The purpose of this phenomenological qualitative study was to describe the lived experience of people who had a neobladder constructed. Men and women with direct and personal knowledge of the experience were interviewed. Analyses of transcribed verbatim narratives were conducted. Major and minor themes with clustered subthemes were identified. Selected themes included diagnosing cancer, detesting the idea of the bag, coping with stressful events, managing tubes and drains, responding to incontinence, keeping the neobladder healthy, and seeing cancer as a lifelong threat.
Get full access to this article
View all access options for this article.
References
1.
Aboseif, S.R., Borirakchanyavat, S., Lue, T.F., & Carroll, P.R. (1998). Continence mechanism of the ileal neobladder in women: A urodynamics study. Wound Journal of Urology, 16, 400-404.
2.
American Cancer Society. (2002). What are the key statistics for bladder cancer? Retrieved August 12, 2002, from www.cancer.org/eprise/main/docroot/CRI/content/CRI_2_4_1x_What_are_the_key_statistics_for_bladder_cancer_44?sitearea=&level=
3.
Arai, Y., Taki, Y., Kawase, N., Terachi, T., Kakehi, Y., Okada, T., et al. (1999). Orthotopic ileal neobladder in male patients: Functional outcomes of 66 cases. International Journal of Urology, 6, 388-392.
4.
Blute, M.L., & Gburek, B.M. (1998). Continent orthotopic urinary diversion in female patients: Early Mayo Clinic experience. Mayo Clinic Proceedings, 73, 501-507.
5.
Colaizzi, P. (1978). Psychological research as the phenomenologist sees it. In R.S. Valle & M. King (Eds.), Existential-phenomenological alternatives for psychology (pp. 48-71). New York: Oxford University Press.
6.
Eisenberger, C.F., Schoenberg, M., Fitter, D., & Marshall, F.F. (1999). Orthotopic ileocolic neobladder reconstruction following radical cystectomy: History, technique and results of the John Hopkins experience, 1986-1998. Urologic Clinics of North America, 26, 149-156.
7.
Ghoneim, M.A. (1997). Orthotopic bladder substitution in women following cystectomy for bladder cancer. Urologic Clinics of North America, 24, 225-239.
8.
Hautmann, R.E. (1997). The ileal neobladder to the female urethra. Urologic Clinics of North America, 24, 827-835.
9.
Hautmann, R.E., Paiss, T., & de Petriconi, R. (1996). The ileal neobladder in women: 9 years of experience with 18 patients. The Journal of Urology, 155, 76-81.
10.
Hossan, E., & Striegel, A. (1993). Carcinoma of the bladder. Seminars in Oncology Nursing, 9, 252-266.
11.
Kane, A. (2000a). Criteria for successful neobladder surgery: Patient selection and surgical construction. Urologic Nursing, 20(3), 182-188.
12.
Kane, A. (2000b). Nursing management of neobladder surgery: The Studer Pouch. Urologic Nursing, 20(3), 189-199.
13.
Koraitim, M.H., Atta, M.A., & Foda, M.K. (1996). Desire to void and force of micturition in patients with intestinal neobladders. The Journal of Urology, 155, 1214-1246.
14.
Maxwell, J.A. (1992). Understanding and validity in qualitative research. Harvard Educational Review, 62, 279-299.
15.
Montie, J.E., & Park, J.M. (1997). Orthotopic diversion in women. Seminars in Urologic Oncology, 15(3), 184-188.
16.
Racioppi, M., D’Addessi, A., Fanasca, A., Mingrone, G., Capristo, E., Benedetti, G., et al. (1999). Acid-bases and electrolyte balance in urinary intectinal orthotopic reservoir: Ileocecal neobladder compared with ileal neobladder. Urology, 54, 629-635.
17.
Raleigh, E.D., Berry, M., & Montie, J. (1995). A comparison of adjustments to urinary diversions: A pilot study. Journal of Wound, Ostomy, Continence Nursing, 22, 58-63.
Stenzl, A., Colleselli, K., Poisel, S., Feichtinger, H., & Bartsch, G. (1996). The use of neobladders in women undergoing cystectomy for transitional-cell cancer. World Journal of Urology, 14, 15-21.
20.
Streubert, H., & Carpenter, D.R. (1999). Qualitative research in nursing. Philadelphia: J.B. Lippincott.
21.
van Manen, M. (1990). Researching lived experience. Ontario, Toronto, Canada: State University of New York Press.
