What matters time? The importance of time for those with advanced progressive disease and their families

Abstract

Get full access to this article

View all access options for this article.

References

World Health Organization. Definition of palliative care, 2012, http://www.who.int/cancer/palliative/definition/en/

Glaser

Strauss

Time for dying. Chicago, IL: Aldine, 1968.

Emanuel

Alpert

Baldwin

. What terminally ill patients care about: toward a validated construct of patients’ perspectives. J Palliat Med 2000; 3(4): 419–431.

Masso

Allingham

Banfield

. Palliative Care Phase: inter-rater reliability and acceptability in a national study. Palliat Med. Epub ahead of print 23 September 2014. DOI: 10.1177/0269216314551814.

Evans

Harding

Higginson

; MORECare. ‘Best practice’ in developing and evaluating palliative and end-of-life care services: a meta-synthesis of research methods for the MORECare project. Palliat Med 2013; 27(10): 885–898.

Richardson

Greenslade

Shanmugathasan

. PREDICT: a diagnostic accuracy study of a tool for predicting mortality within one year: who should have an advance healthcare directive? Palliat Med. Epub ahead of print 25 July 2014. DOI: 10.1177/0269216314540734.

Wilson

Morbey

Brown

. Administering anticipatory medications in end-of-life care: a qualitative study of nursing practice in the community and in nursing homes. Palliat Med. Epub ahead of print 28 July 2014. DOI: 10.1177/0269216314543042.

Greer

Jackson

Meier

. Early integration of palliative care services with standard oncology care for patients with advanced cancer. CA: Cancer J Clin 2013; 63(5): 349–363.

Lunney

Lynn

Foley

. Patterns of functional decline at the end of life. JAMA 2003; 289(18): 2387–2392.

10.

Murtagh

Sheerin

Addington-Hall

. Trajectories of illness in stage 5 chronic kidney disease: a longitudinal study of patient symptoms and concerns in the last year of life. Clin J Am Soc Nephrol 2011; 6(7): 1580–1590.

11.

Pinnock

Kendall

Murray

. Living and dying with severe chronic obstructive pulmonary disease: multi-perspective longitudinal qualitative study. BMJ 2011; 342: d142.