Secondary Caregiving in Alzheimer’s Disease and Related Dementias: A Scoping Review of Their Challenges and Contributions

Abstract

The experiences, roles, key contributions, and support provided by secondary caregivers of people with dementia are underexplored when compared to primary caregivers. This scoping review mapped the existing literature on secondary caregivers. The review followed the PRISMA-ScR framework. Data was subtracted to focus on caregiving outcomes, and on thematic patterns across both qualitative and quantitative designs. Findings from the selected articles (N = 10) indicated that secondary caregivers provide emotional, logistical, and financial support. They also experienced psychological distress, guilt, role conflict, and communication challenges. Family dynamics, gender, and cultural expectations shaped the caregiving experiences and outcomes. The search revealed a scarcity of interventions tailored to this group to enhance overall well-being. Secondary caregivers play a vital role in dementia care. Future interventions that clarify caregiving roles, enhance communication, and provide culturally responsive, family-centered support can strengthen caregiver well-being and promote sustainable caregiving networks.