Much of the research on parents of children with intellectual and developmental disabilities (IDD) has focused on the negative effects on the couple relationship. The current study contributes to the understanding of parental relationship satisfaction in a sample of parents of children with Down syndrome (DS), through a mixed methods study that included data from a large national sample. Parents of children with DS were divided into two groups based on high and low relationship satisfaction scores, with quantitative and qualitative data analyses comparing these two groups. Results indicated differences between high relationship satisfaction and low relationship satisfaction groups on measures of hope, life satisfaction, and coping scores. Qualitative results also indicated group differences. Future research and implications for professionals working with parents of children with DS and other IDD diagnoses should include understanding the unique factors that affect interpersonal functioning.
BentleyG. E.BrownM. D.WhitingJ. B. (2018). Perspectives from fathers: Recognizing their strengths and contributions beyond breadwinning. In Nelson GoffB. S.Piland SpringerN. (Eds.), Intellectual and developmental disabilities: A roadmap for families and professionals (pp. 90–103). New York: Routledge/Taylor & Francis.
2.
BourkeJ.RicciardoB.BebbingtonA.AibertiK.JacobyP.DykeP.MsallM.BowerC.LeonardH. (2008). Maternal physical and mental health in children with Down syndrome. Journal of Pediatrics, 153(3), 320–326. https://doi.org/10.1016/j.jpeds.2008.02.047
3.
BrobstJ. B.CloptonJ. R.HendrickS. S. (2009). Parenting children with autism spectrum disorders. Focus on Autism and Other Developmental Disabilities, 24(1), 38–49. https://doi.org/10.1177/1088357608323699
4.
BrownM.WhitingJ.Kahumoku‐FesslerE.WittingA. B.JensenJ. (2020). A dyadic model of stress, coping, and marital satisfaction among parents of children with autism. Family Relations, 69, 138–150. https://doi.org/10.1111/fare.12375
5.
BusbyD. M.ChristensenC.CraneD. R.LarsonJ. H. (1995). A revision of the dyadic adjustment scale for use with distressed and nondistressed couples: Construct hierarchy and multidimensional scales. Journal of Marital and Family Therapy, 21(3), 289–308. https://doi.org/10.1111/j.1752-0606.1995.tb00163.x
6.
ClessJ. D.StephensonC. (2018). Perspectives from mothers: Recognizing their strengths and contributions beyond caregiving. In Nelson GoffB. S.Piland SpringerN. (Eds.), Intellectual and developmental disabilities: A roadmap for families and professionals (pp. 76–89). New York: Routledge/Taylor & Francis.
7.
CorbinJ.StraussA. (2015). Basics of qualitative research: Techniques and procedures for developing grounded theory. Los Angeles: Sage.
8.
CreswellJ. W.Plano ClarkV. L. (2018). Designing and conducting mixed methods research (3rd ed.). Thousand Oaks, CA: Sage.
9.
CuskellyM.Hauser-CramP.Van RiperM. (2009). Families of children with Down syndrome: What we know and what we need to know. Down Syndrome: Research & Practice, 12(3), 202–210. Retrieved fromhttps://assets.cdn.down-syndrome.org/pubs/a/reviews-2079.pdf
10.
DabrowskaA.PisulaE. (2010). Parenting stress and coping styles in mothers and fathers of pre-school children with autism and Down syndrome. Journal of Intellectual Disability Research, 54(3), 266–280. https://doi.org/10.1111/j.1365-2788.2010.01258.x
11.
DePapeA.-M.LindsayS. (2015). Parents’ experiences of caring for a child with autism spectrum disorder. Qualitative Health Research, 25(4), 569–583. https://doi.org/10.1177/1049732314552455
EisenhowerA. S.BakerB. L.BlacherJ. (2005). Preschool children with intellectual disability: Syndrome specificity, behaviour problems, and maternal well‐being. Journal of Intellectual Disability Research, 49(9), 657–671. https://doi.org/10.1111/j.1365-2788.2005.00699.x
14.
FidlerD. J.HodappR. M.DykensE. M. (2000). Stress in families of young children with Down syndrome, Williams syndrome, and Smith-Magenis syndrome. Early Education & Development, 11, 395–406. https://doi.org/10.1207/s15566935eed1104_2
15.
FreedmanB. H.KalbL. G.ZablotskyB.StuartE. A. (2012). Relationship status among parents of children with autism spectrum disorders: A population-based study. Journal of Autism and Developmental Disorders, 42(4), 539–548. https://doi.org/10.1007/s10803-011-1269-y
16.
