An Integrated view of Suffering in Palliative Care

Cassell E.J. Recognizing suffering. Hastings Cent Rep 1991; 21(3): 24–31.

Stein K.D. , Syrjala K.L. , Andrykowski M.A. Physical and psychological long-term and late effects of cancer. Cancer 2008; 112(11 Suppl): 2577–2592.

Baines B.K. , Norlander L. The relationship of pain and suffering in a hospice population. Am J Hosp Palliat Care 2000; 17(5): 319–326.

Kuuppelomäki M. , Lauri S. Cancer patients’ reported experiences of suffering. Cancer Nurs 1998; 21(1): 364–369.

Benedict S. The suffering associated with lung cancer. Cancer Nurs 1989; 12(1): 34–40.

World Health Organization. Cancer control program: policies and managerial guidelines. Geneva: author; 2002.

World Health Organization. Cancer pain relief and palliative care: a report of an OMS expert committee. Geneva: author; 1990.

Callahan D. Death and the research imperative. N Engl J Med 2000; 342(9): 654–656.

Astudillo W. , Clavé E. , Urdaneta E. Necesidades psicosociales en la terminalidad. Guipúszcoa: Sociedad Vasca de Cuidados Paliativos; 2001.

Quill T.E. , Byock I.R. Responding to intractable terminal suffering. Ann Intern Med 2000; 133(7): 561–562.

Jansen L.A. , Sulmasy D.P. Proportionality, terminal suffering and the restorative goals of medicine. Theor Med Bioeth 2002; 23(4-5): 321–337.

Eisenchlas J.H. Palliative sedation. Curr Opin Support Palliat Care 2007; 1(3): 207–212.

Cassell E.J. , Rich B.A. Intractable end-of-life suffering and the ethics of palliative sedation. Pain Med 2010; 11(3): 435–438.

Wilson K.G. , Chochinov H.M. , McPherson C.J. Suffering with advanced cancer. J Clin Oncol 2007; 25(13): 1691–1697.

Bayés R. , Arranz P. , Barbero J. Propuesta de un modelo integral para una intervención terapéutica paliativa. Med Paliativa 1996; 3(3): 114–121.

Cassell E.J. Diagnosing suffering: a perspective. Ann Intern Med 1999; 131(7): 531–534.

Chapman C.R. , Gavrin J. Suffering: the contributions of persistent pain. Lancet 1999; 353(9171): 2233–2237.

Woodruff R. Palliative care: basic principles. In: Bruera E. , DeLima L. , Wenk R. , editors. Palliative care in developing countries: principles and practice. Texas: IAHPC Press; 2004.

Van Hooft S. The suffering body. Health 2000; 4(2): 179–195.

Chochinov H.M. Dying, dignity, and new horizons in palliative end-of-life care. CA Cancer J Clin 2006; 56(2): 84–103.

Abraham A. , Kutner J.S. , Beaty B. Suffering at the end of life in the setting of low physical symptom distress. J Palliat Med 2006; 9(3): 658–665.

Jansen L.A. Intractable end-of-life suffering and the ethics of palliative sedation: a commentary on Cassell and Rich. Pain Med 2010; 11(3): 440–441.

Limonero J.T. , Bayés R. Bienestar en el ámbito de los enfermos en situación terminal. Med Paliativa 1995; 2(2): 53–59.

Krikorian A. Valoración del sufrimiento en pacientes con cáncer avanzado. Psicooncología 2008; 5(2-3): 257–264.

Philip A. On the nature of death. Philosophical Transactions Royal Society London 1834; 124: 167–198.

Wilson [HH]. On Buddha and Buddhism. JRSAS 1856; 16: 229–265.

Schweizer H. History and memory: suffering and art. Cranbury (NJ): Associated University Presses; 1998.

Van Hooft S. The meanings of suffering. Hastings Cent Rep 1998; 28(5): 13–19.

Saunders C. , Baines M. Living with dying: the management of terminal disease. Oxford: Oxford University Press; 1983.

Bruera E. , DeLima L. , Wenk R. Palliative care in developing countries: principles and practice. Houston: IAHPC Press; 2004.

Fordyce W.E. Pain and suffering: a reappraisal. Am Psychol 1988; 43(4): 276–283.

Loeser J.D. , Melzack R. Pain: an overview. Lancet 1999; 353(9164): 1607–1609.

