FontanaMSFarrellCGauvinFLaCroixJJanvierA. Modes of death in pediatrics: differences in the ethical approach in neonatal and pediatric patients. J Pediatr. 2013;162(6):1107–1111.
2.
TrowbridgeAWalterJKMcConatheyEMorrisonWFeudtnerC. Modes of Death Within a Children’s Hospital. Pediatrics. 2018;142(4):e20174182.
3.
PollackMMHolubkovRFunaiT, et al.Pediatric intensive care outcomes: development of new morbidities during pediatric critical care. Pediatr Crit Care Med. 2014;15(9):821–827.
4.
ShapiroMCHendersonCMHuttonNBossRD. Defining pediatric chronic critical illness for clinical care, research, and policy. Hosp Pediatr. 2017;7(4):236–244.
5.
ChanTRodeanJRichardsonT, et al.Pediatric critical care resource use by children with medical complexity. J Pediatr. 2016;177:197–203.e1.
6.
SchwarzeMLRedmannAJAlexanderGCBraselKJ. Surgeons expect patients to buy-in to postoperative life support preoperatively: results of a national survey. Crit Care Med. 2013;41(1):1–8.
7.
MeadowMPohlman A FrainL, et al.Power and limitations of daily prognostications of death in the medical intensive care unit. Crit Care Med. 2011;39(3):474–479.
8.
RandolphAGZolloMBWigtonRSYehTS. Factors explaining variability among caregivers in the intent to restrict life-support interventions in a pediatric intensive care unit. Crit Care Med. 1997;25(3):435–439.
9.
BurnsJPMitchellCGriffithJLTruogRD. End-of-life care in the pediatric intensive care unit: attitudes and practices of pediatric critical care physicians and nurses. Crit Care Med. 2001;29(3):658–664.
10.
MeertKLKeeleLMorrisonW, et al.Eunice kennedy shriver national institute of child health and human development collaborative pediatric critical care research network: end-of-life practices among tertiary care PICUs in the United States: a multicenter study. Pediatr Crit Care Med. 2015;16(7):e231–e238.
11.
DurallAZurakowskiDWolfeJ. Barriers to conducting advance care discussions for children with life threatening conditions. Pediatrics. 2012;129(4):2011–2695.
12.
MackJWWolfeJCookEFGrierHEClearyPDWeeksJC. Hope and prognostic disclosure. J Clin Oncol. 2007;25(35):5636–5642.
13.
GranekLKrzyzanowskaMKTozerRMazzottaP. Oncologists’ strategies and barriers to effective communication about the end of life. J Oncol Practice. 2013;9(4):e129–e135.
14.
ThompsonLAKnappCMaddenVShenkmanE. Pediatricians’ perceptions of and preferred timing for pediatric palliative care. Pediatrics. 2009;123(5):e777–e782.
15.
NeedleJSPeden-McAlpineCLiaschenkoJ. Physician perspectives on adolescent and young adult advance care planning: the fallacy of informed decision-making. J Clin Ethics. 2019, in press.
16.
MoldJWSteinHF. The Cascade Effect in the Clinical Care of Patients. N Engl J Med. 1986;314(8):512–514.
17.
OctoberTWHindsPSWangJDizonZBChengYIRoterDL. Parent Satisfaction with Communication is associated with Physician Patient-centered Communication Patterns during Family Conferences. Ped Criti Care Med. 2016;17(6):490–497.
18.
MeyerECRitholzMDBurnsJPTruogRD. Improving the quality of end-of-life care in the pediatric intensive care unit: parents’ priorities and recommendations. Pediatrics. 2006;117(3):649–657.
19.
LillyCMDe MeoDLSonnaLA, et al.An intensive communication intervention for the critically ill. Am J Med. 2000;109(6):469–475.
20.
MadrigalVWalterJKSachsEHimebauchASKubisSFeudtnerC. Pediatric continuity care intensivist: a randomized controlled trial. Contemp Clin Trials. 2019;76:72–78.
21.
WalterJKBenneyworthBDHouseyMDavisMM. The factors associated with high-quality communication for critically ill children. Pediatrics. 2013;131(suppl 1):S90–S95.
22.
MichelsonKNEmanuelLCarterABrinkmanPClaymanMLFraderJ. Pediatric intensive care unit family conferences: one mode of communication for discussing end-of-life care decisions. Pediatr Crit Care Med. 2011;12(6):e336–e343.
23.
KruserJMTaylorLJCampbellTC, et al.“Best case/worst case”: training surgeons to use a novel communication tool for high-risk acute surgical problems. J Pain Symptom Manage. 2017;53(4):711–719.
24.
QuillTEHollowayR. Time-limited trials near the end of life. JAMA. 2011;306(13):1483–1484.
EvansLRBoydEAMalvarG, et al.Surrogate decision-makers’ perspectives on discussing prognosis in the face of uncertainty. Am J Respir Crit Care Med. 2009;179(1):48–53.
27.
MackJWSmithTJ. Reasons why physicians do not have discussions about poor prognosis, why it matters, and what can be improved. J Clin Oncol. 2012;30(22):2715–2717.
28.
KonAADavidsonJEMorrisonWDanisMWhiteDB. Shared decision making in intensive care units: an American college of critical care medicine and American thoracic society policy statement. Crit Care Med. 2016;44(1):188–201.
29.
QuillTEArnoldRBackAL. Discussing treatment preferences with patients who want “everything”. Ann Intern Med. 2009;151(5):345–349.
30.
FeudtnerCMorrisonW. The darkening veil of “do everything”. Arch Pediatr Adolesc Med. 2012;166(8):694–695.
31.
HirniKCarterB.Hearing others’ perspectives when we hear, “do everything!”JAMA Pediatr. 2015;169(5):423–424.
