Parental participation in intervention programs for children with physical disabilities has become an important issue in recent years, often emphasized by both professionals and parents. In this article, recent studies examining parental involvement in intervention programs for children with cerebral palsy are reviewed. Only a few studies were found that were explicitly designed to study the effects of parental involvement. Most of these studies reported positive results, especially regarding child-related outcomes. The effects on the parents were less clear, with positive and negative results reported. One important variable distinguishing programs with positive effects was the degree to which parents were involved in setting goals for their children's programs. Recommendations for practice and future research are given.
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References
1.
Affleck, G., McGrade, B. J., McQueeney, M., & Allen, D. (1982). Promise of relationship-focused early intervention in developmental disabilities. The Journal of Special Education, 16, 413–430.
2.
Allen, D. A., & Hudd, S. S. (1987). Are we professionalizing parents? Weighing the benefits and pitfalls. Mental Retardation, 25, 133–139.
3.
Barna, S., Bidder, R. T., Gray, O. P., Clements, J., & Gardner, S. (1980). The progress of developmentally delayed pre-school children in a home-training scheme. Child: Care, Health and Development, 6, 157–164.
4.
Bazyk, S. (1989). Changes in the attitudes and beliefs regarding parent participation and home programs: An update. The American Journal of Occupational Therapy, 43, 723–728.
5.
Campbell, P. H. (1987). Programming for students with dysfunction in posture and movement. In M. E. Snell (Ed.), Systematic instruction of persons with severe handicaps (pp. 188–211). Columbus, OH: Merrill.
6.
Campbell, S. K. (1991). Pediatric neurologic physical therapy.New York: Churchill Livingstone.
7.
Denhoff, E. (1981). Current status of infant stimulation or enrichment programs for children with developmental disabilities. Pediatrics, 67, 32–37.
8.
Graves, P. (1995). Therapy methods for cerebral palsy. Journal of Paediatrics and Child Health, 31, 24–28.
9.
Gross, A. M., Eudy, C., & Drabman, R. S. (1982). Training parents to be physical therapists with their physically handicapped child. Journal of Behavioral Medicine, 5, 321–327.
10.
Guralnick, M. J. (1989). Recent developments in early intervention efficacy research: Implications for family involvement in P.L. 99–457. Topics in Early Childhood Special Education, 9(3), 1–17.
11.
Hanzlik, J. R. (1989). The effect of intervention on the free-play experience for mothers and their infants with developmental delay and cerebral palsy. Physical and Occupational Therapy in Pediatrics, 9, 33–51.
12.
Harris, S. R. (1990). Efficacy of physical therapy in promoting family functioning and functional independence for children with cerebral palsy. Pediatric Physical Therapy, 2, 160–164.
13.
Hinojosa, J. (1990). How mothers of preschool children with cerebral palsy perceive occupational and physical therapists and their influence on family life. The Occupational Therapy Journal of Research, 10, 144–162.
14.
Hinojosa, J., & Anderson, J. (1991). Mothers' perceptions of home treatment programs for their preschool children with cerebral palsy. The American Journal of Occupational Therapy, 45, 273–279.
15.
King, G. A., King, S. M., & Rosenbaum, P. L. (1996). How mothers and fathers view professional caregiving for children with disabilities. Developmental Medicine and Child Neurology, 38, 397–407.
16.
Kohn, J. G. (1990). Issues in the management of children with spastic cerebral palsy. Fediatricion, 17, 230–236.
17.
Kolobe, T. H. A. (1991). Family-focused early intervention. In S. K. Campbell (Ed.), Pediatric neurologic physical therapy (pp. 397–432). New York: Churchill Livingstone.
18.
Law, M., Cadman, D., Rosenbaum, P., Walter, S., Russell, D., & DeMatteo, C. (1991). Neurodevelopmental therapy and upperextremity inhibitive casting for children with cerebral palsy. Developmental Medicine and Child Neurology, 33, 379–387.
19.
Law, M., & King, G. (1993). Parent compliance with therapeutic interventions for children with cerebral palsy. Developmental Medicine and Child Neurology, 35, 983–990.
20.
Levitt, S. (1995). Treatment of cerebral palsy and motor delay. Oxford: Blackwell Science.