FunkJ. L.RoggeR. D. (2007). Testing the ruler with item response theory: Increasing precision of measurement for relationship satisfaction with the Couples Satisfaction Index. Journal of Family Psychology, 21, 572–583. https://doi.org/10.1037/0893-3200.21.4.572
17.
GreenS. E. (2003). “What do you mean ‘what’s wrong with her?’”: Stigma and the lives of families of children with disabilities. Social Science & Medicine, 57, 1361–1374. https://doi.org/10.1016/S0277-9536(02)00511-7
18.
GreenS.DavisC.KarshmerE.MarshP.StraightB. (2005). Living stigma: The impact of labeling, stereotyping, separation, status loss, and discrimination in the lives of individuals with disabilities and their families. Sociological Inquiry, 75(2), 197–215. https://doi.org/10.1111/j.1475-682X.2005.00119.x
19.
HartleyS. L.BarkerE. T.SeltzerM. M.FloydF.GreenbergJ.OrsmondG.BoltD. (2010). The relative risk and timing of divorce in families of children with an autism spectrum disorder. Journal of Family Psychology, 24(4), 449–457. https://doi.org/10.1037/a0019847
20.
HastingsR. P. (2016). Do children with intellectual and developmental disabilities have a negative impact on other family members? The case for rejecting a negative narrative. International Review of Research in Developmental Disabilities, 50, 165–194. https://doi.org/10.1016/bs.irrdd.2016.05.002
21.
HayesS. A.WatsonS. L. (2013). The impact of parenting stress: A meta-analysis of studies comparing the experience of parenting stress in parents of children with and without autism spectrum disorder. Journal of Autism and Developmental Disorders, 43(3), 629–642. https://doi.org/10.1007/s10803-012-1604-y
HodappR. M. (2007). Families of persons with Down syndrome: New perspectives, findings, and research and service needs. Mental Retardation and Developmental Disabilities Research Reviews, 13(3), 279–287. https://doi.org/10.1002/mrdd.20160
24.
HodappR. M.LyT. M.FidlerD. J.RicciL. A. (2001). Less stress, more rewarding: Parenting children with Down syndrome. Parenting, 1(4), 317–337. https://doi.org/10.1207/S15327922PAR0104_3
25.
HoltonJ. A. (2007). The coding process and its challenges. In BryantA.CharmazK. (Eds.), The Sage handbook of grounded theory (pp. 265–289). Thousand Oaks, CA: Sage.
26.
KershJ.HedvatT. T.Hauser-CramP.WarfieldM. E. (2006). The contribution of marital quality to the well-being of parents of children with developmental disabilities. Journal of Intellectual Disability Research, 50(12), 883–893. https://doi.org/10.1111/j.1365-2788.2006.00906.x
27.
KingG. A.ZwaigenbaumL.KingS.BaxterD.RosenbaumP.BatesA. (2006). A qualitative investigation of changes in the belief systems of families of children with autism or Down syndrome. Child: Care, Health and Development, 32(3), 353–369. https://doi.org/10.1111/j.1365-2214.2006.00571.x
28.
LangleyE.TotsikaV.HastingsR. P. (2017). Parental relationship satisfaction in families of children with autism spectrum disorder (ASD): A multilevel analysis. Autism Research, 10(7), 1259–1268. https://doi.org/10.1002/aur.1773
29.
LudlowA.SkellyC.RohlederP. (2011). Challenges faced by parents of children diagnosed with autism spectrum disorder. Journal of Health Psychology, 17(5), 702–711. https://doi.org/10.1177/1359105311422955
30.
MackintoshV. H.Goin-KochelR. P.MyersB. J. (2012). What do you like/dislike about the treatments you’re currently using?”: A qualitative study of parents of children with autism spectrum disorders. Focus on Autism and Other Developmental Disabilities, 27(1), 51–60. https://doi.org/10.1177/1088357611423542
31.
MarquisS.HayesM. V.McGrailK. (2019). Factors affecting the health of caregivers of children who have an intellectual/developmental disability. Journal of Policy and Practice in Intellectual Disabilities, 16, 201–216. https://doi.org/10.1111/jppi.12283
32.
McCubbinH. I.OlsonD. H.LarsenA. S. (1991). F-COPES: Family crisis oriented personal evaluation scales. In McCubbinH. I.ThompsonA. I. (Eds.), Family assessment inventories for research and practice (pp. 259–270). Madison‚ WI: University of Wisconsin.
