FeudtnerCRosenbergARBossRD, et al. Challenges and priorities for pediatric palliative care research in the United States and similar practice settings: report from a pediatric palliative care research network workshop. J Pain Symptom Management2019; 58(5): 909–917.e3.
2.
LordB.Parent perspective and response to challenges and priorities for pediatric palliative care research. J Pain Symptom Manage2019; 58(5): e9–e10.
3.
JanvierAFarlowBBarringtonJB, et al. Building trust and improving communication with parents of children with Trisomy 13 and 18: a mixed-methods study. Palliat Med2020; 34(3): 262–271.
4.
CousinoMKMillerVASmithC, et al. Medical and end-of-life decision making in adolescents pre-heart transplant: a descriptive pilot study. Palliat Med2020; 34(3): 272–280.
5.
NeedleJSPeden-McAlpineCLiaschenkoJ, et al. “Can you tell me why you made that choice?”: a qualitative study of the influences on treatment decisions in advance care planning among adolescents and young adults undergoing bone marrow transplant. Palliat Med2020; 34(3): 281–290.
6.
EkbergSHerbertAJohnsK, et al. Finding a way with words: delphi study to develop a discussion prompt list for paediatric palliative care. Palliat Med2020; 34(3): 291–299.
7.
HeinKKnochelKZaimovicV, et al. Identifying key elements for paediatric advance care planning with parents, healthcare providers, and stakeholders: a qualitative study. Palliat Med2020; 34(3): 300–308.
8.
RibbersSWagerJHartenstein-PinterA, et al. Core outcome domains of pediatric palliative care for children with severe neurological impairment and their families: a qualitative interview study. Palliat Med2020; 34(3): 308–318.
9.
NamisangoEBristoweKMurtaghF, et al. Towards person-centred quality care for children with life-limiting and life-threatening illness: self-reported symptoms, concerns and priority outcomes from a multi-country qualitative study. Palliat Med2020; 34(3): 319–335.
10.
LauNBradfordMCSteineckA, et al. Examining key sociodemographic characteristics of adolescents and young adults with cancer: a post hoc analysis of the Promoting Resilience in Stress Management randomized clinical trial. Palliat Med2020; 34(3): 336–348.
11.
SchmidtPHartenstein-PinterAWagerJ, et al. Addressing multidrug resistant pathogens in pediatric palliative care patients – the nurses point of view: a qualitative study. Palliat Med2020; 34(3): 349–357.
12.
ThomasKCollinsABurchellJ, et al. Describing the psychosocial profile and unmet support needs of parents caring for a child with a life-limiting condition: a cross-sectional study of caregiver-reported outcomes. Palliat Med2020; 34(3): 358–366.
13.
LichtenthalWRobertsKECatarozoliC, et al. Regret and unfinished business in parents bereaved by cancer: a mixed methods study. Palliat Med2020; 34(3): 367–377.
14.
LindemannDBorasioGFührerM, et al. Visualizing social support in home pediatric palliative care using network maps. Palliat Med2020; 34(3): 378–386.
15.
MitchellSBennettKMorrisA, et al. Achieving beneficial outcomes for children with life-limiting and life-threatening conditions receiving palliative care and their families: a realist review. Palliat Med2020; 34(3): 387–402.
16.
KayeECApplegarthJGattasM, et al. Hospice nurses request paediatric-specific educational resources and training programs to improve care for children and families in the community: qualitative data analysis from a population-level survey. Palliat Med2020; 34(3): 403–412.
17.
RaedMGrossoehmeDHBrownM, et al. Hospital to home transport at end of life: survey of clinician experience. Palliat Med2020; 34(3): 424–429.
18.
DombrechtLCohenJCoolsF, et al. Psychological support in end-of-life decision-making in neonatal intensive care units: full population survey among neonatologists and neonatal nurses. Palliat Med2020; 34(3): 430–434.
19.
ButlerAEVincentKBluebond-LangnerM.Insights into the perception that research ethics committees are a barrier to research with seriously ill children: a study of committee minutes and correspondence with researchers studying seriously ill children. Palliat Med2020; 34(3): 413–423.
