross-sectional survey data was analyzed using means, standard deviations, and ranges (the difference between the lowest and highest values) for continuous variables, and frequencies or percentages for categorical variables, to depict the overall descriptive analysis of the sample. To address RQ1, we use t-tests and one-way ANOVA to explore how HISB may differ by age, gender, education, and residence. For the evaluation of RQ2a and RQ2b, we apply three statistical techniques: frequency analysis, independent sample t-tests, and one-way ANOVA, to understand preferred sources of health information and determine differences by demographic characteristics. For RQ3a and RQ3b, we examine the association between the perceived importance of health information and HISB using regression analysis. To explore the moderating effects of prevention orientation and perceived self-efficacy on the relationship between the perceived importance of health information and HISB, we apply PROCESS analysis (Hayes, 2022). All statistical analyses were performed using SPSS version 24.
Results
Descriptive Analysis
Demographic Descriptive Statistics by Event and Overall, N = 344
Note. The number of percentages is presented as valid percentages; Some column percentages may not sum to one due to rounding.
Analysis
RQ1 asks whether HISB differs by demographic attributes, including age, gender, education, and residence. Independent samples t-test and one-way ANOVA analysis were used to analyze differences in HISB between gender, different age groups, educational levels, and residence. Results showed that female had more HISB (M = 4.05, SD = .04) than male (M = 3.88, SD = .59), t(320) = 2.64, P < .01. A significant difference was also found among different educational groups. Respondents with college or graduate degree (M = 4.08, SD = .53) had greater HISB than those who did not (M = 3.78, SD = .58), t(318) = -4.35, P < .001. There was no significant effect for different age groups, t(325) = -1.71, P = .09, nor among residence, F(2, 317) = 2.32, P = .10.
RQ2 aims to discover AI/ANs preferred sources for health information. Figure 1 showed that the most popular health information source among AI/AN peoples is their doctor (M = 3.5), followed by internet sources other than social media (M = 3.32), friends and relatives (M = 3.11), health professionals other than your doctor (M = 3.02), television (M = 2.54), social media (M = 2.31), radio (M = 2.27), and newspaper (M = 1.9). Preferred Sources About Health Information. Note. Participants Were Asked “How Often do You Use The Following Sources to Get Information About Health and Well-Being?” The Average Mean Scores Ranged From “Never” = 0 to “Very Frequently” = 5.
To further examine the preferred sources about health information by demographics, results of independent sample t-test showed that older groups tended to seek out health information through newspaper, t(334 = -3.06, P < .01, and their doctors, t(324) = 2.38, P < .05, more than younger groups. A significant difference was also found in gender. Females (M = 3.68, SD = 1.13) more often get information from their doctors than males (M = 3.11, SD = 1.38), t(319) = 3.91, P < .001. There were significant effects for education on the use of TV, t(327) = 2.73, P < .01, health professionals, t(322) = -2.84, P < .01, and internet sources, t(323) = -3.24, P = .001. Respondents with either college or graduate degrees tended to obtain health information from health professionals and internet sources while those with less years in education more often received their health information from television. Moreover, one-way ANOVA analysis showed that the use of newspaper to get health information differs by residence, F(2, 327) = 4.94, P < .01. Results of multiple comparisons using Bonferroni demonstrated that respondents who live on reservations (M = 2.34, SD = 1.53) tended to rely on newspapers to obtain health information more than those living on large metropolitan areas (M = 1.64, SD = .13, P < .05) or rural areas (M = 1.45, SD = .16), P < .05.
RQ3a evaluates the relationship between perceived importance of health information and HISB, as well as the moderating roles of prevention orientation and perceived self-efficacy. Perceived importance of health information significantly predicted HISB, b = .48, t(315) = 9.67, P < .001, indicating that a one-unit increase in perceived importance of health information corresponds to a .48 predicted increase in HISB. Perceived importance of health information also explained a significant 23% of variance in HISB, R2 = .23, F(1, 315) = 91.55, P < .001. To test RQ3b, Model 2 in the PROCESS macro for SPSS version 4.0 (Hayes, 2022) with 5000 bootstrap samples and 95% confidence intervals was applied. The results show that no significant moderating effects of prevention orientation (b = .06, SE = .08, P = .485) or perceived self-efficacy (b = .07, SE = .08, P = .374) were found on HISB.
Discussion
The main objective of this study was to explore whether health information-seeking behaviors among AI/ANs differ by demographic factors. We also aimed to provide insight into preferred health communication channels for AI/ANs based on individual differences. Through surveys conducted at 3 cultural events in Washington state, we found that HISB differs due to gender and education. Females search for health information more often than males. Moreover, AI/ANs with college or graduate degree are more likely to actively search for health information. This echoes previous findings that show having a high school diploma 37 and identifying as a woman20,38 are related to increased HISB. For practitioners, this could mean that more attention should be paid to encouraging HISB among men and those with fewer years of education. Future research should qualitatively explore potential reasons for these gender and education differences to better tailor health campaigns to diverse demographic groups.
