Primary caregivers' perceptions of the overall quality of care given to their impaired elderly
relatives are more strongly related to the perceived helpfulness of selected formal care providers
(home aides, physicians, and social workers) than to the perceived helpfulness of selected kin
caregivers. Caregiver race and age, the types of other family members who are helping, and
whether a nurse is involved influence caregivers'perceptions of the helpfulness of these formal
care providers.
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References
1.
Applebaum, R.A.
, & McGinnis, R. (1992). What price quality? Assuring the quality of case-managed in-home care. Journal of Case Management, 1, 9-13.
2.
Barer, B.M.
, & Johnson, C.L. (1990). A critique of the caregiving literature. The Gerontologist, 30,26-29.
3.
Bass, D.M.
, McClendon, M.J., Deimling, G.T., & Mukherjee, S. (1994). The influence of diagnosed mental impairment on family caregiver strain. Journal of Gerontology: Social Sciences , 49, S146-S155.
4.
Bass, D.M.
, & Noelker, L.S. (1997). Family caregiving: A focus for aging research and intervention. In K. F. Ferraro (Ed.), Gerontology: Perspectives and issues (2nd ed., pp. 243-266). New York: Springer .
5.
Bass, D.M.
, Noelker, L.S., & Rechlin, L.R. (1996). The moderating influence of service use on negative caregiving consequences. Journal of Gerontology: Social Sciences , 51B, S121-S131.
6.
Brody, E.M.
, Litvin, S.J., Hoffman, C., & Kleban, M.H. (1992). Differential effects of daughters' marital status on their parent care experiences. The Gerontolagist, 32, 58-67.
7.
Cantor, M.H.
(1979). The informal support system in New York's inner city elderly: Is ethnicity a factor? In D. E. Gelfand & A. J. Kutznik (Eds.), Ethnicity and aging (pp. 153-174). New York: Springer.
8.
Cantor, M.H.
(1989). Social care: Family and community support systems . Annals of the American Academy of Political and Social Sciences , 503, 99-112.
9.
Cantor, M.H.
(1991). Family and community: Changing roles in an aging society. The Gerontologist, 31, 337-346.
10.
Cicirelli, V.G.
(1983). A comparison of helping behavior to elderly parents of adult children with intact and disrupted marriages. The Gerontologist, 23, 619-625.
11.
Cohen, J.
, & Cohen, P. (1975). Applied multiple regression/correlation analysis for the behavioral sciences. Hillsdale, NJ: Lawrence Erlbaum.
12.
Comptroller General of the United States.
( 1977). The well-being of older people in Cleveland, Ohio: A report to Congress. Washington, DC: General Accounting Office.
13.
Corrigan, J.M.
, & Nielsen, D.M. (1993). Toward the development of uniform reporting standards for managed care organizations-the Health Plan Employer Data Information Set (version 2.0). Joint Commission Journal onQuality Improvement , 19, 566-575.
14.
Deimling, G.T.
, & Bass, D.M. (1986). Symptoms of mental impairment among elderly adults and their effects on family caregivers. Journal of Gerontology , 41, 778-784.
15.
Deimling, G.T.
, Bass, D.M., Townsend, A.L., & Noelker, L.S. (1989). Care-related stress: A comparison of spouse and adult-child caregivers in shared and separate households. Journal of Aging and Health, 1, 67-82.
16.
Deimling, G.T.
, & Poulshock, S.W. (1985). The transition from family in-home care to institutional care. Research on Aging, 7, 563-576.
17.
Donabedian, A.
(1980). Explorations in quality assessment and monitoring, Volume 1: The definition of quality and approaches to its assessment. Ann Arbor, MI: Health Administration.
18.
Ensel, W.M.
(1986). Measuring depression: The CES-D scale. In N. Lin, A. Dean , & W. M. Ensel (Eds.), Social support, life events, and depression (pp. 51-68). Orlando, FL: Academic Press.
19.
Eustis, N.
, Kane, R., & Fischer, L. (1993). Home care quality and the home care worker: Beyond quality assurance as usual. The Gerontologist, 33, 64-73.
20.
George, L.K.
(1994). Caregiver burden and well-being: An elusive distinction . The Gerontologist, 34, 6-7.
21.
Gerace, C.S.
, & Noelker, L.S. (1990). Clinical social work practice with Black elderly and their family caregivers. In Z. Harel, E. McKinney, & M. Williams (Eds.), Black aged: Understanding diversity and service needs (pp. 236-258). Newbury Park, CA: Sage.
22.
Golden, R.R.
, Teresi, J.A., & Gurland, B.J. (1984). Development of indicator scales for the Comprehensive Assessment and Referral Evaluation (CARE) interview schedule. Journal of Gerontology, 39, 138-146.
Gwyther, L.
, Gold, D., & Hinman-Smith, E. (1988). Older people and their families: Coping with stress and conflict. Durham, NC: Duke University Center for the Study of Aging and Human Development.
25.
Hawes, C.
(1996). Assuring nursing home quality: The history and impact of federal standards in OBRA-1987. New York: Commonwealth Fund.
26.
Health Care Financing Administration. (1997). Medicare and Medicaid programs; Revision of conditions of participating for home health agencies and the use of outcome assessment information set (OASIS); proposed rules . Federal Register, 62, 11004-11064.
27.
Horowitz, A.
, & Dobrof, R. (1982). The role of families in providing long-term care to the frail and chronically ill elderly living in the community (Final Report, Health Care Financing Administration Grant No. 18-P-97541/20-02). Washington, DC: Health Care Financing Administration .
28.
Krause, N.
(1990). Perceived health problems, formal/informal support, and life satisfaction among older adults. Journal of Gerontology: Social Sciences, 45, S193-S205.
29.
Litwak, E.
(1985). Helping the elderly: The complementary roles of informal networks and formal systems. New York: Guilford.
30.
Miller, B.
, & Cafasso, L. (1992). Gender differences in caregiving: Fact or artifact?The Gerontologist, 32, 498-507.
31.
Miller, B.
, & McFall, S. (1991). The effect of caregiver's burden on change in frail older persons' use of formal helpers. Journal of Health and Social Behavior, 32, 165-179.
32.
Miller, B.
, McFall, S., & Campbell, R.T. (1994). Changes in sources of community long-term care among African Americans and White frail older persons. Journal of Gerontology: Social Sciences, 49, S14-S24.
33.
Mutran, E.
, & Reitzes, D.C. (1997). Reciprocity between family generations. In K. F. Ferraro (Ed.), Gerontology: Perspectives and issues (2nd ed., pp. 157-170). New York: Springer.
34.
Nagi, S.
(1976). An epidemiology of disability among adults in the United States. Milbank Quarterly, 54,439-467.
35.
Noelker, L.S.
, & Bass, D.M. (1989). Home care for elderly persons: Linkages between formal and informal caregivers. Journal of Gerontology: Social Sciences, 44, S63-S70.
36.
Noelker, L.S.
, & Bass, D.M. (1994). Relationships between the frail elderly's informal and formal helpers. In E. Kahana, D. E. Biegel, & M. L. Wykle (Eds.), Family caregiving across the lifespan (pp. 356-381). Thousand Oaks, CA: Sage.
37.
Noelker, L.S.
, Ford, A.B., Gaines, A.D., Haug, M.R., Jones, P.K., Stange, K.C., & Mefrouche, Z. (1998). Attitudinal influences on the elderly's use of assistance. Research on Aging, 20, 317-338.
38.
Noelker, L.S.
, & Wallace, R. (1985). The organization of family care for impaired elderly . Journal of Family Issues, 6, 23-44.
39.
Pearlin, L.I.
, Mullan, J., Semple, S.J., & Skaff, M. (1990). Caregiving and the stress process: An overview of concepts and their measures. The Gerontologist, 30, 583-594.
40.
Penrod, J.D.
, Kane, R.A., Kane, R.L., & Finch, M.D. (1995). Who cares? The size, scope, and composition of the caregiver support system. The Gerontologist, 35, 489-497.
41.
Pruchno, R.A.
, Michaels, J.E., & Potashnik, S.L. (1990). Predictors of institutionalization among Alzheimer's disease victims with caregiving spouses. Journal of Gerontology: Social Sciences, 45, S259-S266.
42.
Radloff, L.S.
(1977). The CES-D scale: A self-reported depression scale for research in the general population. Applied Psychological Measurement, 1, 385-401.
43.
Shaughnessy, P.
, Schlenker, R., Crisler, K., Powell, M., Hittle, D., Kramer, A., Spencer, M., Beale, S., Bostrom, S., Beaudry, J., Devore, P., Chamdramouli, V., Grant, W., Arnold, A., Bauman, M., & Jenikins, J. (1994, September). Measuring outcomes of home health care (Vol. 1): Final report (Contract No. 500-88-0054). Denver, CO: Centers for Health Policy and Services Research, University of Colorado Health Sciences Center.
44.
Stephens, S.A.
, & Christianson, J.B. (1986). Informal care of the elderly. Lexington, MA: D. C. Heath .
45.
Stone, R.
, Cafferata, G., & Sangl, J. (1987). Caregivers of the frail elderly: A national profile . The Gerontologist, 27, 616-626.
46.
Stull, D.E.
, Kosloski, K., & Kercher, K. (1994). Caregiver burden and generic well-being: Opposite sides of the same coin?The Gerontologist, 34, 88-94.
47.
Tausig, M.
(1992). Caregiver network structure, support and caregiver distress. American Journal of Community Psychology, 20, 81-96.
48.
Tennstedt, S.L.
, Crawford, S., & McKinlay, J.B. (1993). Determining the pattern of community care: Is coresidence more important than caregiver relationship?Journal of Gerontology: Social Sciences, 48, S74-S83.
49.
Tennstedt, S.L.
, McKinlay, J.B., & Sullivan, L.M. (1989). Informal care for frail elders: The role of secondary caregivers. The Gerontologist , 29, 677-683.
50.
Townsend, A.L.
, & Poulshock, S.W. (1986). Intergenerational perspectives on impaired elders' support networks. Journal of Gerontology , 41, 101-109.
51.
Weissert, W.G.
, Cready, C.M., & Pawelak, J.E. (1988). The past and future of home- and community-based long-term care. Milbank Quarterly, 66, 309-387.
