This paper addresses the changing demands of parenting handicapped and normal children throughout various stages of the life span — Pregnancy, the toddler, childhood and adolescent years, and adult children. Various issues which become critical at each of these stages are discussed and similarities and differences in parenting and child-rearing practices for these two groups are outlined. The paper highlights the fact that occupational therapists have many valuable specialist skills and a broad knowledge base from which to offer assistance to parents grappling with parenting a handicapped child.
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References
1.
ClarkPNAllenAS, Occupational therapy for children. St Louis, Missouri: CV Mosby, 1985.
2.
RapoportRRapoportRStrelitzZ.Mothers, fathers and others. St Lucia: University of Queensland Press, 1977.
3.
AlpertJLRichardsonMS, Parenting. In: PoonLW, ed. Aging in the 1980s: Psychological issues. Washington DC: American Psychological Association, 1980.
4.
BristorMW, The birth of a handicapped child: A wholistic model for grieving. Fam Relations1984; 33: 25–32.
5.
FortierLMWanlassRL, Family crisis following the diagnosis of a handicapped child. Fam Relations1984; 33: 13–24.
6.
HallCWRichmondBO, Consultation with parents of handicapped children. Except Child1984; 31: 185–92.
7.
HowardJ.The influence of children's developmental dysfunction on marital quality and family interaction. In: LernerRSpanierG, eds. Child influences on marital and family interaction. New York: Academic Press, 1980.
8.
KazakAEMarvinRS, Differences, difficulties and adaptation: Stress and social networks in families with a handicapped child. Fam Relations1984; 33: 66–67.
9.
LonsdaleG.Family life with a handicapped child: The parents speak. Child Care Health Dev1979; 44: 99–120.
10.
RoosP.Parents of mentally retarded children — Misunderstood and mistreated. In: TurnbullARTurnbullHR, Parents speak out; views from the other side of a two-way mirror. Ohio: CE Merrill, 1978.
11.
SchildS.The family of the retarded child. In: KockRDobsonG, eds. The mentally retarded child and his family: A multidisciplinary approach. New York: Brunner/Mazel, 1971.
12.
WiklerL.Chronic stresses of families of mentally retarded children. Fam Relations1981; 30: 281–88.
13.
GathA.The impact of an abnormal child on the parents. Br J Psychiatry1977: 150: 405–10.
14.
McAndrewI.Children with handicap and their families. Child Care Health Dev1976; 2: 213–37.
15.
TewBJLawrenceKMPayneHRawnsleyK.Marital stability following the birth of a child with spina bifida. Br J Psychiatry1977; 131: 79–82.
16.
BollJDiminoEMattsonAE, Parenting attitudes — The role of personality style and childhood long-term illness. J Psychosom Res1978; 22: 209–13.
17.
BarshRH, The parent of a handicapped child: A study of child rearing practices. Springfield, Illinois: CC Thomas, 1968.
18.
MackeithR.The restoration of parents as the keystone of the therapeutic arch. Dev Med Child Neurol1976; 18: 285–86.
19.
WrightLMatlockKSMatlockD.Parents of handicapped children: Their self-ratings, life satisfaction and parental adequacy. Except Child1985; 32: 37–39.
20.
OsofskyHJOsofskyJC, Normal adaptation to pregnancy and new parenthood. In: TaylorPM, ed. Parent-infant relationships. New York: Grune and Stratton, 1980.
21.
Le MastersL.Parenthood as crisis. In: ParadJH, ed. Crisis intervention: Selected readings. New York: FSAA, 1965: 111–117.
22.
McCollumJ.Parenting an infant with a disability. Except Parent1984; 14: 45–50.
23.
CowanCPCowanPACoieLCoieJD, Becoming a family: The impact of a first child's birth on the couple's relationship. In: MillerWWNewmanLF, eds. The first child and family formation. Chapel Hill, NC: Carolina Population Centre, University of North Carolina, 1978.
24.
EdwardsM.Financial support for parenthood. Aust J Early Childhood1980; 5: 36–38.
25.
CummingsST, The impact of the child's deficiency on the father: A study of the fathers of mentally retarded and chronically ill children. Am J Orthopsychiatry1976; 46: 246–55.
26.
RichardsMPMDunnJF, Antonis B. Caretaking in the first year of life: The role of fathers and mothers' social isolation. Child Care Health Dev1977; 3: 23–26.
27.
YounghusbandEDavieRBrichallDKelmer-PringleML, Living with handicap. London: National Bureau for Cooperation in Child Care, 1970.
28.
TurnbullAPTurnbullHR, Parental involvement in the education of handicapped children: A critique. Ment Retard1982; 28: 395–400.
29.
BlackardMKBarshET, Parents' and professionals' perceptions of the handicapped child's impact on the family. TASH J1982; 7: 62–70.
30.
LuccaJASettlesBM, Effects of children's disabilities on parental time use. Phys Ther1981; 61: 196–200.
31.
FarberBJenneWToigoR.Family crisis and the decision to institutionalize a retarded child. CEC Research Monograph Series, No. A-I. New York: Council for Exceptional Children, 1960.
32.
FriedrichWNFriedrichWL, Psychosocial assets of parents of handicapped children. Am J Ment Defic1981; 5: 551–53.
33.
BubolzMMWhirenAP, The family of the handicapped: An ecological model for policy and practice. Fam Relations1984: 33: 5–12.
34.
AshmoreN.Love is not enough. Except Parent1985; 15(Apr): 21.
35.
ToplissE.Provision for the disabled. 2nd ed.London: Blackwell, 1979.
36.
TavorminaJBBollTJDunnNJLuscombRITaylorJR, Psychosocial effects on parents of raising a physically handicapped child. J Abnorm Child Psychol1981; 91: 121–31.
37.
VoyseyM.A constant burden — the reconstitution of family life. London: Routledge and Kegan Paul, 1975.
38.
LongoDCBondL.Families of the handicapped child: Research and practice. Fam Relations1984; 33: 57–68.
