The Dementia Difference: a Palliative Approach for People with Late-Stage Dementia—an Education Package for Residential Care

References used in developing The Dementia Difference: A Palliative Approach for People with Late-Stage Dementia are the following:

Alzheimer's Australia. Palliative Care and Dementia. Discussion Paper 7. 2006. [Electronic version]. Retrieved November 1, 2006 from http://www.alzheimers.org.au/upload/PalliativeCare.pdf.

Bern-Klug M. The ambiguous dying syndrome [electronic version]. Health and Soc Work 2004;29(1):55–65.

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Bowman T. Promoting resiliency in those who do bereavement work. Lifeline 1999; 27: 7–9.

Cairns M , Thompson M , Wainwright W. Transitions in dying and bereavement: a psychosocial guide for hospice and palliative care. Baltimore, Maryland: Health Professions Press, 2003.

Canadian Hospice Palliative Care Association. A model to guide hospice palliative care. 2002. Retrieved from www.cpca.net

Chang E , Hancock K , Harrison K , Daly J , Johnson A , Easterbrooks S. Palliative care for end-stage dementia: A discussion of the implications for education of health care professionals. Nurse Educ Today 2005; 25: 326–332.

Coventry PA , Grande GE , Richards DA , Todd C. Prediction of appropriate timing of palliative care for older adults with non-malignant life threatening disease: a systematic review. Age Ageing 2005; 34; 218–227.

Dempsey M , Baago S. Latent grief — the unique and hidden grief in carers of loved ones with dementia. Alzheimer Society of Niagara Region; 1998, pp. 1–10.

Donnelly M , Samaroo N. Dementia Coalition Literature Review. Vancouver, British Columbia, 2004.

Downing M , Wainwright W. Medical Care of the Dying. 3^rd edition. Victoria, British Columbia: Victoria Hospice Society, 2008.

Evans BD . Improving palliative care in the nursing home: from a dementia perspective. J Hosp Palliat Nurs 2008; 4 (2):91–99.

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MacCourt P. End of Life Care: Research evidence to support the provincial dementia service framework. Simon Fraser University, British Columbia: CARMHA, 2007.

Missouri's End of Life Coalition's End of Life in the Nursing Home Task Force. Guidelines for end of life care in long term care facilities: Emphasis on developing palliative care goals. 2003.

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Publications highlighting end-of-life dementia care and/or calling for more specialization in this field are the following:

Aminoff BZ , Adunsky A. Dying dementia patients: Too much suffering, too little palliation. Am J Hosp Palliat Med 2005; 22 (5):344–348.

Hancock K , Chang E , Johnson A , Harrison K , Daly J , Easterbrook S , . Palliative care for people with advanced dementia: The need for a collaborative, evidence-based approach. Alzheimer's Care Q 2006; 7 (1):49–57.

Kristjanson LJ , Walton J , Toye C. End-of-life challenges in residential aged care facilities: a case for a palliative approach to care. Int J Palliat Nurs 2005; 11 (3):127–129.

Lloyd-Williams M , Filbert M. Can palliative care improve the symptoms during the terminal phase of dementia? Eur J Palliat Care 2004; 11 (3):99–101.

Sampson EL , Ritchie CW , Lai R , Raven PW , Blanchard MR . A systematic review of the scientific evidence for the efficacy of a palliative care approach in advanced dementia. Int Psychogeriatrics 2005; 17 (1):31–40.

Small N , Froggatt K , Downs M. Living and Dying with Dementia: Dialogues about palliative care. Oxford: Oxford University Press, 2007.

Tilly J , Reed P , Gould E , Fok A. End-of-life care practice recommendations for assisted living residences and nursing homes serving individuals with dementia. Alzheimer's Care Q 2008; 9 (2):113–119.

Volicer L. End-of-life care for people with dementia in long-term care setting. Alzheimer's Care Q 2008; 9 (2):84–102.