This article presents information that members of a multidisciplinary team of professionals and parents require to meet the emotional and educational needs of visually impaired children with progressive, terminal neurodegenerative disorders and to support each other emotionally.
Get full access to this article
View all access options for this article.
References
1.
BehrmanRichard E., & VaughanVictor CIII (1983). Nelson Textbook of Pediatrics. (12th ed.). Philadelphia: W.B. Saunders Company.
2.
Coen de JongG.A. (1988). Children in a dementia process: The emotional aspects. Unpublished manuscript, Bartimeus Foundationthe Netherlands.
3.
EasonW.M. (1970). The dying child: The management of the child or adolescent who is dying.Springfield, IL: Charles C Thomas.
4.
HofmanI. (1990). The Batten-Speilmeyer-Vogt disease.The Netherlands: Bartimeus Foundation.
5.
Kübler-RossE. (1969). On death and dying.New York: Macmillan.
6.
LouH.C., & KristensenY. (1973). A clinical investigation into juvenile amaurotic idiocy in Denmark. Developmental Medicine in Child Neurology, 15, 313–323.
7.
RiderJ.A., & RiderD.L. (1987). Batten disease. Advances in the Biosciences, 64, 217–225.
8.
RiderJ.A., & RiderD.L. (1988). Batten disease: Past, present, and future. American Journal of Medical Genetics, 5(Suppl.) 21–26.