21.
Lord, J. (1984). Cerebral palsy: A clinical approach. Archives of Physical Medicine & Rehabilitation, 65, 542–548.
22.
Mayo, N. E. (1981). The effect of a home visit on parental compliance with a home program. Physical Therapy, 61, 27–32.
23.
Mayo, N. E. (1991). The effect of physical therapy for children with motor delay and cerebral palsy. American Journal of Physical Medicine & Rehabilitation, 70, 258–267.
24.
McCormick, L., & Noonan, M. (1984). A responsive curriculum for severely handicapped preschoolers. Topics in Early Childhood Special Education, 4, 79–96.
25.
Milner, J., Bungay, C., Jellinek, D., & Hall, D. M. B. (1996). Needs of disabled children and their families. Archives of Disease in Childhood, 75, 399–404.
26.
Muir, K. A., & Milan, M. A. (1982). Parent reinforcement for child achievement: The use of a lottery to maximize parent training effects. Journal of Applied Behavior Analysis, 15, 455–460.
27.
Palmer, F. B., Shapiro, B. K., Allen, M. C., Mosher, B. S., Bilker, S. A., Harryman, S. E., Meinert, C. L., & Capute, A. J. (1990). Infant stimulation curriculum for infants with cerebral palsy: Effects on infant temperament, parent-infant interaction, and home environment. Pediatrics, 85, 411–415.
28.
Palmer, F. B., Shapiro, B. K., Wachtel, R. C., Allen, M. C., Hiller, J. E., Harryman, S. E., Mosher, B. S., Meinert, C. L., & Capute, A. J. (1988). The effects of physical therapy on cerebral palsy. A controlled trial in infants with spastic diplegia. The New England Journal of Medicine, 318, 803–808.
29.
Parette, H. P., Holder, L. F., & Sears, J. D. (1984). Correlates of therapeutic progress by infants with cerebral palsy and motor delay. Perceptual and Motor Skills, 58, 159–163.
30.
Parette, H. P., & Hourcade, J. J. (1985). Parental participation in early therapeutic intervention programs for voung children with cerebral palsy: An unresolved dilemma. Rehabilitation Literature, 46, 2–7.
31.
Peterson, N. L., & Cooper, C. S. (1989). Parent education and involvement in early intervention programs for handicapped children: A different perspective on parent needs and the parent-professional relationship. In M. J. Fine (Ed.), The second handbook on parent education (pp. 197–234). New York: Academic Press.
32.
Rosenbaum, P. L., King, S. M., & Cadman, D. T. (1992). Measuring processes of caregiving to physically disabled children and their families. I: Identifying relevant components of care. Developmental Medicine and Child Neurology, 34, 103–114.
33.
Sarimski, K., & Hoffmann, I. W. (1993). Uberfürsorglichkeit als Bewältigungsreaktion bei der Durchführung intensiver Krankengymnastik [Overprotectiveness as a coping reaction in intensive physical therapy]. Zeitschrift für Kinder- und Jugendpsychiatrie, 21, 109–114.
34.
Scrutton, D. (1984). Management of the motor disorders of children with cerebral palsy. Oxford: Blackwell Scientific.
35.
Shepherd, R. B. (1995). Physiotherapy in paediatrics.Oxford: Butterworth-Heinemann.
36.
Short, D. L., Schkade, J. K., & Herring, J. A. (1989). Parent involvement in physical therapy: A controversial issue. Journal of Pediatric Orthopaedics, 9, 444–446.
37.
Simeonsson, R. J., & Bailey, D. B. (1990). Family dimensions in early intervention. In S. J. Meisel & J. P. Shonkoff (Eds.), Handbook of early childhood intervention (pp. 428–444). New York: Cambridge University Press.
38.
Von Wendt, L., Ekenberg, L., Dagis, D., & Janlert, U. (1984). A parentcentered approach to physiotherapy for their handicapped children. Developmental Medicine & Child Neurology, 26, 445–448.
39.
Wilson, J. M. (1991). Cerebral palsy. In S. K. Campbell (Ed.), Pediatric neurologic physical therapy (pp. 301–360). New York: Churchill Livingstone.
