We report a new tool for screening the suffering of terminally ill patients in a palliative care service. We systematically asked 371 terminal oncological and AIDS patients on 665 different occasions, “How long did yesterday seem to you?”; we then asked them to assess their current condition. The simple answer about subjective length of time correlated well with subjective suffering in approximately half the patients. Thus it may be a good starting point for future assessment and more extensive explorations.
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References
1.
CasselEJ. The nature of suffering and the goals of medicine. N Engl J Med1982; 306: 639–645.
2.
FordyceWE. Pain and suffering: what is the unit?Quality of Life Research1994; 3(1): S51–S56.
3.
ChapmanCR, GravinJ.Suffering and its relationship to pain. J Palliat Care1993; 9(2): 5–13.
4.
CasselEJ. Pain and suffering. In: ReichWT (ed). Encyclopedia of Bioethics (Revised edition), volume IV. New York: Simon & Schuster, 1995; pp. 1897–1905.
5.
GregoryD.The myth of control: suffering in palliative care. J Palliat Care1994; 10(2): 18–22.
6.
RoyDJ. Biology and meaning in suffering. J Palliat Care1993; 9(2): 3–4.
7.
BayésR, ArranzP, BarberoJ, BarretoP.Propuesta de un modelo integral para una intervención terapéutica paliativa. Med Paliat1996; 3: 114–121.
8.
SchipperH.Quality of life: the final common pathway. J Palliat Care1992; 8(3): 5–7.
9.
CasselEJ. Recognizing suffering. Hastings Center Report1991; 24–31.
10.
ChernyNI, CoyleN, FoleyKM. Suffering in the advanced cancer patient: a definition and taxonomy. J Palliat Care1994; 10(2): 57–70.
11.
CohenSR, MountBM. Quality of life in terminal illness: defining and measuring subjective well-being in the dying. J Palliat Care1992; 8(3): 40–45.
12.
KaasaS.Suffering: a multidimensional concept in clinical practice. TPCC Bull1995; 12: 3.
13.
MacAdamDM, SmithM.An initial assessment of suffering in terminal illness. Palliat Med1987; 1:37–47.
14.
Journal of Palliative Care. A special issue on quality of life. J Palliat Care1992; 8(3): 3–66.