Developmental coordination disorder in UK children aged 6–18 years: Estimating the cost

Abstract

Introduction

Developmental coordination disorder is a neurodevelopmental disorder affecting motor ability, with an estimated prevalence of between 2% and 6% in school-aged children. It is associated with considerable psychosocial impact. However, the financial cost this poses to families and society has never been assessed. We aimed to estimate the direct, indirect and out-of-pocket costs associated with developmental coordination disorder in United Kingdom school-aged children in the 6 months prior to our survey.

Method

Parents/guardians answered an online questionnaire adapted from the Client Service Receipt Inventory.

Results

Mean direct healthcare costs were approximately £700 in the 6 months prior to the survey. Almost all children were in mainstream education, but many received additional support. Among children who received therapy, the average indirect cost was £574 in the 6 months prior to the survey. However, this did not include changes to employment made to accommodate caring for the child. Notably, respondents commented that they frequently struggled to access services for their children. Thus, these figures may be a marked underestimation of true need.

Conclusion

This study represents the first cost-of-illness study for developmental coordination disorder. It demonstrates that developmental coordination disorder incurs a significant cost to society but particularly to families. Improvements to diagnostic pathways and post-diagnosis service provision are much needed.