This article explored the experiences of eight persons with albinism in
Puerto Rico in their quest for educational, social, and employment
opportunities.
Methods
Volunteers participated in structured interviews that yielded the information
presented in this article.
Results
Four main areas were identified that best described the stories of these
participants: knowledge of and attitudes toward albinism, resilience and
other supports, the challenges of albinism, and current needs.
Discussion
It is clear from the participants' stories that physical attributes are still
a prime factor in determining a variety of interactions for persons with
albinism, many with potential effects on quality of life.
Implications for practitioners
This article contributes to the literature documenting psychosocial aspects
of the albinism condition. It provides evidence that environmental barriers
and attitudes generally affect interactions with persons with albinism,
knowledge that can be used by professionals who work with individuals with
albinism.
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