The purpose of this study was to gain information about how youth with ADHD perceive this disorder and the barriers to treatment. Six focus groups were conducted in three locations within Nova Scotia (two of each: elementary school students, middle school students, high school students). Qualitative data was collected from 25 youth (aged 10 to 21) diagnosed with ADHD. Data analysis conducted through Ethnograph software revealed several themes: (a) participants did not perceive ADHD in a positive light; (b) youth recognized the need for intervention and identified school supports as particularly important; (c) youth reported both benefits and negative effects of pharmacological and psychosocial interventions; and (d) youth with ADHD perceived that the general public is misinformed about ADHD, which contributes to social stigma and stereotyping. The results have implications for school psychologists, who are in an ideal position to help demystify ADHD and to facilitate the collaboration between the youth, parents, and teachers.
ArciaE.FernandezM. C.JaquezM. (2004). Latina mothers’ stances on stimulant medication: Complexity, conflict, and compromise. Journal of Developmental and Behavioural Pediatrics, 25, 311-317.
2.
ArnoldL. E.ElliotM.SachsL.BirdH.KraemerH. C.WellsK. C.WigalT. (2003). Effects of ethnicity on treatment attendance, stimulant response/dose, and 14-month outcome in ADHD. Journal of Consulting & Clinical Psychology, 71, 713-727. doi:10.1037/0022-006X.71.4.713
3.
BaxleyG. B.TurnerP. F.GreenwoldW. E. (1978). Hyperactive children’s attitudes concerning drug treatment. Journal of Pediatric Psychology, 3, 172-176. doi:10.1093/jpepsy/3.4.172
4.
BennettD. S.PowerT. J.RostainA. L.CarrD. E. (1996). Parent acceptability and feasibility of ADHD interventions: Assessment, correlates, and predictive validity. Journal of Pediatric Psychology, 21, 643-657. doi:10.1093/jpepsy/21.5.643
5.
BowenJ.FentonT.RappaportL. (1990). Stimulant medication and attention deficit/ hyperactivity disorder: The child’s perspective. American Journal of Diseases of Children, 145, 291-295. Retrieved from http://archpedi.jamanetwork.com/article.aspx?articleid=515582
6.
BrookU.BoazM. (2005). Attention-deficit/hyperactivity disorder and learning disabilities: Adolescents’ perspective. Patient Education and Counseling, 58, 187-191. doi: 10.1016/j.pec.2004.08.011
7.
BussingR.Koro-LjungbergM. E.GaryF.MasonD. M.GarvanC. W. (2005). Exploring help-seeking for ADHD symptoms: A mixed methods approach. Harvard Rev Psychiatry, 13(2), 85-101.
8.
CharachA.IckowiczA.SchacharR. (2004). Stimulant treatment over five years: Adherence, effectiveness, and adverse effects. Journal of the American Academy of Child and Adolescent Psychiatry, 43, 559-567. doi:10.1097/00004583-200405000-00009
9.
ChronisA. M.JonesH. A.RaggiV. L. (2006). Evidence-based psychosocial treatments for children and adolescents with attention-deficit/hyperactivity disorder. Clinical Psychology Review, 26, 486-502. doi:10.1016/j.cpr.2006.01.002
10.
ColemanD.WalkerJ. S.LeeJ.FriesenB. J.SquireP. N. (2009). Children’s beliefs about causes of childhood depression and ADHD: A study of stigmatization. Psychiatric Services, 60, 950-957. doi:10.1176/appi.ps.60.7.950
dosReisS.BarksdaleC. L.ShermanA.MaloneyK.CharachA. (2010). Stigmatizing experiences of parents of children with a new diagnosis of ADHD. Psychiatric Services, 61, 811-816. doi:10.1176/appi.ps.61.8.811
13.
EfronD.JarmanF. C.BarkerM. J. (1998). Child and parent perceptions of stimulant medication treatment in attention deficit hyperactivity disorder. Journal of Pediatric Child Health, 34, 288-292. doi:10.1046/j.1440-1754.1998.00224x
14.
HarrisM. J.MilichR.CorbittE. M.HooverD. W.BradyM. (1992). Self-fulfilling effects of stigmatizing information on children’s social interactions. Journal of Personality and Social Psychology, 63, 41-50. doi:10.1037/0022-3514.63.1.41
15.
HinshawS. P. (2004). Parental mental disorder and children’s functioning: Silence and communication, stigma and resilience. Journal of Clinical Child and Adolescent Psychology, 33, 400-411. doi:10.1207/s15374424jccp3302_22
16.
HinshawS. P. (2005). The stigmatization of mental illness in children and parents: Developmental issues, family concerns, and research needs. Journal of Child Psychology and Psychiatry, 46, 714-734. doi:10.1111/j.1469-7610.2005.01456.x
IbrahimE. S. (2002). Rates of adherence to pharmacological treatment among children and adolescents with attention deficit hyperactivity disorder. Human Psychopharmacology, 17, 225-231. doi:10.1002/hup.406
19.
