As nurses move from the hospital into the home setting, they are challenged to examine boundaries ofpractice andfamily-nurse relationships. This phenomenological study was undertaken to explore the experiences of nurses working with families of technology-dependent children in the home. The main theme emerging from the data was the nurse's presence as "a stranger in the family. " Additional themes focused on the nurse's advocacy for the child and family, boundary setting, collaboration, and occupational demands.
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References
1.
Aday, L. , & Wegener, D. (1988). Home care for ventilator-assisted children: Implications for the children, their families, and health policy. Children's Health Care, 17(2), 112-120.
2.
Bailey, D. (1987). Collaborative goal-setting with families: Resolving differences in values and priorities for service. Topics in Early Childhood Special Education, 7(2), 59-71.
3.
Barkauskas, V. (1990). Home health care. In J. Fitzpatrick, R. Taunton, & J. Benoliel (Eds.), Annual Review of Nursing Research (Vol. 8, pp. 103-132). New York: Springer.
4.
Belanus, A. , & Hunt, P. (1992). When orientation is notenough. Home Healthcare Nurse, 10(6), 36-40.
5.
Bums, N. (1989). Standards for qualitative research. Nursing Science Quarterly, 2(1), 44-52.
6.
Clarke, P. , & Cody, W. (1994). Nursing theory-based practice in the home and community: The crux of professional nursing education. Advances in Nursing Science, 17,41-53.
7.
Coffman, S. (1995). Crossing lines: Parents' experiences of pediatric nursing in the home. Rehabilitation Nursing Research, 4, 136-143.
8.
Green, C. P. , Carty, E., Gordon, I., & Murphy, A. (1983). Skeletons in the closet: Exploring personal family background as a prerequisite for family nursing. Journal of Advanced Nursing, 8, 191-200.
9.
Humphrey, C. J. (1988). The home as a setting for care: Clarifying the boundaries of practice. Home Health Care, 23(2), 305-314.
10.
Kanady, J. (1990). Chronically ill children: Perceptions of the nurses who provide their care at home and in the hospital. Unpublished doctoral dissertation, Southern Illinois University.
11.
Klug, R. (1993). Clarifying roles and expectations inhome care. Pediatric Nursing, 19, 374-376.
12.
Leininger, M. (1994). Evaluation criteria and critique of qualitative research studies. In J. Morse (Ed.), Critical issues in qualitative research methods (pp. 95-115). Thousand Oaks, CA: Sage.
13.
Liaschenko, J. (1994). The moral geography of home care. Advances in Nursing Science, 17, 16-26.
14.
Marvan-Hyam, J. (1986). Occupational stress of the home health nurse. Home Healthcare Nurse, 4(3), 18-21.
15.
Patterson, J. , Jernell, J., Leonard, B., & Titus, J. (1994). Caring for medically fragile children at home: The parent-professional relationship. Journal of Pediatric Nursing, 9, 98-106.
16.
Pickel, M. (1991). Caring for families: What we see is what they get. Issues in Comprehensive Pediatric Nursing, 14, 65-72.
17.
Ray, M. A. (1994). The richness of phenomenology: Philosophic, theoretic, and methodologic concerns. In J. Morse (Ed.), Critical issues in qualitative research methods (pp. 117-133). Thousand Oaks, CA: Sage.
18.
van Manen, M. (1990). Researching lived experience. New York: State University of New York Press.