Use of Technology as a Support Mechanism for Caregivers of Hospice Patients

National Hospice and Palliative Care Organization. NHPCO Facts and Figures 2003. Retrieved Sept. 28, 2004, from http://www.nhpco.org

Addington-Hall J. , Lay M. , Altmann D. , McCarthy M. Community care for stroke patients in the last year of life: results of a national retrospective survey of surviving family, friends and officials. Health Soc Care Community 1998; 6: 112–119.

Anderson C. , Linton J. , Stewart-Wynne E. A population-based assessment of the impact and burden of caregiving for long-term stroke survivors. Stroke 1995; 26: 843–849.

Vedhara K. , Cox N.K. , Wilcock G.K. , Perks P. , Hunt M. , Anderson S. Chronic stress in elderly carers of dementia patients and antibody response to influenza vaccination. Lancet 1999; 353: 627–631.

Broe G.A. , Jorm A.F. , Creasy H. , Casey B. , Bennett H. , Cullen J. Carer distress in the general population: results from the Sydney older persons study. Age Ageing 1999; 28: 307–311.

Schulz R. , Beach S.R. Caregiving as a risk factor for mortality. The caregiver health effects study. JAMA 1999; 282: 2215–2219.

Sales E. Pshychosocial impact of the phase of cancer on the family: an updated review. J Psychosocial Oncol 1991; 9: 1–9.

Ell K. , Nishimoto R. , Mantell J. , Hamovitch M. Longitudinal analysis of psychosocial adaptation among family members of patients with cancer. J Psychosom Res 1998; 32: 429–438.

Northouse L.L. Social support in patients’ and husbands’ adjustment to breast cancer. Nurs Res 1988; 37: 91–95.

Pilisuk M. , Parks S.H. Caregiving: where families need help. Soc Work 2001; 33(5): 436–440.

Emanuel E. , Fairclough D. , Slutsman J. , Alpert H. , Baldwin D. , Emanuel L.L. Assistance from family members, friends, paid caregivers, and volunteers in the care of terminally ill patients. N Engl J Med 1999; 341(13): 956–963.

Soothill K. , Morris S.M. , Harman J.C. , Francis B. , Thomas C. , McIllmurray M.B. Informal carers of cancer patients: What are their unmet social needs? Health Soc Care Community 2001; 9(6): 464–475.

Arno P. , Levine C. , Memmott M. The economic value of informal caregiving. Health Aff 1999; 18(12): 182–188.

Dean M. A law that would care for carers. Lancet 1995; 345(8957): 1101.

Schulz R. , Newsom J. , Mittelmark M. , Burton L. , Hirsch C. , Jackson S. Health effects of caregiving: the caregiver health effects study. an ancillary study of the cardiovascular health effects study. Ann Behav Med 1997; 19: 110–116.

Desbiens N.A. , Mueller-Rizner N. , Viring B. , Lynn J. Stress in caregivers of hospitalized oldest-old patients. J Gerontol A Biol Sci Med Sci 2001; 56A(4): M231–M235.

Mor V. , McHorney C. , Sherwood S. Secondary morbidity among the recently bereaved. Am J Psychiatry 1986; 143: 158–163.

Vitaliano P. Physiological and physical concomitants of caregiving: introduction to special issue. Ann Behav Med 1997; 19: 75–77.

Kiecolt-Glaser J.K. , Glaser R. , Gravenstein S. , Malarkey W.B. , Sheridan J. Chronic stress alters the immune response to influenza virus vaccine in older adults. Proc Natl Acad Sci U S A 1996; 93(7): 3043–3047.

Field M.J. , Cassel C.K. (eds). Approaching Death: improving care at the end of life. Institute of Medicine. Washington, D.C.: National Academies Press, 1997.

Payne S. , Smith P. , Dean S. Identifying the concerns of informal carers in palliative care. Palliat Med 1999; 13: 37–44.

Harding R. , Higginson I.J. What is the best way to help caregivers in cancer palliative care? A systematic literature review of interventions and their effectiveness. Palliat Med 2003; 17(1): 63–74.

Jensen S. , Given B.A. Fatigue affecting family caregivers of cancer patients. Cancer Nurs 1991; 14(4): 181–187.

Kinsella G. , Cooper B. , Picton C. , Murtagh D. (1998). A review of measurement of caregiver and family burden in palliative care. J Palliat Care 1998; 14(2): 37–45.

Newton M. , Bell D. , Lambert S. , Fearing A. Concerns of hospice patient caregivers. ABNF J 2002; 13(6): 140–144.

Kinsella G. , Cooper B. , Picton C. , Murtagh D. Factors influencing outcomes for family caregivers of persons receiving palliative care: toward an integrated model. J Palliat Care 2000; 16(3): 46–54.

Pearlin L.I. , Mullan J.T. , Sample S.J. , Skaff M.M. Caregiving and the stress process: an overview of concepts and their measures. Gerontologist 1990; 30: 583–594.

