The role of the general practitioner in cystic fibrosis

Eiser C. , Zoritch B. , Hiller J. , Havermans T. , Billig S. Routine stresses in caring for a child with cystic fibrosis. J Psychosom Res 1995; 39: 641–6.

Frydman M.I. Patterns of management responsibility in the care of children with cystic fibrosis and leukaemia. Aust Paediatr J 1981; 17: 35–9.

Eigen H. , Clark N.M. , Wolle J.M. Clinical—behavioral aspects of cystic fibrosis: directions for future research. Am Rev Respir Dis 1987; 136: 1509–13.

Stein R.E.K. , Jessop D.J. , Riessman C.K. Health care services received by children with chronic illness. Am J Dis Child 1983; 137: 225–30.

Royal College of Physicians. Cystic Fibrosis in Adults: Recommendations for Care of Patients in the United Kingdom. London: Royal College of Physicians, 1990.

Clinical Standards Advisory Group. Cystic Fibrosis: Access to and Availability of Specialist Services. London: HMSO, 1993.

FitzSimmons S.C. The changing epidemiology of cystic fibrosis. J Pediatr 1993; 122: 1–9.

Elborn J.S. , Shale D.J. , Britton J.R. Cystic fibrosis: current survival and population estimates to the year 2000. Thorax 1991; 46: 881–5.

Dodge J.A. , Morison S. , Lewis P.A. The incidence, population, and survival, of cystic fibrosis in the UK, 1968–95. Arch Dis Child 1997; 77: 493–6.

Nielson O.H. , Schiotz P.O. Cystic fibrosis in Denmark in the period 1945–81: evaluation of centralised treatment. Acta Paediatr Scand 1982; 301(Suppl.): 107–19.

Phelan D. Improved survival of children with cystic fibrosis. Med J Aust 1979; 1: 261–3.

David T.J. The case for cystic fibrosis centres. J R Soc Med 1987; 80(Suppl. 15): 51–4.

Hjortdahl P. Continuity of care: general practitioners' knowledge about, and sense of responsibility toward their patients. Family Practice 1992; 9: 3–8.

Royal College of General Practitioners. Information Sheet No 2. Profile of UK Practices. London: Royal College of General Practitioners, 1997.

Walters S. , Britton J. , Hodson M.E. Hospital care for adults with cystic fibrosis: an overview and comparison between CF clinics and general clinics using a patient questionnaire. Thorax 1994; 49: 300–6.

Walters S. What do adults with cystic fibrosis like and dislike about the medical care they receive in the UK? Thorax 1997; 52(Suppl. 6): 153 [abstract].

Abbott J. , Dodd M. , Webb A.K. Different perceptions of disease severity and self care between patients with cystic fibrosis, their close companions, and physician. Thorax 1995; 50: 794–6.

Pless I.B. The challenge of chronic illness. Am J Dis Child 1973; 126: 741–2.

Pless I.B. , Roghmann K.J. Chronic illness and its consequences: observations based on three epidemiologic surveys. J Pediatr 1971; 79: 351–9.

Kanthor H. , Pless B. , Satterwhite B. , Myers G. Areas of responsibility in the health care of multiply handicapped children. Pediatrics 1974; 54: 779–85.

Pless I.B. , Satterwhite B. , Van Vechten D. Division, duplication and neglect: patterns of care for children with chronic disorders. Child Care Health Dev 1978; 4: 9–19.

Pless I.B. , Satterwhite B. , Van Vechten D. Chronic illness in childhood: a regional survey of care. Pediatrics 1976; 58: 37–46.

Hennen B.K. Continuity of care in family practice. Part 1: Dimensions of continuity. J Fam Pract 1975; 2: 371–2.

Harris H. , Scotcher D. , Hartley N. , Wallace A. , Craufurd D. , Harris R. Cystic fibrosis carrier testing in early pregnancy by general practitioners. BMJ 1993; 306: 1580–3.

Harris H. , Scotcher D. , Hartley N. , Wallace A. , Craufurd D. , Harris R. Pilot study of the acceptability of cystic fibrosis carrier testing during routine antenatal consultations in general practice. Br J Gen Pract 1996; 46: 225–7.

Boulton M. , Cummings C. , Williamson R. The views of general practitioners on community carrier screening for cystic fibrosis. Br J Gen Pract 1996; 46: 299–301.