Parental Caregiving Burden,Depression,Social Support,and Life Satisfaction: A Multigroup Analysis of Social Support for Parents of Young Children with Brain Lesions
Restricted accessResearch articleFirst published online April, 2022
Parental Caregiving Burden,Depression,Social Support,and Life Satisfaction: A Multigroup Analysis of Social Support for Parents of Young Children with Brain Lesions
The term social support refers to people’s interpersonal relationships and is a potentially powerful mediator for caregivers’ life satisfaction. This study examined the relationships between parental caregiver burden, depression, social support, and life satisfaction. It compared these relation variables between parents of preschool- and school-age children, as mediator effects of social support may differ across age ranges. Data were used from the Ministry of Health and Welfare of Korea’s research on support services and policies for people with brain lesions. Parental caregivers of preschool- (n = 93) and school-age (n = 91) children participated in this study. A multigroup analysis indicated a significant negative relationship between caregiving burden and depression with social support and parental life satisfaction and a significant positive relation for social support with life satisfaction for the overall group, preschool- and school age. Social support was a mediator for each group; however, the regression weight differed between preschool- and school-age children’s parents. The study confirms the importance of caregivers’ social support and suggests a need for family support strategies that account for children’s ages.
AgrellB.DehlinO. (1989). Comparison of six depression rating scales in geriatric stroke patients. Stroke, 20(9), 1190–1194.
2.
AitkenM. E.McCarthyM. L.SlomineB. S.DingR.DurbinD. R.JaffeK. M.. . . MacKenzieE. J. (2009). Family burden after traumatic brain injury in children. Pediatrics, 123(1), 199–206.
3.
AjrouchK. J.ReisineS.LimS.SohnW.IsmailA. (2010). Perceived everyday discrimination and psychological distress: Does social support matter?Ethnicity & Health, 15(4), 417–434.
4.
ArmstrongM. I.Birnie-LefcovitchS.UngarM. T. (2005). Pathways between social support, family well-being, quality of parenting, and child resilience: What we know. Journal of Child and Family Studies, 14(2), 269–281.
5.
Baker-EriczénM. J.Brookman-FrazeeL.StahmerA. (2005). Stress levels and adaptability in parents of toddlers with and without autism spectrum disorders. Research and Practice for Persons With Severe Disabilities, 30(4), 194–204.
6.
BanksM. E. (2003). Disability in the family: A life span perspective. Cultural Diversity and Ethnic Minority Psychology, 9(4), 367–384.
7.
BasaranA.KaradavutK. I.UneriS. O.BalbalogluO.AtasoyN. (2013). The effect of having a children with cerebral palsy on quality of life, burn-out, depression and anxiety scores: A comparative study. European Journal of Physical Rehabilitation Medicine, 49(6), 815–822.
8.
BentlerP. M.ChouC.-P. (1987). Practical issues in structural equation modeling. Sociological Methods and Research, 16, 78–117.
9.
BesierT.BornA.HenrichG.HinzA.QuittnerA. L.GoldbeckL., & TIDES Study Group. (2011). Anxiety, depression, and life satisfaction in parents caring for children with cystic fibrosis. Pediatric Pulmonology, 46(7), 672–682.
10.
BlacherJ.LopezS.ShapiroJ.FuscoJ. (1997). Contributions to depression in Latina mothers with and without children with retardation: Implications for caregiving. Family Relations, 46(4), 325–334.
11.
BottosM.FeliciangeliA.SciutoL.GerickeC.VianelloA. (2001). Functional status of adults with cerebral palsy and implications for treatment of children. Developmental Medicine and Child Neurology, 43(8), 516–528.
12.
BrehautJ. C.KohenD. E.GarnerR. E.MillerA. R.LachL. M.KlassenA. F.RosenbaumP. L. (2009). Health among caregivers of children with health problems: Findings from a Canadian population-based study. American Journal of Public Health, 99(7), 1254–1262.
13.
BrehautJ. C.KohenD. E.RainaP.WalterS. D.RussellD. J.SwintonM.. . . RosenbaumP. (2004). The health of primary caregivers of children with cerebral palsy: How does it compare with that of other Canadian caregivers?Pediatrics, 114(2), e182–e191.
14.
BreslauN.StaruchK. S.MortimerE. A. (1982). Psychological distress in mothers of disabled children. American Journal of Diseases of Children, 136(8), 682–686.
15.
