Abstract
In this deeply personal and intellectually engaging exploration, the author takes readers on a journey spanning over a decade, from the inception of an idea to its fruition as a comprehensive guide on sexuality and disability. The narrative begins with a candid reflection on the author's initial inspiration—a restless night in a hotel room—where the concept of addressing the intersection of sexuality and disability first took root for her. From this pivotal moment emerges a narrative that intertwines the author's personal experiences with a broader exploration of the scholarly landscape and societal attitudes toward disability and sexuality. The author's journey is marked by a commitment to amplifying marginalized voices and challenging prevailing narratives. Despite initial setbacks and discouragement from publishers, the author's determination to carve out a space for discussions on sexuality and disability remains steadfast. The narrative is punctuated with references to key texts and figures in the field and traces the evolution of thought and discourse surrounding this topic over time. Central to the author's vision is the importance of centering the voices and experiences of disabled individuals themselves. Informed by dedication to authenticity and inclusivity, the author emphasizes the necessity of having individuals with disabilities play a central role in shaping the narrative. This faithfulness to privileging the voices of individuals with disabilities is reflected in the composition of the book, with the majority of authors being people who live with some form of major disability: chronic physical or mental illness, neurodivergence, or hearing deficits. Moreover, the author offers a nuanced understanding of disability, encompassing a wide range of experiences beyond traditional conceptions. By embracing Eli Clare's concept of body-mind (Clare, 2019) and adopting a broad definition of disability that includes neurodivergence, “Mad pride,” and chronic illness, the author ensures that the discussion remains inclusive and intersectional. Throughout the narrative, the author navigates the complexities of disability and sexuality with compassion and empathy. The book is divided into four parts, including an introduction.
The first part of this book offers a critical examination of the historical and societal dynamics surrounding disability and sexuality. It explores modern narratives on disability and abortion, highlighting intersections with reproductive justice and critiquing ableism within conservative Christian communities. Drawing on Kate Manne's concept of the “tyranny of vulnerability,” the chapter analyzes assumptions about pregnancy and abortion, emphasizing the need for intersectional approaches. Additionally, it explores mutual aid efforts within communities facing disability, queerness, and trans life within broader sociopolitical contexts, such as the COVID-19 pandemic and racial justice movements. Overall, this chapter serves as a thought-provoking introduction, inviting readers to reconsider dominant narratives and explore implications for policy and practice.
Part two of this book delves into various aspects of sexuality and disability, starting with a focus on neurodivergent individuals. Neurodivergence encompasses a range of neurological differences from the neurotypical population, including autism spectrum disorder, ADHD, epilepsy, and more, such as mental health conditions like anxiety and depression. The neurodiversity paradigm, coined by Judy Singer (1998), advocates for viewing neurodivergence as a strength rather than a deficit, challenging traditional medical models. Despite estimates suggesting neurodivergent prevalence between 15% and 20% globally, underdiagnosis and late diagnosis persist, particularly among marginalized groups. Advocacy efforts aim to promote societal acceptance and support for neurodivergent individuals, symbolized by the rainbow spectrum representing diversity within this population. The chapter also highlights the intersectionality of intellectual and developmental disabilities, emphasizing the need for individualized approaches and the dismantling of ableism. Additionally, this second section addresses sexuality within the community of hearing-impaired people, acknowledging diverse identities and communication methods. Section two also discusses the challenges faced by those with chronic illness and chronic pain, including the barriers they encounter in attempting to gain access to sexual health information and support within medical settings.
The third portion of the book provides a thorough exploration of the intersectionality of disability, sexuality, and race, particularly within the U.S. context. It delves into historical perspectives, highlighting the social constructions that have influenced the perception and treatment of individuals with disabilities, including discriminatory traditions, such as eugenics. Moreover, this part of the book analyzes crucial topics such as sexuality education, sexual violence, sex work, and advocacy efforts aimed at combating ableism and discrimination against people with autism. Through an intersectional feminist lens, the chapter offers insights into systemic challenges faced by individuals with a variety of disabilities, while advocating for inclusive and adaptive approaches to education,
The fourth part offers a comprehensive examination of the intricate intersections between disability, race, sexuality, and age. It acknowledges the ongoing evolution of historical narratives while challenging stigmatization and oppression rooted in colonialism and white supremacy. Each chapter delves into critical issues, from navigating disability and sexuality in old age to exploring gatekeeping in identities developed among people who are trans, queer, and living with disabilities. This final book portion emphasizes the importance of inclusive spaces and support for marginalized communities, offering practical guidance for practitioners. Furthermore, the text addresses sexual well-being among young people with disabilities, the connection between disability justice and nonmonogamy, care for disabled kinksters, and the pervasive impact of weight stigma. Through a blend of theoretical insights, empirical evidence, and personal narratives, the chapters advocate for liberation, equity, and empowerment across diverse identities and experiences.
Overall the book emerges not only as a scholarly endeavor but also as a testament to the resilience and strength of communities living with disabilities. Despite the challenges posed by a global pandemic and pervasive ableism, the author and their coauthors persevere, crafting chapters that reflect their lived experiences and diverse perspectives.
