Does Caregiving Influence Planning for Future Aging?: A Mixed Methods Study Among Caregivers in Canada

Abstract

A mixed method design was used to examine how caregiving and transitioning a family member into long-term care (LTC) influence planning. Participants, aged 50+ from the community, completed self-report questionnaires. Quantitative data evaluated differences between three groups (non-caregivers, caregivers, caregivers with experience in assisting with a LTC transition); and predictive effects of caregiving, care expectations and social support to planning. Interviews among a subsample of caregivers examined how experiences of caregiving, including assisting in a transition to LTC, and social support influenced planning. Results indicated that: (1) caregivers with LTC transition experience planned significantly more than non-caregivers, (2) caregiving, care expectations, and social support significantly predicted of planning, and (3) future care expectation was an important mechanism in the relationship between caregiving and planning. These findings underscore the impact of caregiving experiences on expectations of future care needs and preparation for future care needs, and the importance of social support.

Keywords

caregiving long-term care planning for aging social support expectations of care

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References

Berry

W. D.

(1993). Understanding regression assumptions. Sage university paper series on quantitative applications in the social sciences. Sage.

Black

Reynolds

S. L.

Osman

(2008). Factors associated with advance care planning among older adults in southwest Florida. Journal of Applied Gerontology, 27(1), 93–109.

Boerner

Carr

Moorman

(2013). Family relationships and advance care planning: Do supportive and critical relations encourage or hinder planning? Journals of Gerontology Series B, 68(2), 246–256.

Braun

Clarke

(2013). Successful qualitative research: A practical guide for beginners. Sage.

Broyles

I. H.

Sperber

N. R.

Voils

C. I.

Konetzka

R. T.

Coe

N. B.

Van Houtven

C. H.

(2016). Understanding the context for long-term care planning. Medical Care Research and Review, 73(3), 349–368.

Carr

Moorman

S. M.

Boerner

(2013). End-of-life planning in a family context: Does relationship quality affect whether (and with whom) older adults plan? Journals of Gerontology Series B, 68(4), 586–592.

Clay

O. J.

Roth

D. L.

Wadley

V. G.

Haley

W. E.

(2008). Changes in social support and their impact on psychosocial outcome over a 5-year period for African American and White dementia caregivers. International Journal of Geriatric Psychiatry, 23(8), 857–862.

Cooney

(2012). ‘Finding home’: A grounded theory on how older people ‘find home’ in long-term care settings. International Journal of Older People Nursing, 7(3), 188–199.

Cramer

Tuokko

Evans

(2001). Extending autonomy for health care preferences in late life. Aging, Neuropsychology, and Cognition, 8(3), 213–224.

10.

Field

(2005). Discovering statistics using SPSS. Sage.

11.

Finkelstein

E. S.

Reid

M. C.

Kleppinger

Pillemer

Robison

(2012). Are baby boomers who care for their older parents planning for their own future long-term care needs? Journal of Aging & Social Policy, 24(1), 29–45.

12.

Fowler

Fisher

C. L.

(2009). Attitudes toward decision making and aging, and preparation for future care needs. Health Communication, 24(7), 619–630.

13.

Fowler

Fisher

C. L.

Pitts

M. J.

(2014). Older adults’ evaluations of middle-aged children’s attempts to initiate discussion of care needs. Health Communication, 29(7), 717–727.

14.

Friedman

S. L.

Scholnick

E. K.

(1997). An evolving ‘‘blueprint’’ for planning: Psychological requirements, task characteristics, and social-cultural influences. In Friedman

S. L.

Scholnick

E. K.

(Eds.), The developmental psychology of planning: Why, how, and when do we plan? (pp. 3–22). Erlbaum.

15.

Gallant

M. P.

(2013). Social networks, social support, and health-related behavior. In Martin

L. R.

Dimatteo

and M. R.

(Eds.), The Oxford handbook of health communication, behavior change, and treatment adherence (pp. 305–322). Oxford University Press.

16.

Goodnow

J. J.

(1997). The interpersonal and social aspects of planning. In Friedman

S. L.

Scholnick

E. K.

(Eds.), The developmental psychology of planning: Why, how, and when do we plan? (pp. 339–357). Erlbaum.

17.

Gottlieb

A. S.

Stoeckel

K. J.

Caro

F. G.

(2009). Residential adjustment of elders: Learning from experiences with parents and peers. Journal of Housing for the Elderly, 23(3), 149–165.

18.

Hainstock

Cloutier

Penning

(2017). From home to ‘home’: Mapping the caregiver journey in the transition from home care into residential care. Journal of Aging Studies, 43, 32–39.

19.

Hanson

W. E.

Creswell

J. W.

Plano Clark

V. L.

Petska

K. S.

Creswell

J. D.

(2005). Mixed methods research designs in counseling psychology. Journal of Counseling Psychology, 52(2), 224–235.

20.

Hayes

A. F.

(2017). Introduction to mediation, moderation, and conditional process analysis: A regression-based approach (2nd ed.). The Guilford Press.

21.

Henning-Smith

C. E.

Shippee

T. P.

(2015). Expectations about future use of long-term services and supports vary by current living arrangement. Health Affairs, 34(1), 39–47.

22.

Hermus

Stronbridge

Edenhoffer

(2015). Future care for Canadian seniors: A status quo forecast. Conference Board of Canada.

23.

Hershfield

H. E.

(2011). Future self-continuity: How conceptions of the future self transform intertemporal choice. Annals of the New York Academy of Sciences, 1235, 30–43.

24.