33.
McGloneK.SantosL.KazamaL.FongR.MuellerC. (2002). Psychological stress in adoptive parents of special-needs children. Child Welfare, 81(2), 151–171.
34.
MitchellD. B.SzczerepaA.Hauser-CramP. (2016). Spilling over: Partner parenting stress as a predictor of family cohesion in parents of adolescents with developmental disabilities. Research in Developmental Disabilities, 49–50, 258–267. https://doi.org/10.1016/j.ridd.2015.12.007
35.
MorganD. L. (2007). Paradigms lost and pragmatism regained: Methodological implications of combining qualitative and quantitative methods. Journal of Mixed Methods Research, 1(1), 48–76. https://doi.org/10.1177/2345678906292462
36.
NamkungE. H.SongJ.GreenbergJ. S.MailickM. R.FloydF. J. (2015). The relative risk of divorce in parents of children with developmental disabilities: Impacts of lifelong parenting. American Journal on Intellectual and Developmental Disabilities, 120(6), 514–526. https://doi.org/10.1352/1944-7558-120.6.514
37.
NortonM.DychesT. T.HarperJ. M.RoperS. O.CaldarellaP. (2016). Respite care, stress, uplifts, and marital quality in parents of children with Down syndrome. Journal of Autism and Developmental Disorders, 46, 3700–3711. https://doi.org/10.1007/s10803-016-2902-6
38.
PattonM. Q. (2002). Qualitative research and evaluation methods (3rd ed.). Thousand Oaks, CA: Sage.
39.
PoehlmannJ.ClementsM.AbbedutoL.FarsadV. (2005). Family experiences associated with a child’s diagnosis of fragile X or Down syndrome: Evidence for disruption and resilience. Mental Retardation, 43(4), 255–267. https://doi.org/10.1352/0047-6765(2005)43[255:FEAWAC]2.0.CO;2
40.
ReschJ. A.MirelesG.BenzM. R.GrenwelgeC.PetersonR.ZhangD. (2010). Giving parents a voice: A qualitative study of the challenges experienced by parents of children with disabilities. Rehabilitation Psychology, 55(2), 139–150. https://doi.org/10.1037/a0019473
41.
RisdalD.SingerG. H. S. (2004). Marital adjustment in parents of children with disabilities: A historical review and meta-analysis. Research and Practice for Persons with Severe Disabilities, 29(2), 95–103. https://doi.org/10.2511/rpsd.29.2.95
42.
SandersJ. L.MorganS. B. (1997). Family stress and adjustment as perceived by parents of children with autism or Down syndrome: Implications for intervention. Child & Family Behavior Therapy, 19(4), 15–32. https://doi.org/10.1300/J019v19n04_02
43.
SimA.CordierR.VazS.ParsonsR.FalkmerT. (2017). Relationship satisfaction and dyadic coping in couples with a child with autism spectrum disorder. Journal of Autism and Developmental Disorders, 47(11), 3562–3573. https://doi.org/10.1007/s10803-017-3275-1
44.
SmithA. L.RomskiM.SevcikR. A.AdamsonL. B.BarkerR. M. (2014). Parent stress and perceptions of language development: Comparing Down syndrome and other developmental disabilities. Family Relations, 63, 71–84. https://doi.org/10.1111/fare.12048
45.
StonemanZ.Gavidia-PayneS. (2006). Marital adjustment in families of young children with disabilities: Associations with daily hassles and problem-focused coping. American Journal on Mental Retardation, 111(1), 1–14. https://doi.org/10.1352/0895-8017
46.
TruittM.BieseckerB.CaponeG.BaileyT.ErbyL. (2012). The role of hope in adaptation to uncertainty: The experience of caregivers of children with Down syndrome. Patient Education and Counseling, 87(2), 233–238. https://doi.org/10.1016/j.pec.2011.08.015
47.
Van RiperM. (2007). Families of children with Down syndrome: Responding to “a change in plans” with resilience. Journal of Pediatric Nursing, 22(2), 116–128. https://doi.org/10.1016/j.pedn.2006.07.004
48.
WoodmanA. C.Hauser-CramP. (2013). The role of coping strategies in predicting change in parenting efficacy and depressive symptoms among mothers of adolescents with developmental disabilities. Journal of Intellectual Disability Research, 57(6), 513–530. https://doi.org/10.1111/j.1365-2788.2012.01555.x