Meyers J.L. , Gray L.N. The relationships between family primary caregiver characteristics and satisfaction with hospice care, quality of life, and burden. Oncol Nurs Forum 2001; 28(1): 73–82.

Riaño D. , Prado S. , Pascual A. , Martin S. A multi-agent system model to support palliative care units. Proceedings of the 15th IEEE Symposium on Computer-based Medical Systems. CBMS, 2002; pp. 35–40

Regnard C. Using videoconferencing in palliative care. Palliat Med 2000; 14(6): 519–528.

Elsey B. , McIntyre J. Assessing a support and learning network for palliative care workers in a country area of South Australia. Aust J Rural Health 1996; 4(3): 159–164.

Oyama H. , Wakao F. , Okamura H. Virtual reality support system in palliative medicine. Stud Health Technol Inform 1997; 39: 60–63.

Doolittle G.C. A cost measurement study for a home-based telehospice service. J Telemed Telecare 2000; 6(Suppl. 1): S193–S195.

Cook D.J. , Doolittle G.C. , Whitten P.S. Administrator and provider perceptions of the factors relating to programme effectiveness in implementing telemedicine to provide end-of-life care. J Telemed Telecare 2001; 7(Suppl. 2): 17–19.

Demiris G. , Parker Oliver D. , Porock D. , Courtney K. The Missouri telehospice project: background and next steps. Home Health Care Technol Rep 2004; 1(4): 49–55.

Demiris G. , Parker Oliver D. , Fleming D.A. , Edison K. Hospice staff attitudes towards “telehospice.” Am J Hosp Palliat Care 2004; 21(5): 343–347.

Simpson S. Erasing the miles. Assisted Living Today 2001; 63–65.

Fetzer Institute's Relationship-Centered Care. Death, Dying and Living. Retrieved Sept. 28, 2004, from http:/www.fetzer.org/rcc/forum

Chochinov H.M. , Stern A. The Canadian Virtual Hospice <www.virtualhospice.ca>. J Pallit Care 2004; 20(1): 5–6.

Eysenbach G. , Powell J. , Englesakis M. , Rizo C. , Stern A. Health-related virtual communities and electronic support groups: systematic review of the effects of online peer-to-peer interactions. BMJ 2004; 328(7449): 1166.

Elger G. , Furugren B. SmartBo: an ICT and computer-based demonstration home for disabled people. Proceedings of the 3rd TIDE Congress: Technology for Inclusive Design and Equality Improving the Quality of Life for the European Citizen. Helsinki, Finland, 1998.

Van Berto A. A smart model house as research and demonstration tool for telematics development. Proceedings of the 3rd TIDE Congress: Technology for Inclusive Design and Equality Improving the Quality of Life for the European Citizen. Helsinki, Finland, 1998.

Kidd C.D. , Orr R.J. , Abowd G.D. , Atkeson C.G. , Essa I.A. , Maclntyre B. The Aware Home: a living laboratory for ubiquitous computing research. In the Proceedings of the Second International Workshop on Cooperative Buildings - CoBuild ‘99, 1999.

Telecommunications Industry Association. Resource guide for accessible design of consumer electronics-linking product design to the needs of people with functional limitations: a joint venture of the electronic industries alliance and the electronic industries foundations. Retrieved Sept. 30, 2004, from: http://www.tiaonline.org/access/guide.html

Bellazzi R. , Montani S. , Riva A. , Stefanelli M. Web-based telemedicine systems for home-care: technical Issues and experiences. Comput Methods Programs Blomed 2001; 64(3): 175–187.

Demiris G. , Finkelstein S.M. , Speedie S.M. Considerations for the design of a Web-based clinical monitoring and educational system for elderly patients. J Am Med Inform Assoc 2001; 8(5): 468–472.

Moran R. The electronic home: social and spatial aspects. Dublin: European Foundation for the Improvement of Living and Working Conditions, 1993.

Tetley J. , Hanson E. , Clarke A. Older people, telematics and care. In: Wames A.M. , Warren L. , Nolan M. (eds). Care Services for Later Life: transformations and critiques. London: Jessica Kingsley Publications, 2001; pp. 243–258.

Wylde M. , Vallns M.S. The impact of technology. In: Valins M.S. , Salter D. (eds). Futurecare: new directions in planning health and care environments. Oxford: Blackwell Science, 1996; pp. 15–24.

Hudson P.L. , Aranda S. , Kristjanson L.J. Meeting the supportive needs of family caregivers in palliative care; challenges for health professionals. J Palliat Med 2004; 7(1): 19–25.

Kristjanson L. The family as a unit of treatment. In: Portenoy R. , Bruera E. (eds). Topics in Palliative Care. New York: Oxford University Press, 1997.

Bucher J. , Houts P. , Nezu C. , Nezu A. Improving problem-solving skills of family caregivers through group education. J Psychosocial Oncol 1999; 16: 73–84.