Prader-Willi syndrome (PWS) is a complex neurodevelopmental disorder associated with behavioral and physical challenges that can prevent individuals from developing essential independent daily living skills, such as toileting. Limited research exists on toileting skills in the PWS population, which can impede the development of effective and targeted intervention. This survey study aimed to address this gap by gathering information about current toileting behaviors, training histories, and barriers to training, as reported by caregivers of children with PWS. Forty-one caregivers responded to the survey. Results indicate that while many challenges experienced by children with PWS may be similar to those experienced by other populations with developmental disabilities, several unique features of PWS further complicate the toileting process. These preliminary findings highlight the need for future research to inform interventions tailored to the specific needs of individuals with PWS.
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