Holt-Lunstad

Smith

T. B.

Baker

Harris

Stephenson

(2015). Loneliness and social isolation as risk factors for mortality: A meta-analytic review. Perspectives on Psychological Science, 10(2), 227–237.

25.

Löckenhoff

C. E.

Carstensen

L. L.

(2004). Socioemotional selectivity theory, aging, and health: The increasingly delicate balance between regulating emotions and making tough choices. Journal of Personality, 72(6), 1395–1424.

26.

McDonnell

Ryan

(2013). Male caregiving in dementia: A review commentary. Dementia, 12(2), 238–250.

27.

McGrew

(2000). Impossible selves? Challenges and strategies for encouraging individual long-term care planning. Scripps Gerontology Center: Miami University.

28.

Ory

M. G.

Hoffman

R. R.

III Yee

J. L.

Tennstedt

Schulz

(1999). Prevalence and impact of caregiving: A detailed comparison between dementia and nondementia caregivers. The Gerontologist, 39(2), 177–186.

29.

Pharr

J. R.

Dodge Francis

Terry

Clark

M. C.

(2014). Culture, caregiving, and health: Exploring the influence of culture on family caregiver experiences. ISRN Public Health, 2014, 1–8.

30.

Pinquart

Sörensen

Peak

(2005). Helping older adults and their families develop and implement care plans. Journal of Gerontological Social Work, 43(4), 3–23.

31.

Prenda

K. M.

Lachman

M. E.

(2001). Planning for the future: A life management strategy for increasing control and life satisfaction in adulthood. Psychology and Aging, 16(2), 206–216.

32.

Roberto

Blieszner

(2015). Diverse family structures and the care of older persons. Canadian Journal on Aging, 34(3), 305–320.

33.

Robison

Shugrue

Fortinsky

R. H.

Gruman

(2014). Long-term supports and services planning for the future: Implications from a statewide survey of baby boomers and older adults. The Gerontologist, 54(2), 297–313.

34.

Roth

D. L.

Fredman

Haley

W. E.

(2015). Informal caregiving and its impact on health: A reappraisal from population-based studies. The Gerontologist, 55(2), 309–319.

35.

Rothman

K. J.

(1990). No adjustments are needed for multiple comparisons. Epidemiology, 1(1), 43–46.

36.

Schulz

Belle

S. H.

Czaja

S. J.

McGinnis

K. A.

Stevens

Zhang

(2004). Long-term care placement of dementia patients and caregiver health and well-being. Jama, 292(8), 961–967.

37.

Song

Sörensen

Yan

E. C.

(2018). Family support and preparation for future care needs among Urban Chinese baby Boomers. Journals of Gerontology Series B, 73(6), 1066–1076.

38.

Sörensen

Chapman

B. P.

Duberstein

P. R.

Pinquart

Lyness

J. M.

(2017). Assessing future care preparation in late life: Two short measures. Psychological Assessment, 29(12), 1480–1495.

39.

Sörensen

Hirsch

J. K.

Lyness

J. M.

(2014). Optimism and planning for future care needs among older adults. GeroPsych, 27(1), 5–22.

40.

Sörensen

Mak

Chapman

Duberstein

P. R.

Lyness

J. M.

(2012). The relationship of preparation for future care to depression and anxiety in older primary care patients at 2-year follow-up. The American Journal of Geriatric Psychiatry, 20(10), 887–894.

41.

Sörensen

Pinquart

(2000). Preparation for future care needs by West and East German older adults. The Journals of Gerontology Series B, 55(6), S357–S367.

42.

Statistics Canada. (2017). Census in Brief: A portrait of the population aged 85 and older in 2016 in Canada. http://www12.statcan.gc.ca/census-recensement/2016/as-sa/98-200-x/2016004/98-200-x2016004-eng.pdf

43.

Sörensen

Pinquart

. (2001). Developing a measure of older adults’ preparation for future care needs. International Journal of Aging and Human Development, 53(2), 137–156.

44.

Thoits

P. A.

(2011). Mechanisms linking social ties and support to physical and mental health. Journal of Health and Social Behavior, 52(2), 145–161.

45.

Tompson

Benz

Agiesta

Junius

Nguyen

Lowell

(2013). Long-term care: Perceptions, experiences, and attitudes among Americans 40 or older. Chicago, IL: The Associated Press-NORC Center for Public Affairs Research. http://www.apnorc.org/projects/Pages/long-term-care-perceptions-experiences-and-attitudes-among-americans-40-or-older.aspx

46.

Turcotte

Sawaya

(2015). Senior care: Differences in type of housing. http://www.statcangc.ca/pub/75-006-x/2015001/article/14142-eng.htm

47.

Umberson

Karas Montez

(2010). Social relationships and health: A flashpoint for health policy. Journal of Health and Social Behavior, 51(1_suppl), S54–S66.

48.

Valaitis

R. K.

Carter

Lam

Nicholl

Feather

Cleghorn

(2017). Implementation and maintenance of patient navigation programs linking primary care with community-based health and social services: A scoping literature review. BMC Health Services Research, 17(1), 116.

49.

Vick

J. B.

Ornstein

K. A.

Szanton

S. L.

S. M.

Wolff

J. L.

(2019). Does caregiving strain increase as patients with and without dementia approach the end of life? Journal of Pain and Symptom Management, 57(2), 199–208.

50.

Wakefield

M. A.

Loken

Hornik

R. C.

(2010). Use of mass media campaigns to change health behaviour. The Lancet, 376(9748), 1261–1271.

51.

Zimet

G. D.

Dahlem

N. W.

Zimet

S. G.

Farley

G. K.

(1988). The multidimensional scale of perceived social support. Journal of Personality Assessment, 52(1), 30–34.

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