Advance Care Planning Discussions in Chronic Obstructive Pulmonary Disease: A Critical Review

Disier RT Currow DC Philips JL . Interventions to support a palliative care approach in patients with chronic obstructive pulmonary disease: An integrative review. Int J Nurs Stud 2012; 49(11): 1443–1458. doi: 10.1016/j.ijnurstu.2012.02.004.

Mannino DM Buist AS . Global burden of COPD: Risk factors, prevalence, and future trends. Lancet 2007; 370(9589): 765–773.

Global Initiative for Chronic Obstructive Lung Disease (GOLD). Global strategy for the diagnosis, management, and prevention of chronic obstructive pulmonary disease. Updated 2013. N.p.: GOLD; 2013. Accessed Sept. 14, 2015. www.goldcopd.org/uploads/users/files/GOLD_Report_2013_Feb20.pdf

Habraken JM Pols J Bindels PJ . The silence of patients with end-stage COPD: A qualitative study. Br J Gen Pract 2008; 58(557): 844–849. doi: 10.3399/bjgp08X376186.

Rocker GM Dodek PM Heyland DK . Toward optimal end-of-life care for patients with advanced chronic obstructive pulmonary disease: Insights from a multicentre study. Can Respir J 2008; 15(5): 249–254.

Seamark DA Seamark CJ Halpin DM . Palliative care in chronic obstructive pulmonary disease: A review for clinicians. J Roy Soc Med 2007; 100(5): 225–233.

Goodridge D Duggleby W Gjevre J . Caring for critically ill patients with advanced COPD at the end of life: A qualitative study. Intensive Crit Care Nurs 2008; 24(3): 162–170. doi: 10.1016/j.iccn.2008.01.002.

Hancock K Clayton JM Parker SM . Truth-telling in discussing prognosis in advanced life-limiting illnesses: A systematic review. Palliat Med 2007; 21(6): 507–517. doi: 10.1177/0269216307080823.

Gaber KA Barnett M Planchant Y . Attitudes of 100 patients with chronic obstructive pulmonary disease to artificial ventilation and cardiopulmonary resuscitation. Palliat Med 2004; 18(4): 626–629.

Leung JM Udris EM Uman J . The effect of end-of-life discussions on perceived quality of care and health status among patients with COPD. Chest 2012; 142(1): 128–133. doi: 10.1378/chest.11-2222.

Reinke LF Slatore CG Uman J . Patient-clinician communication about end-of-life care topics: Is anyone talking to patients with chronic obstructive pulmonary disease? J Palliat Med 2011; 14(8): 923–928. doi: 10.1089/jpm.2010.0509.

Buxton K Stone RA Buckingham RJ . Current and planned palliative care service provision for chronic obstructive pulmonary disease patients in 239 UK hospital units: Comparison with the gold stands framework. Palliat Med 2010; 24(5): 480–485. doi: 10.1177/0269216310363650.

Janssen DJA Curtis JR Au DH . Patient-clinician communication about end-of-life care for Dutch and US patients with COPD. Eur Respir J 2011; 38(2): 268–276. doi: 10.1183/09031936.00157710.

White P White S Edmonds P . Palliative care or end-of-life care in advance chronic obstructive pulmonary disease: A prospective community survey. Brit J Gen Pract 2011; 61(587): 362–370. doi: 10.3399/bjgp11X578043.

Vidal A Couceiro Pandiella A . [A model for using advance directives and care planning.] Arch Bronconeumol 2010; 46(6): 325–331. doi:10.1016/j.arbres.2009.12.001. [Spanish]

Murray SA Kendall M Boyd K . Illness trajectories and palliative care. Brit Med J 2005; 330(7498): 1007–1011. doi: 10.1136/bmj.330.7498.1007.

Gillick MR . Advance care planning. N Engl J Med 2004; 350(1): 7–8.

Patel K Janssen DJA Curtis JR . Advance care planning in COPD. Respirology 2012; 17(1): 72–78. doi: 10.1111/j.1440-1843.2011.02087.x.

Arksey H O'Malley L . Scoping studies: Towards a methodological framework. Int J Soc Res Methodol 2005; 8(1): 19–32. doi:10.1080/1364557032000119616.

Levac D Colquhoun H O'Brien KK . Scoping studies: Advancing the methodology. Implement Sci 2010; 5: 69. doi:10.1186/1748-5908-5-69.

Daudt HML Van Mossel C Scott SJ . Enhancing the scoping study methodology: A large, inter-professional team's experience with Arksey and O'Malley's framework. BMC Med Res Methodol 2013; 13: 48. doi: 10.1186/1471-2288-13-48.

Melynyk B Fineout-Overholt E . Evidence-based practice in nursing and healthcare: A guide to best practice. Philadelphia: Lippincott Williams and Wilkins, 2011.