BrownH. K.Ouellette-KuntzH.HunterD.KelleyE.CobigoV. (2012). Unmet needs of families of school-aged children with an autism spectrum disorder. Journal of Applied Research in Intellectual Disabilities, 25(6), 497–508.
16.
BurgenerS.TwiggP. (2002). Relationships among caregiver factors and quality of life in care recipients with irreversible dementia. Alzheimer Disease & Associated Disorders, 16(2), 88–102.
17.
ChanJ. B.SigafoosJ. (2001). Does respite care reduce parental stress in families with developmentally disabled children?Child and Youth Care Forum, 30, 253–263.
18.
ChoiH. S. (1999). A study on the predictors of vocational rehabilitation outcome for persons with schizophrenia [Doctoral dissertation]. Seoul Women’s University.
19.
CohenS. (2004). Social relationships and health. American Psychologist, 59(8), 676–684.
20.
CohenS.McKayG. (1984). Social support, stress and the buffering hypothesis: A theoretical analysis. In BaumA.SingerJ. E.TaylorS. E. (Eds.), Handbook of psychology and health (Vol. 4, pp. 253–267). Lawrence Erlbaum.
21.
DabrowskaA.PisulaE. (2010). Parenting stress and coping styles in mothers and fathers of pre-school children with autism and Down syndrome. Journal of Intellectual Disability Research, 54(3), 266–280.
22.
DaigI.HerschbachP.LehmannA.KnollN.DeckerO. (2009). Gender and age differences in domain-specific life satisfaction and the impact of depressive and anxiety symptoms: A general population survey from Germany. Quality of Life Research, 18(6), 669–678.
23.
DavisE.ShellyA.WatersE.BoydR.CookK.DavernM. (2010). The impact of caring for a child with cerebral palsy: Quality of life for mothers and fathers. Child: Care, Health and Development, 36(1), 63–73.
DoddD. C.ZabriskieR. B.WidmerM. A.EggettD. (2009). Contributions of family leisure to family functioning among families that include children with developmental disabilities. Journal of Leisure Research, 41(2), 261–286.
26.
DumasJ. E.WolfL. C.FismanS. N.CulliganA. (1991). Parenting stress, child behavior problems, and dysphoria in parents of children with autism, Down syndrome, behavior disorders, and normal development. Exceptionality: A Special Education Journal, 2(2), 97–110.
27.
EssexE. L.SeltzerM. M.KraussM. W. (1999). Differences in coping effectiveness and well-being among aging mothers and fathers of adults with mental retardation. American Journal on Mental Retardation, 104(6), 545–563.
28.
FarajzadehA.MaroufizadehS.AminiM. (2020). Factors associated with quality of life among mothers of children with cerebral palsy. International Journal of Nursing Practice, 26(3), Article e12811.
29.
FismanS. N.WolfL. C.NohS. (1989). Marital intimacy in parents of exceptional children. The Canadian Journal of Psychiatry, 34(6), 519–525.
30.
FlorianV.FindlerL. (2001). Mental health and marital adaptation among mothers of children with cerebral palsy. American Journal of Orthopsychiatry, 71(3), 358–367.
31.
GallagherJ. J.BeckmanP.CrossA. H. (1983). Families of handicapped children: Sources of stress and its amelioration. Exceptional Children, 50(1), 10–19.
32.
GellisZ. D. (2010). Assessment of a brief CES-D measure for depression in homebound medically ill older adults. Journal of Gerontological Social Work, 53(4), 289–303.
33.
HaleyW. E.LaMondeL. A.HanB.BurtonA. M.SchonwetterR. (2003). Predictors of depression and life satisfaction among spousal caregivers in hospice: Application of a stress process model. Journal of Palliative Medicine, 6(2), 215–224.
34.
HannD.WinterK.JacobsenP. (1999). Measurement of depressive symptoms in cancer patients: Evaluation of the Center for Epidemiological Studies Depression Scale (CES-D). Journal of Psychosomatic Research, 46(5), 437–443.
35.
HarrisV. S.McHaleS. M. (1989). Family life problems, daily caregiving activities, and the psychological well-being of mothers of mentally retarded children. American Journal on Mental Retardation, 94(3), 231–239.
36.
HastingsR. P.KovshoffH.BrownT.WardN. J.EspinosaF. D.RemingtonB. (2005). Coping strategies in mothers and fathers of preschool and school-age children with autism. