Despite the importance of community-based palliative care in South Africa, there is little research on the experiences of formal caregivers in low-income settings, and the contextual challenges they encounter in providing caregiving services. We investigated the ways in which contextual factors affect formal caregivers' experiences of caregiving in a community-based environment. Eleven individual interviews were conducted with participants from a community-based palliative care organisation in Gauteng. The data were considered from an interpretive phenomenological perspective and content analysed into themes that converged around the contextual influences on caregiving experiences. The themes provided insight into how caregivers construct their role in relation to the community they serve, the ways in which stigma and poverty affect their role, and their perceptions of the importance of knowledge within caregiving. The findings suggest that contextual factors are an integral and neglected component of understanding the experience of caregiving.
BaileyC. (2007). A guide to qualitative field research (2nd ed.). Thousand Oaks, CA: Sage
2.
BeckS. (1999). Health policy, health services, and cancer pain management in the new South Africa. Journal of Pain and Symptom Management, 17, 16–26
3.
BraunV.ClarkeV. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3, 77–101
4.
ButcherH.BuckwalterK. (2002). Exasperations as blessings: Meaning-making and the caregiving experience. Journal of Aging & Identity, 7, 113–131
5.
DaviesC. (1995). Competence versus care? Gender and caring work revisited. Acta Sociologica, 38, 17–31
6.
DavisM.HallJ.MeyerM. (2003). The first year: Influences on the satisfaction, involvement, and persistence of new community volunteers. Personality & Social Psychology Bulletin, 29, 248–260
7.
DemmerC. (2007). AIDS and palliative care in South Africa. American Journal of Hospice & Palliative Medicine, 24, 7–12
8.
DenzinN.K.LincolnY.S. (1998). Introduction: Entering the field of qualitative research. In DenzinN.LincolnY. (Eds.), Collecting and interpreting qualitative materials (pp. 1–34). London, UK: Sage
9.
EatoughV.SmithJ. (2008). Interpretative phenomenological analysis. In WilligC.Stainton-RogersW. (Eds.), The Sage handbook of qualitative research in psychology, 3rd ed. (pp. 179–194). London, UK: Sage
10.
FrankJ. (2008). Evidence for grief as a major barrier faced by Alzheimer caregivers: A qualitative analysis. American Journal of Alzheimer's Disease & Other Dementias, 22, 516–527
11.
FreemanM.RamanathanS.AitkenA.DunnP.AirdJ. (1998). Rural palliative care volunteer education and support program. Australian Journal of Rural Health, 6, 150–155
12.
HerbertR.S.ArnoldR.M.SchulzR. (2007). Improving well-being in caregivers of terminally ill patients. Making the case for patient suffering as a focus for intervention research. Journal of Pain and Symptom Management, 34, 539–546
13.
HoyertD.SeltzerM. (1992). Factors related to the well-being and life activities of family caregivers. Family Relations, 41, 74–81
14.
KanyaneM. (2008). Conceptualising local economic development as a community engagement strategy for poverty alleviation. Journal of Public Administration, 43, 698–707
15.
KulikL. (2006). Burnout among volunteers in the social services: The impact of gender and employment status. Journal of Community Psychology, 34, 541–561
16.
LatimierE.J.DawsonH. (1993). Palliative care: Principles and practice. Canadian Medical Association Journal, 148, 933–934
17.
LarkinM.WattsS.CliftonE. (2006). Giving voice and making sense of phenomenological analysis. Qualitative Research in Psychology, 3, 102–120
18.
LeiraA. (1994). Concepts of caring: Loving, thinking, and doing. The Social Service Review, 68, 185–201
19.
MillerB.McFallS. (1991). The effect of caregiver's burden on change in frail older persons' use of formal helpers. Journal of Health & Social Behaviour, 32, 165–179
20.
PearlinL.AneshenselC. (1994). Caregiving: The unexpected career. Social Justice Research, 7, 373–390
21.
RoweJ. (2003). The suffering of the healer. Nursing Forum, 38, 16–20
22.
SwartL.SeedatM.SaderF. (2004). Community volunteerism in safety promotion and implications for sustained participation. African Safety Promotion Journal, 2, 1–15
23.
BlancheTerre M.KellyK. (1999). Interpretive methods. In BlancheTerre M.DurrheimK. (Eds.), Research in practice (pp. 123–146). Cape Town, RSA: University of Cape Town Press
24.
TrickettE. (2002). Context, culture, and colloboration in AIDS interventions: Ecological ideas for enhancing community impact. The Journal of Primary Prevention, 23, 157–174
25.
UrenS.A. (2010). An investigation into the emotional experiences of caregiving. Unpublished Masters Research Report, University of the Witwatersrand, Johannesburg, South Africa
26.
UysL. (2003). Aspects of the care of people with HIV/Aids in South Africa. Public Health Nursing, 20, 271–280
27.
VisserM. (2007). The social ecological model as theoretical framework in community psychology. In DuncanN.BowmanB.NaidooA.PillayJ.RoosV. (Eds.), Community psychology: Analysis, context and action (pp. 102–116). Cape Town, RSA: UCT Press
28.
WhiteJ.MortonJ. (2005). Mitigating impacts of HIV/Aids on rural livelihoods: NGO experiences of sub-Saharan Africa. Development in Practice, 15, 186–200
29.
WhitleyB. E. (2002). Principles of Research in Behavioral Science (2nd ed.). New York: McGraw-Hill
