This paper reports on one section of a larger project, which examined employment issues from the perspectives of people with multiple sclerosis (MS) and the professionals who may support them in retaining or regaining employment. The aims of the study were, first, to explore the knowledge and experience of MS specialists, occupational therapists and disability employment advisers of employment and MS and, second, to identify the current practice of professionals supporting people with MS in work. A postal questionnaire was used to elicit a wide range of responses.
The results showed that the impact of MS on employment was well understood, but that there was less awareness of the wider social influences on the ability to retain employment. There was evidence of a range of support being offered by some participants, but there appeared to be a gap between the problems reported and interventions offered overall.
There is a need for further research to develop effective interventions targeted at supporting people with MS in work, which will underpin the implementation of Quality Requirement 6 of the National Service Framework for Long-Term Conditions.
BakerNATickle-DegnanL (2001) The effectiveness of physical, psychological and functional interventions in treating clients with multiple sclerosis: A meta-analysis. American Journal of Occupational Therapy, 55(3), 324–31.
2.
BeattyWWBlancoCRWilbanksSLPaulRHHamesKA (1995) Demographic, clinical and cognitive characteristics of multiple sclerosis patients who continue to work. Journal of Neurological Rehabilitation, 9(3), 167–73. BirnboimSMillerA (2004) Cognitive strategies application of multiple sclerosis patients. Multiple Sclerosis, 10(1), 67–73.
3.
British Society of Rehabilitation Medicine (2000) Vocational rehabilitation: The way forward: A working party report. London: British Society of Rehabilitation Medicine.
4.
BurgessM (2002) Multiple sclerosis: Theory and practice for nurses. London: Whurr.
5.
ChwastiakLEhdeDMGibbonsLESullivanMBowenJDKraftGH (2002) Depressive symptoms and severity of illness in multiple sclerosis: Epidemiological study of a large community sample. American Journal of Psychiatry, 159(11), 1862–68.
6.
ClemmonsDFraserRRosenbaumGGetterAJohnsonE (2004) An abbreviated neuropsychological battery in multiple sclerosis vocational rehabilitation: Findings and implications. Rehabilitation Psychology, 49(2), 100–105.
DeaneKEllis-HillCDekkerKDaviesPClarkeC (2003) A survey of current occupational therapy practice for Parkinson's disease in the United Kingdom. British Journal of Occupational Therapy, 66(5), 193–200.
9.
Department of Health (2003) Ten key roles for allied health professionals. London: Stationery Office.
10.
Department of Health (2004) The NHS Improvement Plan: Putting people at the heart of public services. London: Stationery Office.
11.
Department of Health (2005) The National Service Framework for Long-Term Conditions. London: DH.
12.
DyckIJongbloedL (2000) Women with multiple sclerosis and employment issues: A focus on social and institutional environments. Canadian Journal of Occupational Therapy, 67(5), 337–46.
13.
EbersGC (2001) Natural history of multiple sclerosis. Journal of Neurology, Neurosurgery and Psychiatry, 71, Suppl II, ii16–ii19.
14.
EdgleyKSullivanMJDehouxE (1991) A survey of multiple sclerosis, part 2: Determinants of employment status. Canadian Journal of Rehabilitation, 4(3), 127–32.
15.
FraserRTJohnsonEKClemmonsDCGetterAJohnsonKLGibbonsL (2003) Vocational rehabilitation in multiple sclerosis (MS): A profile of clients seeking services. Work, 21, 69–76.
16.
GrimaDTorranceGFrancisGRiceGRosnerALafortuneL (2000) Cost and health related quality of life consequences of multiple sclerosis. Multiple Sclerosis, 6(2), 91–98.
17.
GulickEE (1996) Health status, work impediments and coping related to work roles of women with MS. Work, 6, 153–66.
18.
GulickEEYamMTouwMM (1989) Performance by persons with multiple sclerosis: Conditions that impede or enable performance of work. International Journal of Nursing Studies, 26, 301–11.
19.
HarrisonS (2007) Fatigue management for people with multiple sclerosis. 2nd ed.London: College of Occupational Therapists.
20.
JohnsonKLFraserRT (2005) Mitigating the impact of multiple sclerosis on employment. Physical Medicine and Rehabilitation Clinics of North America, 16, 571–82.
21.
JohnsonKLAmtmannDYorkstonKMKlasnerERKuehnCM (2004) Medical, pyschological, social, and programmatic barriers to employment for people with multiple sclerosis. Journal of Rehabilitation, 70(1), 38–49.
22.
JossM (2002) Occupational therapy and rehabilitation for work. British Journal of Occupational Therapy, 65(3), 141–48.
23.
KornblithABLaRoccaNBaumHM (1986) Employment in individuals with multiple sclerosis. International Journal of Rehabilitation Research, 9(2), 155–65.
24.
KurtzkeJF (1983) Rating neurological impairment in multiple sclerosis: An expanded disability status scale (EDSS). Neurology, 33(11), 1444–52.
25.
LaRoccaNKalbRScheinbergLKendallP (1985) Factors associated with unemployment of patients with multiple sclerosis. Journal of Chronic Disease, 38(2), 203–10.
26.