Burge AT Lee A Nicholes M . Advance care planning education in pulmonary rehabilitation: A qualitative study exploring participant perspectives. Palliat Med 2013; 27(6): 508–515. doi: 10.1177/0269216313478448.

Gardiner C Gott M Small N . Living with advanced chronic obstructive pulmonary disease: Patients concerns regarding death and dying. Palliat Med 2009; 23(8): 691–697. doi: 10.1177/0269216309107003.

Gott M Gardiner C Small N . Barriers to advance care planning in chronic obstructive pulmonary disease. Palliat Med 2009; 23(7): 642–648. doi: 10.1177/0269216309106790.

MacPherson A Walshe C O'Donnell V . The views of patients with severe chronic obstructive pulmonary disease on advance care planning: A qualitative study. Palliat Med 2012: 27(3): 265–272. doi: 10.1177/0269216312440606.

Philip J Gold M Brand C . Negotiating hope with chronic obstructive pulmonary disease patients: A qualitative study of patients and healthcare professionals. Intern Med J 2011; 42(7): 816–822. doi: 10.1111/j.1445-5994.2011.02641.X.

Halliwell J Mulcahy P Buetow S . GP discussion of prognosis with patients with severe chronic obstructive pulmonary disease: A qualitative study. Br J Gen Pract 2004; 54(509): 904–908.

Nguyen M Chamber-Evans J Joubert A . Exploring the advance care planning needs of moderately to severely ill people with COPD. Int J Palliat Nurs 2013; 19(8): 389–395.

Brown M Brooksbank MA Burgess TA . The experience of patients with advanced chronic obstructive pulmonary disease and advance care-planning: A South Australian perspective. J Law Med 2012; 20(2): 400–409.

Seamark D Blake S Seamark C . Is hospitalization for COPD an opportunity for advance care planning? A qualitative study. Prim Care Resp J 2012; 21(3): 261–266.

Crawford A . Respiratory practitioners' experience of end-of-life discussions in COPD. Br J Nurs 2010; 19(18): 1164–1169.

Simpson AC . An opportunity to care? Preliminary insights from a qualitative study on advance care planning in advanced COPD. Prog Palliat Care 2011; 19(5): 243–253. doi: http://dx.doi.org/10.1179/1743291X11Y.0000000007.

Gough D . Weight of evidence: A framework for the appraisal of the quality and relevance of evidence. Res Pap Educat 2007: 22(2): 213–228. doi:10.1080/02671520701296189.

Bellinger G . Knowledge management — emerging perspectives. N.p.: Gene Bellinger, 2004. Accessed Sept. 17, 2015. www.systems-thinking.org/kmgmt/kmgmt.htm

Whiting M Sines D . Mind maps: Establishing “trustworthiness” in qualitative research. Nurs Res 2012; 20(1): 21–27.

Curtis JR Engleberg R Young JP . An approach to understanding the interaction of hope and desire for explicit prognostic information among individuals with severe chronic obstructive pulmonary disease or advanced cancer. J Palliat Med 2008; 11(4): 610–620. doi: 10.1089/jpm.2007.0209.

Momen N Hadfield P Kuhn I . Discussing an uncertain future: End-of-life care conversations in chronic obstructive pulmonary disease. A systematic literature review and narrative synthesis. Thorax 2012; 67(9): 777–780. doi: 10.1136/thoraxjnl-2012-201835.

Spence A Hasson F Waldron M . Professionals delivering palliative care to people with COPD: Qualitative study. Palliat Med 2009; 23(2): 126–131. doi: 10.1177/0269216308098804.

Pinnock H Kendall M Murray SA . Living and dying with severe chronic obstructive pulmonary disease: Multi-perspective longitudinal qualitative study. BMJ 2011; 342: d142. doi: 10.1136/bmj.d142.

Boyd K Mason B Kendall M . Advance care planning for cancer patients in primary care: A feasibility study. Br J Gen Pract 2010; 60(581): 449–458. doi: 10.3399/bjgp10X544032.

Chochinov HM . Thinking outside the box: Depression, hope and meaning at the end of life. J Palliat Med 2003; 6(6): 973–977.

Breitbart W Heller K . Reframing hope: Meaning-centred care for patients near the end of life. J Palliat Med 2003; (6)6: 979–988.

Westley C Briggs LA . Using the Stages of Change model to improve communication about advance care planning. Nurs Forum 2004; 39(3): 5–12.

Fried TR Bullock K Lannone L . Understanding advance care planning as a process of health behavior change. J Am Geriatr Soc 2009; 57(9): 1547–1555. doi: 10.1111/j.1532-5415.2009.02396.x.

Prochaska JO Velicer WF . The transtheoretical model of health behaviour change. Am J Health Promot 1997; 12(1): 38–48.

Heffner JE . Advance care planning in chronic obstructive pulmonary disease: Barriers and opportunities. Curr Opin Pulm Med 2011; 17(2): 103–109.