KaidarI.WienerJ.TannockR. (2003). The attributions of children with attention deficit/hyperactivity disorder for their problem behaviors. Journal of Attention Disorders, 6(3), 99-109. doi:10.1177/108705470300600302
Koro-LjungbergM.BussingR. (2009). The management of courtesy stigma in them lives of families of teenagers with ADHD. Journal of Family Issues, 30, 1175-1200. doi:10.1177/0192513X09333707
22.
MacKayL.CorkumP. (2006). Evaluation of a demystification workshop for children with ADHD. Journal of Developmental and Physical Disabilities, 18, 319-332. doi:10.1007/s10882-006-9019-3
23.
MartinJ. K.PescosolidoB. A.OlafsdottirS.McLeodJ. D. (2007). The construction of fear: Americans’ preferences for social distance from children and adolescents with mental health problems. Journal of Health and Social Behaviour, 48, 50-67. doi:10.1177/002214650704800104
24.
MonastraV. J. (2005). Overcoming the barriers to effective treatment for attention deficit/hyperactivity disorder: A neuro-educational approach. International Journal of Psychophysiology, 58, 71-80. doi:10.1016/j.ijpsycho.2005.03.010
25.
MorganD. L.KriegerR. A. (1997). The focus group kit. Thousand Oaks, CA: SAGE.
26.
MukoloA.HeflingerC. (2011). Factors associated with attributions about child health conditions and social distance preference. Community Mental Health Journal, 47, 286-299. doi:10.1007/s10597-010-9325-1
27.
PelhamW. E.WheelerT.ChronisA. (1998). Empirically supported psychosocial treatments for attention deficit hyperactivity disorder. Journal of Clinical Child Psychology, 27, 190-205. doi:10.1207/s15374424jccp2702_6
28.
PescosolidoB. A. (2007). Culture, children, and mental health treatment: Special section on the National Stigma Study—Children. Psychiatric Services, 50, 611-612. doi:10.1176/appi.ps.58.5.611
29.
PowerT. J.RussellH. F.SofferS. L.Blom-HoffmanJ.GrimS. M. (2002). Role of parent training in the effective management of attention deficit/hyperactivity disorder. Disease Management and Health Outcomes, 10, 117-126. doi:1173-8790/02/0002-0117
30.
RaskindM.MargalitM. H.HigginsE. L. (2006). My LD: Children’s voices on the Internet. Learning Disability Quarterly, 29, 253-268.
31.
SciberrasE.EfronD.IserA. (2011). The child’s experience of ADHD. Journal of Attention Disorders, 15, 321-327. doi:10.1177/1087054710361671
32.
SinghI. (2004). Doing their jobs: Mothering with Ritalin in a culture of mother-blame. Social Sciences & Medicine, 59, 1193-1205.
33.
SinghI. (2007). Clinical implications of ethical concepts: moral self-understandings in children taking methylphenidate for ADHD. Clinical Child Psychology & Psychiatry, 12(2), 167-182.
34.
SinghI.KendallT.TaylorC.MearsA.HollisC.BattyM.KeenanS. (2010). Young people’s experience of ADHD and stimulant medication: A qualitative study for the NICE guideline. Child and Adolescent Mental Health, 15(4), 186-192.
35.
SleatorE. K.UllmanR. K.von NeumannA. (1982). How do hyperactive children feel about taking stimulants and will they tell the doctor?Clinical Pediatrics, 21, 474-479. doi:10.1177/000992288202100805
36.
StineJ. J. (1994). Psychosocial and psychodynamic issues affecting nonadherence with psychostimulant treatment. Journal of Child and Adolescent Psychopharmacology, 4, 75-86. doi:10.1089/cap.1994.4.75
37.
SwansonJ. (2003). Compliance with stimulants for attention-deficit/hyperactivity disorder: Issues and approaches for improvement. CNS Drugs, 17(2), 117-131. doi:10.2165/00023210-200317020-00004
38.
ThiruchelvamD.CharachA.SchacharR. J. (2001). Moderators and mediators of long- term adherence to stimulant treatment in children with ADHD. Journal of the American Academy of Child and Adolescent Psychiatry, 40, 922-927.
39.
TravellC.VisserJ. (2006). “ADHD does bad stuff to you”: Young people’s and parents’ experiences and perceptions of attention deficit hyperactivity disorder (ADHD). Emotional and Behavioural Difficulties, 11, 205-216. doi:10.1080/13632750600833924
40.
WienerJ.MaloneM.VarmaA.MarkelC.BiondicD.TannockR.HumphriesT. (2012). Children’s perceptions of their ADHD symptoms: Positive illusions, attributions, and stigma. Canadian Journal of School Psychology, 27, 201-217.
