Informal carers of people with Alzheimer's disease require access to high-quality information, which may be available through the Internet. Tools that have been developed to evaluate the contents of health-related web sites tend to be generic and not specific for diseases or patient groups. The aim of this study was to develop a tool that was specifically designed to evaluate web sites that provide information about Alzheimer's disease for informal carers of people with the disease. The tool was used to evaluate a sample of 15 web sites. The results were compared with those obtained using four generic tools in an earlier study. Several web sites attained high scores using the specific tool, although almost half of the 15 web sites achieved scores of less than 50%. There was a poor correlation between the rankings obtained using the specific tool compared with the generic tool. Web sites generally scored lower using the specific tool compared with one of the generic tools. Further work is required to develop and evaluate the Alzheimer's disease web site evaluation tool to help improve the quality of information available to carers through the Internet.
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References
1.
[1] United Nations, PRB 2000: World Population Data Sheet (2000). Available at: www.prb.org/pubs/wpds2000/wpds2000_Infant_Mortality_Life_Expectancy_At_Birth.html (access date 3 July 2001).
2.
[2] H. Cayton , N. Graham and J. Warner , Alzheimer's at your Fingertips ( Class Publishing, London , 1998).
3.
[3] M. Jee and L. Reason , Who Cares? Information and Support for the Carers of Confused People ( Health Education Council, London , 1997).
4.
[4] P. Micklewood , Caring for Confusion ( Scutari Press, London , 1991).
5.
[5] G.O. Hellawell , K.J. Turner , K.J. Le Monnier and S.F. Brewster , Urology and the Internet: an evaluation of Internet use by urology patients and of information available on urological topics [Clinical Papers] , BJU International86(3) (2000) 191-194 .
6.
[6] P. Gardois , Evaluating the quality of medical information on the Internet: a brief bibliography (2000). Available at: www.icml.org/posters/post28/posters28.htm (access date 16 May 2001).
7.
[7] W.M. Silberg , G.D. Lundberg and R.A. Musacchio , Assessing, controlling and assuring the quality of medical information on the Internet: caveant lector et viewor - let the reader and viewer beware , Journal of the American Medical Association277(15) (1997) 1244-1245 .
8.
[8] K.M. Griffiths and H. Christensen , Quality of web based information on treatment of depression: cross sectional survey , British Medical Journal321 (2000) 1511-1515 .
9.
[9] G. Eysenbach and T. Diepgen , Towards quality management of medical information on the internet: evaluation, labelling, and filtering of information , British Medical Journal317 (1998) 1496-1502 .
10.
[10] M.A. Winker , A. Flanagin , B. Chi-Lum , J. White , K. Andrews , R.L. Kennett , C.D. DeAngelis and R.A. Musacchio , Guidelines for medical and health information sites on the Internet , Journal of the American Medical Association283 (2000) 1600-1606 .
11.
[11] Department of Health , An Information Strategy for the Modern NHS 1998-2005: a National Strategy for Local Implementation (1998). Available at: www.nhsia.nhs.uk/def/pages/info4health/contents.asp (access date 24 August 2001).
12.
[12] Department of Health , Information Strategies: Mental Health and Older People (2000). Available at: www.doh.gov.uk/nhsexipu/strategy/nsf.index.htm (access date 24 August 2001).
13.
[13] M.H. White and S.M. Dorman , Online support for caregivers: analysis of an Internet Alzheimer mailgroup , Computers in Nursing18(4) (2000) 168-179 .
14.
[14] H. Bouchier and P.A. Bath , Evaluation of web sites that provide information on Alzheimer's disease , Health Informatics Journal9(1) (2003) 17-31 .
15.
[15] P. Kim , T.R. Eng , M.J. Deering and A. Maxfield , Published criteria for evaluating health related web sites: review , British Medical Journal318 (1999) 647-649 .
16.
[16] A.R. Jadad and A. Gagliardi , Rating health information on the Internet: navigating to knowledge or to Babel? , Journal of the American Medical Association279(8) (1998) 611-614 .
