Understanding the Provision of Palliative Care in the Context of Primary Health Care: Qualitative Research Findings from a Pilot Study in a Community Setting in Chile

Abstract

This pilot study looked at the provision of palliative care in the context of primary health care in a developing setting in Chile. Research objectives: The study aimed to delineate the experience of palliative care from the perspective of patients and health care professionals; to examine primary health care as a propitious milieu for palliative care in developing countries; and to generate opportunities for international collaboration between Chile and Canada. Methodology: The study followed tenets of hermeneutic phenomenology and participatory research. Research activities included audio-taped, in-depth individual interviews and participant observation in the home. Results: Patients expressed contentment with the services provided by the program. The support of family members, friends, neighbours, and the palliative team was critical to their home care. Health care professionals showed great enthusiasm for keeping the palliative care program going in the primary health care setting despite limited resources. They followed WHO and national guidelines for symptom relief and involved families in the care of the sick person. Conclusion: The provision of palliative care through primary health care increases access in developing countries.