This article draws attention to the production and circulation of genetic knowledge
among three constituencies—laboratory researchers, clinicians, and health advocates—
all of whom have a stake in research on a heritable connective tissue condition known
as Marfan syndrome. National and international conferences provide a context that
brings members of these groups together. Such meetings are performance settings, which
include the display of visual images depicting various aspects of Marfan syndrome and
of the bodies and lived experience of those who have it. The article examines how these
images are interpreted, appropriated, and exchanged and how their circulation is both
grounded in local knowledge and the grounds for transformative translocal practice.
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