17.
[17] A. Gagliardi and A.R. Jadad , Examination of instruments used to rate quality of health information on the internet: chronicle of a voyage with an unclear destination , British Medical Journal324 (2002) 569-573 .
18.
[18] G. Wilcock , Living with Alzheimer's Disease and Similar Conditions. A Guide for Families and Carers ( Penguin Books, London , 1999).
19.
[19] P. Micklewood , Caring for Confusion ( Scutari Press, London , 1991).
20.
[20] J. Jones , Development of a self-assessment method for patients to evaluate health information on the Internet . In: AMIA Symposium (1999), pp. 540-544 . Available at: www.amia.org/pubs/symposia/D005629.PDF (access date 28 February 2001).
21.
[21] DISCERN Background, General Instructions and Instrument (1997). Available at: www.discern.org.uk (access date 5 July 2001).
22.
[22] eAccessHealth.org , New Opportunities for Accessing Health Information in the Twin Tiers: Issues and Concerns in Using Medical Information on Evaluating Information (2001). Available at: http://eaccesshealth.org/training/issues.html (access date 9 May 2001).
23.
[23] Health Summit Working Group , Criteria for Assessing the Quality of Health Information on the Internet - Policy Paper (1999). Available at: http://hitiweb.mitretek.org/docs/policy.html (access date 16 May 2001).
24.
[24] Health on the Net Foundation , HON Code of Conduct (HONcode) for medical and health Web sites. Version 1.6 (1997). Available at: www.hon.ch/HONcode/Conduct.html (access date 21 February 2001).
25.
[25] S. Siegel and N.J. Castellan , Nonparametric Statistics for the Behavioral Sciences ( McGraw-Hill, Singapore , 1988).
26.
[26] Alzheimer's Association web site; www.alz.org (access date 6 June 2001).
27.
[27] Alzheimer's Dementia Care and Research (The Alzheimer's Society) web site; www.alzheimers.org.uk (access date 6 June 2001).
28.
[28] Alzheimer's Disease International web site; www.alz.co.uk (access date 6 June 2001).
29.
[29] Alzheimer's Association of Australia web site; www.alzheimers.org.au (access date 6 June 2001).
30.
[30] Alzheimer's Research Foundation web site; www.alzheimers-research.org/ (access date 6 June 2001).
31.
[31] Alzheimer Europe web site; www.alzheimer-europe.org (access date 6 June 2001).
32.
[32] Alzheimer's and Related Disorders Society of India web site; www.alzheimerindia.org (access date 6 June 2001).
33.
[33] Alzheimer Society Canada web site; www.alzheimer.ca (access date 6 June 2001).
34.
[34] L'Unite de Neurologie Comportmentale et Degenerative de Montpellier web site; www.alzheimer-montpellier.org (access date 6 June 2001).
35.
[35] Alzheimer's Association Victoria web site; www.alzforum.org (access date 6 June 2001).
36.
[36] Alzheimer Research Forum web site; www.alzforum.org (access date 6 June 2001).
37.
[37] The Alzheimer's Society: Bassetlaw Branch web site;www.bassetlaw-alzheimers.freeserve.co.uk/ (access date 6 June 2001).
38.
[38] The Alzheimer's Society, Swansea and Lliw Valley Branch web site; www.alzheimers-swansea.freeserve.co.uk (access date 6 June 2001).
39.
[39] Carers (Department of Health) web site; www.carers.gov.uk (access date 6 June 2001).
40.
[40] Family Caregiver Alliance web site; www.caregiver.org (access date 6 June 2001).
41.
[41] P. Impicciatore , C. Pandolfini , N. Casella and M. Bonati , Reliability of health information for the public on the world wide web: systematic survey of advice on managing fever in children at home , British Medical Journal314 (1997) 1875 .
42.
[42] H. Sandvik , Health information and interaction on the internet: a survey of female urinary incontinence , British Medical Journal319 (1999) 29-32 .