Limonero J.T. Evaluación de aspectos perceptivos y emocionales en la proximidad de la muerte [dissertation]. [Bella terra]: Universidad Autónoma de Barcelona, 1994.

Bayés R. , Limonero J.T. Aspectos emocionales del proceso demorir. In: Fernández E.G. , Palmero F. , editors. Emociones ysalud. Barcelona: Ariel; 1999.

Sherman D.W. , Norman R. , McSherry C.B. A comparison of death anxiety and quality of life of patients with advanced cancer or AIDS and their family caregivers. J Assoc Nurses AIDS Care 2010; 21(2): 99–112.

Cassell E.J. The nature of suffering and the goals of medicine. N Engl J Med 1982; 306(11): 639–645.

Cassell E.J. The nature of suffering and the goals of medicine. New York: Oxford University Press; 1991.

Abramson L.Y. , Seligman M.E. , Teasdale J.D. Learned helplessness in humans: critique and reformulation. J Abnorm Psychol 1978; 87(1): 49–74.

Black H.K. , Rubinstein R.L. Themes of suffering in later life. J Gerontol B Psychol Sci Soc Sci 2004; 59(1): S17–S24.

Daneault S. , Dion D. Suffering of gravely ill patients. An important area of intervention for family physicians. Can Fam Physician 2004; 50: 1343–1345, 1348–1350.

Arranz P. , Barbero J.J. , Barreto P. Intervención emocional en cuidados paliativos modelo y protocolos. Barcelona: Ariel; 2003.

Adunsky A. , Zvi Aminoff B. , Arad M. Mini-suffering state examination: suffering and survival of end-of-life cancer patients in a hospice setting. Am J Hosp Palliat Care 2007; 24(6): 493–498.

Büchi S. , Buddeberg C. , Klaghofer R. Preliminary validation of PRISM (Pictorial Representation of Illness and Self Measure): a brief method to assess suffering. Psychother Psychosom 2002; 71(6): 333–341.

Bayés R. , Limonero J.T. , Barreto P. A way to screen for suffering in palliative care. J Palliat Care 1997; 13(2): 22–26.

Chapman C.R. , Gavrin J. Suffering and its relationship to pain. J Palliat Care 1993; 9(2): 5–13.

Melzack R. Evolution of the neuromatrix theory of pain. The Prithvi Raj Lecture: presented at the third World Congress of World Institute of Pain, Barcelona 2004. Pain Pract 2005; 5(2): 85–94.

Eisenberger N.I. , Lieberman M.D. Why rejection hurts: a common neural alarm system for physical and social pain. Trends Cogn Sci 2004; 8(7): 294–300.

Vargas J.J. , Vélez M.C. , Krikorian A. Aspectos neurobiológicos, psicológicos y sociales del sufrimiento. Psicooncología 2008; 5(2-3): 245–255.

McEwen B.S. , Gianaros P.J. Central role of the brain in stress and adaptation: links to socioeconomic status, health, and disease. Ann NY Acad Sci 2010; 1186(1): 190–222.

McEwen B.S. The brain is the central organ of stress and adaptation. Neuroimage 2009; 47(3): 911–913.

Chochinov H.M. , Wilson K.G. , Enns M. Desire for death in the terminally ill. Am J Psychiatry 1995; 152(8): 1185–1191.

Van Hooft S. Suffering and the goals of medicine. Med Health Care Philos 1998; 1(2): 125–131.

Strang P. , Strang S. , Hultborn R. Existential pain — an entity, a provocation, or a challenge? J Pain Symptom Manage 2004; 27(3): 241–250.

Tamura K. , Ichihara K. , Maetaki E. Development of a spiritual pain assessment sheet for terminal cancer patients: targeting terminal cancer patients admitted to palliative care units in Japan. Palliat Support Care 2006; 4(2): 179–188.

Murata H. Spiritual pain and its care in patients with terminal cancer: construction and conceptual framework by philosophical approach. Palliat Support Care 2003; 1(1): 15–21.

Kahn D.L. , Steeves R.H. The significance of suffering in cancer care. Semin Oncol Nurs 1995; 11(1): 9–16.

Sherman D.W. Reciprocal suffering: the need to improve family caregivers’ quality of life through palliative care. J Palliat Med 1998; 1(4): 357–366.

