van der SteenJTGoodmanC. What research we no longer need in neurodegenerative disease at the end of life: the case of research in dementia. Palliat Med2015; 29(3): 189–192.
2.
Van den BlockL. Advancing research on advance care planning in dementia. Palliat Med2019; 33(3): 259–261.
3.
De VleminckAVan den BlockL. How to enhance advance care planning research?Palliat Med2023; 37(5): 660–662.
4.
MonnetFDiazAGoveD, et al. The perspectives of people with dementia and their supporters on advance care planning: a qualitative study with the European Working Group of People with Dementia. Palliat Med2024; 38(2): 251–263.
5.
MonnetF.‘What matters most?’ Supporting advance care planning for people with dementia and their families. Doctoral Thesis. VUB, Brussels, 2024.
6.
van der SteenJTNakanishiMVan den BlockL, et al. Consensus definition of advance care planning in dementia: a 33-country Delphi study. Alzheimers Dement2024; 20(2): 1309–1320.
7.
Van RickstalRVleminckAEngelborghsS, et al. A qualitative study with people with young-onset dementia and their family caregivers on advance care planning: a holistic, flexible, and relational approach is recommended. Palliat Med2022; 36(6): 964–975.
8.
Lemos DekkerNBoltSR. Relating to the end of life through advance care planning: expectations and experiences of people with dementia and their family caregivers. Dementia2022; 21(3): 918–933.
9.
Abshire SaylorMHannaVZhangP, et al. Advance care planning in adults ages 80 years and older with impaired cognition: using actual conversations to examine best practices. Alzheimers Dement. Epub ahead of print 10December2024. DOI: 10.1002/alz.14331.
10.
BybeeSUtzRClaytonJ, et al. Adapted conversation analysis to evaluate dyadic dementia-related advanced care planning discussions. Innov Aging2024; 8(S1): 918.
11.
MoninJGilHWeissJ, et al. Appreciative inquiry workshop to develop a dyadic intervention for parents and adult children coping with dementia. Innov Aging2024; 8(S1): 569.
12.
van LummelEVTJIetswaardLRigterM, et al. Finding the balance between person-centred and treatment-centred discussions in advance care planning – a qualitative analysis of conversations within the MUTUAL (multidisciplinary timely undertaken advance care planning conversations) intervention using a narrative analysis. Age Ageing2024; 53(3): afae020.
13.
DupontCSmetsTMonnetF, et al. A website to support people with dementia and their family caregivers in advance care planning: results of a mixed-method evaluation study. Patient Educ Couns2024; 127: 108357.
14.
FleurenNDeplaMFIAJanssenDJA, et al. Underlying goals of advance care planning (ACP): a qualitative analysis of the literature. BMC Palliat Care2020; 19(1): 1–27.
15.
NishimuraMHarrison DeningKSampsonEL, et al. A palliative care goals model for people with dementia and their family: consensus achieved in an international Delphi study. Palliat Med2024; 38(4): 457–470.
16.
RietjensJACSudoreRLConnollyM, et al. Definition and recommendations for advance care planning: an international consensus supported by the European Association for Palliative Care. Lancet Oncol2017; 18(9): e543–e551.
17.
SudoreRLHeylandDKBarnesDE, et al. Measuring advance care planning: optimizing the advance care planning engagement survey. J Pain Symptom Manage2017; 53(4): 669–681.e8.
18.
SellarsMChungONolteL, et al. Perspectives of people with dementia and carers on advance care planning and end-of-life care: a systematic review and thematic synthesis of qualitative studies. Palliat Med2019; 33(3): 274–290.
