Internet Communities

Abstract

The purpose of this study was to establish and evaluate a Web-based educational and emotional resource for patients with diabetes and their family members. Activity and characteristics of 331 953 user visits were tracked over 74 months, including a survey of user satisfaction. A 2004 survey showed that users were from 37 different countries, with most from the United States (87%) and Canada (4%). The average length of use was 16:44 minutes. Respondents (n = 791) to the satisfaction survey were 71% female, 46% were insulin users, 84% were aged >30 years, 34% had diabetes >10 years, and 39% visited more than 3 times. A total of 74% of all respondents rated participation in the discussion board as having a positive effect on coping with diabetes, and 71% rated participation as helping them to feel more hopeful. A professionally moderated Internet discussion group appears to be a useful strategy for engaging patients with diabetes and increasing perceived ability to cope with diabetes.

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References

Van der Ven N

. Psychosocial group interventions in diabetes care. Diabetes Spectrum. 2003;16:88-95.

Wituk S

Shepherd MD

Slavich S

Warren M

Meissen G

. Topography of self-help groups: an empirical analysis. Soc Work. 2000;45:157-165.

Harris Interactive

. Cyberchondriacs update. Available at: http://www.harrisinteractive.com/harris_poll/index.asp?PID=299. Accessed August 2005.

Charlton Research

. Taking charge of our own health. Available at: http://www.researchamerica.org/polldata/parade2004.html. Accessed August 2005.

Davison KP

Pennebaker JW

Dickerson SS

. Who talks? Social psychology of illness support groups. Am Psychol. 2000;55:205-217.

Pew Internet & American Life Project

. Internet health resources. Available at: http://www.pewinternet.org/report_display.asp?r=95. Accessed August 2005.

Eysenbach G

Powell J

Englesakis M

Rizo C

Stern A

. Health related virtual communities and electronic support groups: systematic review of the effects of online peer to peer interactions. BMJ. 2004;328:1166-1170.

Kraut R

Patterson M

Lundmark V

Kiesler S

Mukopadhyay T

Scherlis S

. Internet paradox: a social technology that reduces social involvement and psychological well-being. Am Psychol. 1998;53:1017-1031.

Zrebiec JF

Jacobson, AM

. What attracts patients with diabetes to an Internet support group? A 21 month longitudinal Website study. Diabetic Med. 2001;18:154-158.

10.

McKay HG

Feil EG

Glasgow RE

Brown JE

. Feasibility and use of an Internet support service for diabetes self-management. Diabetes Educ.1998;24:174-179.

11.

Barrera M

Glasgow R

McKay HG

Boles SM

Feil EG

. Do Internet-based support interventions change perceptions of social support? An experimental trial of approaches for supporting diabetes self-management. Am J Community Psychol. 2002;30:736-754.

12.

Houston TK

Cooper LA

Ford DE

. Internet support groups for depression: a 1-year prospective cohort study. Am J Psychiatry. 2002;159:2062-2068.

13.

Click Stats Healthcare

. Net attracts health-seeking surfers. Available at: http://www.clickz.com/stats/markets/healthcare/article.php/3339561. Accessed August 2005.

14.

Haugh R

. The new consumer. Hosp Health Netw.1999;73:30-36.

15.

Bedell SE

Agrawal A

Petersen LE

. Systematic critique of diabetes on the World Wide Web for patients and their physicians. Int J Med Inform.2004;73:687-694.