Dildy S.P. Suffering in people with rheumatoid arthritis. Appl Nurs Res 1996; 9(4): 177–183.

Bayés R. , Limonero J.T. Prioridad en el tratamiento de los síntomas que padecen los enfermos oncológicos en situación terminal. Med Paliativa 1999; 6(1): 19–21.

Bayés R. Paliación y evaluación del sufrimiento en la práctica clínica. Med Clin (Barc) 1998; 110(19): 740.

Reeve J. , Lloyd-Williams M. , Payne S. Towards a re-conceptualization of the management of distress in palliative care patients: the self-integrity model. Progress Palliat Care 2009; 17(2): 51–60.

Murillo M. , Holland J.C. Clinical practice guidelines for the management of psychosocial distress at the end of life. Palliat Support Care 2004; 2(1): 65–77.

National Comprehensive Cancer Network. Clinical practice guidelines in oncology. Distress management (version 1. 2012). Accessed Feb. 8, 2012. http://www.nccn.org/professionals/physician_gls/pdf/distress.pdf

Juster R.P. , Bizik G. , Picard M. A transdisciplinary perspective of chronic stress in relation to psychopathology throughout life span development. Dev Psychopathol 2011; 23(3): 725–776.

Selye H. Forty years of stress research: principal remaining problems and misconceptions. CMAJ 1976; 115(1): 53–56.

Selye H. Stress and distress. Compr Ther 1975; 1(8): 9–13.

Collins L.G. , Swartz K. Caregiver care. Am Fam Physician 2011; 83(11): 1309–1317.

McEwen B.S. Protective and damaging effects of stress mediators: central role of the brain. Dial Clin Neurosci Stress 2006; 8(4): 367–381.

Lazarus R.S. , Folkman S. Stress, appraisal and coping. New York: Springer; 1984.

Folkman S. , Chesney M. , McKusick L. Translating coping theory into an intervention. In: Eckenrode J. , editor. The social context of coping. New York: Plenum; 1991.

Folkman S. Positive psychological states and coping with severe stress. Soc Sci Med 1997; 45(8): 1207–1221.

Folkman S. , Moskowitz J.T. Coping: pitfalls and promise. Annu Rev Psychol 2004; 55: 745–774.

Folkman S. , Greer S. Promoting psychological well-being in the face of serious illness: when theory, research and practice inform each other. Psychooncol 2000; 9(1): 11–19.

Folkman S. The case for positive emotions in the stress process. Anxiety Stress Coping 2008; 21(1): 3–14.

Chapman C.R. , Tuckett R.P. , Song C.W. Pain and stress in a systems perspective: reciprocal neural, endocrine, and immune interactions. J Pain 2008; 9(2): 122–145.

Visser E.J. , Davies S. Expanding Melzack's pain neuromatrix. The threat matrix: a super-system for managing polymodal threats. Pain Pract 2010; 10(2): 163.

American Medical Association Council on Ethical and Judicial Affairs. Sedation to unconsciousness in end-of-life care. Report 5-A-08. Chicago: author; 2008.

Rousseau P. Existential suffering and palliative sedation: a brief commentary with a proposal for clinical guidelines. Am J Hosp Palliat Care 2001; 18(3): 151–153.

Puchalski C. , Ferrell B. , Virani R. Improving the quality of spiritual care as a dimension of palliative care: the report of the Consensus Conference. J Palliat Med 2009; 12(10): 885–904.

Chochinov H.M. , Kristjanson L.J. , Breitbart W. Effect of dignity therapy on distress and end-of-life experience in terminally ill patients: a randomized controlled trial. Lancet Oncol 2011; 12(8): 753–762.

Maté J. , Mateo D. , Bayés R. Elaboración y propuesta de un instrumento para la detección de malestar emocional en enfermos al final de la vida. Psicooncología 2009; 6(2-3): 507–518.

Berde C. , Wolfe J. Pain, anxiety, distress, and suffering: interrelated, but not interchangeable. J Pediatr 2003; 142(4): 361–363.

Bendelow G.A. Pain, suffering and risk. Health Risk Soc 2006; 8(1): 59–70.

Terry W. , Olson L.G. Unobvious wounds: the suffering of hospice patients. Intern Med J 2004; 34(11): 604–607.

Kellehear A. On dying and human suffering. Palliat Med 2009; 23(5): 388–397.