From our data, we found HISB did not differ by age. Age is often discussed as a major factor of HISB, with some studies indicating that older adults may not seek out health information as often due to lack of familiarity with or trust in health information sources.19,39 Although our study did not reflect these previous findings, a potential explanation for this null finding is that seeking out health information on the Internet was not the most utilized source for health information seeking in this study. The use of conversations with doctors and other non-Internet sources could mitigate the effect of age on HISB as there is less of a technology divide involved with these sources. Future research should investigate this lack of relationship among this priority population further, however, and also investigate the influence of digital divide among the Native communities. 40
The urban-rural divide in HISB has also been widely discussed in the literature.41–43 Health disparities among AI/ANs living on reservations indicates that there may be a lack of HISB occurring in these historically underserved places.44,45 However, we found no significant differences in residence. Health communicators may consider working with local community-oriented services to better evaluate the needs of specific areas rather than relying on strategies based on more broad geography (Figure 2). The Moderating Model of RQ3a and RQ3b
We sought to understand the preferred sources for health information among AI/ANs. Our results demonstrate that doctors are the most utilized source to obtain health information, followed by internet sources other than social media and conversations with friends and relatives. In the age of social media abundance where people rely on the Internet more than ever before, 7 the continuing reliance on conversations with trusted sources such as doctors and friends are an important insight. The interpersonal nature of this HISB echoes previous findings that argue for narrowly tailored and community-oriented approaches to health information for AI/ANs. 46 Practitioners should consider partnering with community leaders and local organizations in the development and rollout of health communication campaigns as national social media campaigns may not be as effective for AI/AN communities.
We found a significant relationship between perceived importance and HISB. This indicates that as AI/ANs perceive having health information as more crucial to staying healthy, they seek out that information more. Our finding is consistent with past research related to uses and gratifications, where people have agency in the information they consider in an overwhelming media environment.47,48
Our results showed no significant moderating effect of either prevention orientation or self-efficacy on the relationship between perceived importance and HISB. This indicates that these 2 individual differences related to efficacy are not as crucial as found in past research on other populations such as social media users in China 49 and more general samples, 50 but does mirror some studies that indicate HISB can be more social and relational than a simple individual transaction,12,51 which underscores the need to examine HISB from a more community-oriented perspective where people consult each other and work together to seek health information among AI/ANs. This community-oriented conceptualization could potentially explain the lack of moderation from these individual-level differences. Our earlier findings that conversations with doctors, as well as friends and family, being more prevalent than Internet searching could also support this conceptualization.
We acknowledge that this study has several limitations. First, surveying people attending AI/AN events represents a convenience sample. However, through surveying at AI/AN events we were able to access a non-clinical population that can be difficult to reach. Second, our results may not be generalizable to other AI/AN populations throughout the US. While attendees of the events include people from tribes throughout the US, it was likely that a majority were from northwestern tribes. Therefore, our results may not be generalizable to those living outside the Pacific Northwest. Future studies could examine HISB among other regions and with additional AI/AN populations in the US. In addition, almost 3 quarters of respondents reported having completed either some college or a graduate degree, indicating that our sample was more educated than the overall AI/AN population (approximately 22% had a bachelor’s degree).
52
Nonetheless, as the first study of HISB among AI/ANs, this work can help guide the development of culturally tailored communication materials and health promotion strategies. Health information seeking behaviors have been shown to contribute to positive health outcomes.13,14 However, more research is needed into how American Indians and Alaska Natives (AI/ANs), a priority population, seek out health information. This study offers practical applications for health communication scholars and practitioners because it provides actionable suggestions to (1) design tailored messages based on health information seeking styles and preferences on heath information sources among AI/ANs; (2) determine effective strategies to disseminate health information; and (3) increase the accessibility of health information which can ultimately reduce health disparities. Findings of this study imply a need for health research with direct partnerships with priority communities. The strong reliance on doctors for health information highlights the need for collaboration with local communities.So What?
What Is Already Known on This Topic?
What Does This Article Add?
What Are the Implications for Health Promotion Practice or Research?
Footnotes
Acknowledgements
Studies such as ours could not be done without the participants, and we are grateful to them for sharing their time and perspectives. Research reported in this publication was supported by the National Institutes of Health under award numbers K01AG066063, R01AG093837 and P60AA026112. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health.
Ethical Considerations
This study was certified exempt by the Washington State University Institutional Review Board (#19570-005).
Consent to Participate
Informed consent was obtained by all participants prior to their participation.
Author Contributions
We confirm that all 3 authors contributed to the research, analysis, and development of this article.
Funding
The authors disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: Research reported in this publication was supported by the National Institutes of Health under award numbers K01AG066063, R01AG093837 and P60AA026112.
Declaration of Conflicting Interests
The authors declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article.
