Psychosocial Needs of Patients and Families

Davies B , Reimer JC , Brown P , Martens N. Fading Away: The Experience of Transition in Families with Terminal Illness. Amityville, New York: Baywood Publishing Co., 1995.

Cleary JF , Carbone PP . Palliative medicine in the elderly. Cancer 1997; 80; 1335–1347.

US Census Bureau. National population trends. In: US Population Estimates by Age, Sex, Race, and Hispanic Origin: 1990–1994. PPL-21. Washington DC: Bureau of the Census, 1996.

Lynn J , Wilkinson AM . Quality end of life care: the case for a MediCaring demonstration. Hospice J 1998; 13: 151–163.

Christakis NA , Esarce JJ . Survival of Medicare patients after enrollment in hospice programs. JAMA 1996; 335: 172–178.

Canadian Palliative Care Association, personal communication, May 1998.

Gilbar O , Steiner M. When death comes: where should patient die? Hospice J 1996; 11: 31–48.

Rhymes JA . Home hospice care. Geriatr Home Care 1991; 7: 803–816.

Constanti M , Camoirano E , Madeddu L , Brussi P , Verganelli E , Heuriquel F. Palliative home care and place of death among cancer patients: a population-based study. Palliat Med 1993; 7: 323–331.

Seale C , Addington-Hall J , McCarthy M. Awareness of dying: prevalence, causes and consequences. Soc Sci Med 1997; 45: 477–484.

Hinton J. Can home care maintain an acceptable quality of life for patients with terminal cancer and their relatives? Palliat Med 1994; 8: 183–196.

Hinton J. Which patients with terminal cancer are admitted from home care? Palliat Med 1994; 8: 197–210.

Miller PJ , Mike PB . The Medicare hospice benefit. Death Studies 1995; 19: 531–542.

Glaser BG , Strauss AL . Awareness contexts and social interaction. Am Sociol Rev 1964; 29: 669–679.

Glaser BG , Strauss AL . Awareness of Dying. Chicago: Aldine, 1965.

Ferrell BR . The family. In: Doyle D , Hanks GWC , MacDonald N (eds). Oxford Textbook of Palliative Medicine. 2nd edition. Oxford: Oxford University Press, 1998; pp. 909–917.

Vachon MLS , Conway B , Lancee WJ , Adair WK . Report on the Needs of Persons Living with Cancer in Prince Edward Island. Toronto: Canadian Cancer Society, 1989.

Vachon MLS , Lancee WJ , Conway B , Adair WK . Final Report on the Needs of Persons Living with Cancer in Manitoba. Toronto: Canadian Cancer Society, 1990.

Vachon MLS , Lancee WJ , Ghadirian P , Adair WK , Conway B. Final Report on the Needs of Persons Living with Cancer in Quebec. Toronto: Canadian Cancer Society, 1991.

Vachon MLS , Fitch M , Greenberg M , Franssen E. The Needs of Cancer Patients and Their Families Attending Toronto-Sunnybrook Regional Cancer Centre. Toronto: Canadian Cancer Society, 1995.

Vachon MLS . The emotional problems of the patient. In: Doyle D , Hanks GWC , MacDonald N (eds). Oxford Textbook of Palliative Medicine. 2nd edition. Oxford: Oxford University Press, 1998; pp. 883–907.

Doyle D. Domiciliary palliative care. In: Doyle D , Hanks GWC , MacDonald N (eds). Oxford Textbook of Palliative Medicine. 2nd edition. Oxford: Oxford University Press, 1998; pp. 957–973.

Twycross R , Lichter I. The terminal phase. In: Doyle D , Hanks GWC , MacDonald N (eds). Oxford Textbook of Palliative Medicine. 2nd edition. Oxford: Oxford University Press, 1998; pp. 977–992.

Howarth G , Baba-Willison K. Preventing crises in palliative care in the home. Can Fam Physician 1995; 41: 439–445.

Grobe ME , Ilstrup EM , Ahmann DL . Skills needed by family members to maintain the care of an advanced cancer patient. Cancer Nurs 1990; 4: 371–375.

Goldberg D. Manual of the General Health Questionnaire. Windsor, Ontario: NFER-Nelson, 1978.

Lancee WJ , Vachon MLS , Ghadiriam P , Adair W , Conway B , Dryer D. The impact of pain and impaired role performance on distress in persons with cancer. Can Psychiatr Assoc J 1994; 39: 617–622.

Vachon MLS , Jackson B. Pain focus groups at Sunnybrook Health Science Centre, unpublished data, May 1998.

Ferrell BR , Cohen MZ , Rhiner M , Rozek A. Pain as a metaphor for illness. Part II: Family caregivers’ management of pain. Oncol Nurs Forum 1991; 18: 1315–1321.

Ferrell BR , Rhiner M , Cohen MZ , Grant M. Pain as a metaphor for illness. Part I: Impactof cancer pain on family caregivers. Oncol Nurs Forum 1991; 18: 1303–1309.

Wellisch DK , Wolcott DL , Pasnau RO , Fawzy FI , Landsverk J. An evaluation of the psychosocial problems of the homebound cancer patient: relationship of patient adjustment to family problems. J Psychosoc Oncol 1989; 7: 55–76.

Vachon MLS . Emotional problems in palliative medicine: patient, family and professional. In: Doyle D , Hanks GWC , MacDonald N (eds). Oxford Textbook of Palliative Medicine. Oxford: Oxford University Press, 1993; pp. 577–605.

Hinds C. The needs of families who care for patients with cancer at home: are we meeting them? J Adv Nurs 1985: 10: 575–581.

Lovejoy NC . Family response to cancer hospitalization. Oncol Nurs Forum 1986; 12: 33–37.

Vachon MLS , Freedman K , Formo A , Rogers J , Lyall WAL , Freeman SJJ . The final illness in cancer: the widow's perspective. Can Med Assoc J 1977; 117: 1151–1154.

Olson MM . Family participation in posthospital care: women's work. J Psychosoc Oncol 1989; 7: 77–93.

West SR , A retrospective study of persons with cancer in their terminal year. N Z Med J 1986; 99: 197–200.

Brody EM . Patterns of parent-care when adult daughters work and when they do not. Gerontologist 1986; 26: 372–381.

Brody EM . “Women in the middle” and family help to older people. Gerontologist 1981; 21: 471–479.

Wellisch DK , Fawzy FI , Landsverk J , Pasnau RO , Wolcott DL . Evaluation of psychosocial problems of the homebound cancer patient: the relationship of disease and the sociodemographic variables of patients to family problems. J Psychosoc Oncol 1983; 1: 1–15.

Blundon L. As death approaches: the art and the science. Palliative Care Institute 1997 Program Manual. Thunder Bay, Ontario: Northern Educational Centre for Aging and Health and Lakehead University, 1997.

Callanan M , Kelley P. Final Gifts. New York: Poseidon Press, 1992.

Weenolsen P. Transcendence of Loss Over the Life Span. New York: Hemisphere Publishing, 1986.