Faith communities aspire to be places of healing, hope, and healthy relationships that bring life to every member. For individuals with intellectual and developmental disabilities (IDD) and their families, finding a place of belonging within such a community can have great importance. In this qualitative study, we explored the experiences of belonging among 25 parents who were involved in a local church and had a son or daughter with IDD. We present 10 dimensions of belonging that reflect a trajectory of deepening relationship—beginning with being present and culminating in being loved. We discuss implications of this framework for cultivating inclusive communities and offer recommendations for future research at the intersection of faith and disability.
AmadoA. N., DegrandeM., BoiceC., & HutchesonS. (2012). Accessible congregations campaign: Follow-up survey of impact on individuals with intellectual/developmental disabilities (ID/DD). Journal of Religion, Disability, and Health, 16, 394–419. doi: 10.1080/15228967.2012.731909
2.
AmadoA. N., StancliffeR. J., McCarronM., & McCallionP. (2013). Social inclusion and community participation of individuals with intellectual/developmental disabilities. Intellectual and Developmental Disabilities, 51, 369–375. doi:10.1352/1934-9556-51.5.360
3.
AnnandaleN. H., & CarterE. W. (2014). Disability and theological education: A North American study. Theological Education, 48, 83–102.
4.
AultM. J., CollinsB. C., & CarterE. W. (2013a). Congregational participation and supports for children and adults with disabilities: Parent perceptions. Intellectual and Developmental Disabilities, 51, 48–61. doi:10.1352/1934-9556-51.01.048
5.
AultM. J., CollinsB. C., & CarterE. W. (2013b). Factors associated with participation in faith communities for individuals with developmental disabilities and their families. Journal of Religion, Disability, and Health, 17, 184–211. doi:10.1080/15228967.2013.781777
6.
BiggsE. E., & CarterE. W. (in press). Quality of life for transition-age youth with autism or intellectual disability. Journal of Autism and Developmental Disorders. doi:10.1007 / s10803-015-2563-x
7.
BoehmT. L., CarterE. C., TaylorJ. L. (2015). Family quality of life during the transition to adulthood for individuals with intellectual disability and/or autism spectrum disorders. American Journal on Intellectual and Developmental Disabilities, 120, 395–411. doi: 10.1352/1944-7558-120.5.395
8.
BogenschutzM., AmadoA., SmithC., CarterE. W., CopelandM., … WalkerP. (2015). National goals for social inclusion for people with IDD. Inclusion, 3, 211–218. doi: 10.1352/2326-6988-3.4.211.
9.
BrockM. E., & SchaeferJ. M. (2015). Location matters: Geographic location and educational placement of students with developmental disabilities. Research and Practice for Persons with Severe Disabilities, 40, 154–164. doi:10.1177/1540796915591988
10.
BruckerD. L. (2015). Social capital, employment, and labor force participation among persons with disabilities. Journal of Vocational Rehabilitation, 43, 17–31. doi:10.3233/JVR-150751
11.
ButterworthJ., WinsorJ., SmithF. A., MiglioreA., DominD., TimmonsJ. C., & HallA. C. (2014). StateData: The national report on employment services and outcomes.Boston, MA: University of Massachusetts Boston, Institute for Community Inclusion.
12.
CarterE. W. (2007). Including people with disabilities in faith communities: A guide for service providers, families, and congregations.Baltimore, MD: Paul H. Brookes.
13.
CarterE. W. (2011). After the benediction: Walking alongside people with significant disabilities and their families in faith and life. Journal of Religion, Disability & Health, 15, 395–413. doi:10.1080/15228967.2011.619340
14.
CarterE. W. (2013). Supporting inclusion and flourishing in the religious and spiritual lives of people with intellectual and developmental disabilities. Inclusion, 1, 64–75. doi: 10.1352/2326-6988-1.1.064
15.
CarterE. W., BoehmT. L., AnnandaleN. H., & TaylorC. (in press). Supporting congregational inclusion for children and youth with disabilities and their families. Exceptional Children.
16.
CarterE. W., BoehmT. L., BiggsE. E., AnnandaleN. H., TaylorC., LogemanA. K., & LiuR. Y. (2015). Known for my strengths: Positive traits of transition-age youth with intellectual disability or autism. Research and Practice for Persons with Severe Disabilities, 40, 101–119. doi:10.1177/1540796915592158
17.
