Abstract
Optimal family-centered care coordination is the cornerstone of high-quality Early Intervention (EI) services, yet implementation varies across states, contributing to disparate child and family outcomes. We examined the perspectives of early intervention stakeholders from multiple states on their current family-centered care coordination practices using adapted grounded theory. We conducted qualitative interviews via online videoconferencing (with email follow up in some cases) in groups of 1 to 4 with a total of twenty-five participants (n = 3 parents, n = 12 providers, n = 10 program leadership). Three themes emerged: 1) family-centered care coordination characterization; 2) complexity of early intervention systems and its adverse sequelae; and 3) what works well to enhance family-centered care coordination in early intervention. Using our findings, we refined and expanded the initial conceptual model, guiding the approach to the ongoing scale-up evaluation of family-centered care coordination across multiple states. We provide best practice recommendations for state-level high-value early intervention.
Keywords
Get full access to this article
View all access options for this article.
References
Supplementary Material
Please find the following supplemental material available below.
For Open Access articles published under a Creative Commons License, all supplemental material carries the same license as the article it is associated with.
For non-Open Access articles published, all supplemental material carries a non-exclusive license, and permission requests for re-use of supplemental material or any part of supplemental material shall be sent directly to the copyright owner as specified in the copyright notice associated with the article.
