This article attempts to put developments in molecular biology into the
broader context of disability rights and the relationship between
disabled people and medical science. It includes a critique of biologi
cal reduclionism and of the role of the media in inflating 'back-to-
basics biology'. The article suggests that disabled people have not
been consulted or involved in debates around the new genetics and
that a wider discussion of these developments is urgently needed.
Get full access to this article
View all access options for this article.
References
1.
Abberley, Paul (1986) 'The concept of oppression and the development of a social theory of disabihty', Disability, Handicap and Society, Vol 2, No 1, pp5-21
2.
Bailey, R. (1994) 'The policy and practice of prenatal diagnosis', unpublished MSc dissertation, London School of Economics
3.
Barnes, Colin (1993) Making Our Own Choices, BCODP , Derby
4.
Clarke, A. (1991) 'Is non-directive genetic counselling possible ?', Lancet338998-1000.
5.
Freund, P.E.S (1988) 'Bringing society into the body. understanding socialized human nature', Theory and Society17, pp839-64.
6.
Green, J. (1990) Calming or Harming? A Critical Review of Psychological Effects of Fetal Diagnosis on Pregnant Women, Galton Institute , London
7.
Hentoff, N. (1987) 'The awful privacy of Baby Doe', in Alan Gartner and Tom Joe (eds), Images of the Disabled, Disabling Images, Praeger, New York.
8.
Hevey, D. (1992) The Creatures Time Forgot, Routledge, London
9.
Hood, L. (1992) 'Biology and medicine m the 21st century', m Kevles, D.J. and Hood, L. op cit. Karpf, A. ( 1988) Doctoring the Media, Routledge, London
10.
Keller, E.F. (1992) 'Nature, nurture and the Human Genome Project' , in Kevles, D.J. and Hood, L., op cit.
11.
Kevles, D.J. and Hood, L. (1992) The Code of Codes Scientific and Social Issues in the Human Genome Project, Harvard University Press, Cambndge MA.
12.
Lewontin, R. (1993) Biology as Ideology, Penguin , Harmondsworth.
13.
Lifton, R.J. (1986) The Nazi Doctors, Basic Books , New York
14.
Morris, J. (1991) Pride Against Prejudice, Women's Press, London.
15.
Mulkay, Michael (1994) 'Science and family m the great embryo debate' , Sociology, Vol 28, No 3, pp699-716
16.
Oakley, A. (1993) Essays on Women, Medicine and Health, Edinburgh University Press, EdinburghOliver, M. (1990) The Politics of Disablement, Macmillan, Basingstoke.
17.
Richards, M P M. (1989) 'Social and ethical problems of fetal diagnosis and screening', Journal of Reproductive and Infant Psychology , Vol 7, pp171-85
18.
Richards, M P.M (1993) 'The new genetics. some issues for social scientists' , Sociology of Health and Illness, 15, 567-87.
19.
Rose, S. , Kamin, L , Lewontin, R (1984) Not In Our Genes, Penguin, Harmondsworth. Shakespeare, T. (1993) 'Disabled people's self-organisation: a new social movement?', Disability, Handicap and Society Vol 8, No 3, pp249-64.
20.
Scott, R. (1969) The Making of Blind Men, Russell Sage Foundation, New York
21.
Sutherland, Allan (1981) Disabled We Stand, Souvenir Press, London
22.
Wald, N.J. et al (1992) 'Antenatal maternal screening for Down's syndrome: results of a demonstration project', British Medical Journal305, pp391-94
23.
Watson, J. (1992) 'A personal view of the project,, m Kevles, D.J and Hood, L.
24.
Wexler, N. (1992) 'Clairvoyance and caution. repercussions from the Human Genome Project', m Kevles, D J and Hood, L , op cit.
25.
Wilkie, Tom (1993) Perilous Knowledge, Faber, London