Family Stories: A Qualitative Collaborative Study

Abstract

This Paper is based on a qualitative, collaborative study which explored the experiences of ten New Zealand families of children with visual impairment The research process demonstrates a way in which the parent/professional relationship might be effected. Designed around a narrative life history model, stories were accessed through the triangulation of focus group exploration, questionnaire and face-to-face family interviews. Excerpts from the stories in which participants speak directly include aspects which played a prominent part in the lives of the families. The framework within which the findings were examined - Bronfenbrenner's Ecological Model - is outlined. Issues relating to the education and health needs of children predominate, with educators the professionals parents most expect to support them. The study's families speak to other families, professionals, service providers and policy makers and bring each the opportunity to listen, understand and integrate what is relevant to their own life experiences.