CarterE. W., KleinertH. L., LoBiancoT. F., Sheppard-JonesK. A., ButlerL. N., & TyreeM. S. (2015). Congregational participation of a national sample of adults with intellectual and developmental disabilities. Intellectual and Developmental Disabilities, 53, 381–393. doi: 10.1352/1934-9556-53.6.381
18.
CollinsB. C., & AultM. J. (2010). Including persons with disabilities in religious community: Program models implemented by two churches. Journal of Religion, Disability, and Health, 14, 113–131. doi:10.1080/15228961003622195
19.
CudneyN. (2015, May). Building communities of belonging: A place that doesn't just make room for me, but misses me when I'm not there. Presentation at the Oasis Conference, Richmond Hills, Ontario.
20.
GaventaW. (2012). Faith and spirituality: Supporting caregivers of individuals with disabilities. In TalleyR. C., & CrewsJ. E. (Eds.), Multiple dimensions of caregiving and disability (pp. 117–134). New York, NY: Springer.
21.
JacoberA. E. (2010). Youth ministry, religious education, and adolescents with disabilities: Insights from parents and guardians. Journal of Religion, Disability, and Health, 14, 167–181. doi:10.1080/15228961003622310
22.
Kessler Foundation. (2010). Kessler Foundation/NOD survey of Americans with disabilities.West Orange, NJ: Author.
23.
LaRocqueM., & EigenbroodR. (2005). Community access: A survey of congregational accessibility for people with disabilities. Journal of Religion, Disability and Health, 9, 55–66. doi:10.1300/J095v9n01_04
24.
LeeA. F. (2014). Leading a special needs ministry: A practical guide to including children and loving families.Cummins, GA: Rethink Group.
25.
LiuE. X., CarterE. W., BoehmT. L., AnnandaleN., & TaylorC. (2014). In their own words: The place of faith in the lives of young people with intellectual disability and autism. Intellectual and Developmental Disabilities, 52, 388–404. doi:10.1352/1934-9556-52.5.388
26.
National Organization on Disability. (2004). 2004 NOD/Harris survey of Americans with disabilities.Washington, DC: Author.
NVivo10 qualitative data analysis software. (2012). QSR International.
29.
PostonD. J., & TurnbullA. P. (2004). Role of spirituality and religion in family quality of life for families of children with disabilities. Education and Training in Developmental Disabilities, 39, 95–108.
30.
SipersteinG. N., NorinsJ., & MohlerA. (2007). Social acceptance and attitude change: Fifty years of research. In JacobsonJ. W., MulickJ. A., & RojahnJ. (Eds.), Handbook of intellectual and developmental disabilities (pp. 133–154). New York, NY: Springer.
31.
StancliffeR. J., LakinK. C., DoljanacR., ByunS., TaubS., & ChiriG. (2007). Loneliness and living arrangements. Intellectual and Developmental Disabilities, 45, 380–390. doi: 10.1352/1934-9556(2007)45[380:LALA]2.0.CO;2
32.
StraussA., & CorbinJ. (2008). Basics of qualitative research: Techniques and procedures for developing grounded theory (3rd ed.). Thousand Oaks, CA: Sage.
33.
SwintonJ. (2012). From inclusion to belonging: A practical theology of community, disability, and humanness. Journal of Religion, Disability, & Health, 16, 172–190. doi:10.1080/15228967.2012.676243
34.
TadaJ. E. (2012). Beyond suffering: A Christian view on disability ministry.Agoura Hills, CA: Joni and Friends.
35.
TiptonL. A., ChristensenL., & BlacherJ. (2013). Friendship quality in adolescents with and without an intellectual disability. Journal of Applied Research in Intellectual Disabilities, 26, 522–532. doi:10.1111/jar.12051
36.
WebsterA. A., & CarterM. (2007). Social relationships and friendships of children with developmental disabilities: Implications for inclusive settings. A systematic review. Journal of Intellectual and Developmental Disability, 32, 200–213.
37.
WetherbyK., & PhiloJ. (2015). Every child welcome: A ministry handbook for including kids with special needs.Grand Rapids, MI: Kregel.
38.
WolfensbergerW. (1983). Social role valorization: A proposed new term for the principle of normalization. Mental Retardation, 21, 234–239.