MathiowetzVMatuskaKMurphyM (2001) Efficacy of an energy conservation course for persons with multiple sclerosis. Archives of Physical Medicine and Rehabilitation, 82(4), 449–56.
27.
Morales-GonzalesJBenito-LeonJRivera-NavarroJMitchellAJ, and for the GEDMA Study (2004) A systematic approach to analyse health-related quality of life in multiple sclerosis: The GEDMA study. Multiple Sclerosis, 10, 47–54.
28.
National Institute for Clinical Excellence (2003) Multiple sclerosis: Management of multiple sclerosis in primary and secondary care. London: NICE.
29.
O'ConnorRJCanoSJRamio i TorrentaLThompsonAJPlayfordED (2005) Factors influencing work retention for people with multiple sclerosis: Cross-sectional studies using qualitative and quantitative methods. Journal of Neurolinguistics, 252, 892–96.
30.
PolmanCThompsonAJMurrayTJMcDonaldWI (2001) Multiple sclerosis: The guide to treatment and management. 5th ed.New York: Demos Medical.
31.
PompeiiLMoonSDMcCroryD (2005) Measures of physical and cognitive function and work among individuals with multiple sclerosis: A review of the literature. Journal of Occupational Rehabilitation, 15(1), 69–84.
32.
PurdonSStratfordNTaylorRNatarajanLBellSWittenburgD (2006) Impacts of the job retention and rehabilitation pilot. London: Department for Work and Pensions.
33.
ReynoldsF (2003) Reclaiming a positive identity in chronic illness through artistic occupation. OTJR: Occupation, Participation and Health, 23(3), 118–27.
34.
RichardsSHammarsalM (2003) Pathways to work: Helping people into employment. Joint response by COT/OTWPP to the Select Committee Enquiry. Work Practice and Productivity, Spring, 12–15.
35.
RoesslerRTKirkHMBrownPL (1997) Chronic illness and return to work: A social cognitive perspective. Work, 8, 189–96.
36.
RoesslerRTFitzgeraldSMRumrillPDKochLC (2001) Determinants of employment status among people with multiple sclerosis. Rehabilitation Counseling Bulletin, 45(1), 31–39.
37.
RoesslerCBarlingJDephoffMJohnsonTSweeneyS (2003) Developing and implementing lifestyle management programs with people with multiple sclerosis. Occupational Therapy in Health Care, 17(3), 97–114.
38.
RoesslerRTRumrillPDFitzgeraldSM (2004) Predictors of employment status for people with multiple sclerosis. Rehabilitation Counseling Bulletin, 47(2), 96–103.
39.
RumrillPDSteffenJMKaletaDAHolmanCA (1996) Job placement interventions for people with multiple sclerosis. Work, 6, 167–75.
40.
RumrillPRoesslerRTCookBG (1998) Improving career re-entry outcomes for people with multiple sclerosis: A comparison of two approaches. Journal of Vocational Rehabilitation, 10, 241–52.
41.
RumrillPDTaborTHennesseyMLMintonD (2000) Issues in employment and career development for people with multiple sclerosis: Meeting the needs of an emerging vocational rehabilitation clientele. Journal of Vocational Rehabilitation, 14(2), 109–17.
42.
RumrillPRoesslerRTVierstraCHennesseyMLStaplesL (2004) Workplace barriers and job satisfaction among employed people with multiple sclerosis: An empirical rationale for early intervention. Journal of Vocational Rehabilitation, 20, 177–83.
43.
SchwidSRCovingtonMSegalBMGoodmanAD (2002) Fatigue in multiple sclerosis: Current understanding and future directions. Journal of Rehabilitation Research and Development, 39(2), 211–24.
44.
SilvermanD (2001) Interpreting qualitative data: Methods for analysing talk, text and interaction. 2nd ed.London: Sage.
45.
UK MS Specialist Nurses Association, Royal College of Nursing, Multiple Sclerosis Trust (2001) The key elements for developing MS specialist nurse services in the UK. Letchworth: MS Trust.
46.
Van DenendT (2006) Employment needs of people with multiple sclerosis: A review of current literature and application to occupational therapy practice. Occupational Therapy in Health Care, 20(1), 61–77.
47.
VanageSMGilbertsonKKMathiowetzV (2003) Effects of an energy conservation course on fatigue impact for persons with progressive multiple sclerosis. American Journal of Occupational Therapy, 57(3), 315–23.
48.
WaddellGBurtonAK (2006) Is work good for your health and well-being?London: Stationery Office.
49.
WilcockAA (1998) Reflections on doing, being, and becoming. Canadian Journal of Occupational Therapy, 65(5), 248–57.
50.
Women and Equality Unit (2003) Advancing women in the workplace. (Factsheet.) London: Department of Trade and Industry.
51.
Women and Equality Unit (2004) Key facts on women in the labour market. London: Department of Trade and Industry.
52.
YerxaE (1998) Health and the human spirit for occupation. American Journal of Occupational Therapy, 52(6), 412–18.
53.
YorkstonKMJohnsonKLKlasnerER (2005) Taking part in life: Enhancing participation in multiple sclerosis. Physical Medicine and Rehabilitation Clinics of North America, 16, 583–94.
