Little is known about the validity of self-reported completion of diagnostic testing after an abnormal breast cancer screening test. This study assesses the validity of self-reported diagnostic follow-up among 819 low-income, mostly Latina, indigent women with a breast abnormality at two public hospitals in Los Angeles County. Survey responses on receipt of a mammogram, ultrasound, fine needle aspiration, surgical biopsy, or clinical breast exam for diagnostic evaluation of the breast abnormality were compared to medical record data. The authors calculated concordance, Cohen’s κ statistic, and sensitivity and specificity. Kappa values indicated slight agreement for mammogram, ultrasound, and clinical breast exam, and moderate agreement for fine needle aspiration and surgical biopsy. Sensitivity of self-reports was high for all tests; specificity was poor for all tests except surgical biopsy. Self-reports of receipt of diagnostic testing for a breast abnormality among low-income, mostly Latina, indigent women are not accurate when compared to medical records.
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