Eliciting the educational needs and priorities of home care workers on end-of-life care for patients with heart failure using nominal group technique

Abstract

Background:

Home care workers, as paid caregivers, assist with many aspects of home-based heart failure care. However, most home care workers do not receive systematic training on end-of-life care for heart failure patients.

Aim:

To elicit the educational needs and priorities of home care workers caring for community- dwelling adults with heart failure at the end-of-life.

Design:

Nominal group technique involving a semi-quantitative structured group process and point rating system was used to designate the importance of priorities elicited from home care workers. Individual responses to the question, “If you have ever cared for a heart failure patient who was dying (or receiving end-of-life care on hospice), what are some of the challenges you faced?”, were aggregated into categories using directed content analysis methods.

Setting/Participants:

Forty-one home care workers were recruited from a non-profit training and education organization in New York City.

Results:

Individual responses to the question were aggregated into five categories: (1) how to cope and grieve; (2) assisting patients with behavior changes, (3) supporting patients to improve their quality of life, (4) assisting patients with physical symptom management, and (5) symptom recognition and assessment.

Conclusions:

Our findings confirm the need for the formal development and evaluation of an educational program for home care workers to improve the care of heart failure patients at the end-of-life. There is also a need for research on integrating home care workers into the interprofessional healthcare team to support optimal health outcomes for patients with heart failure.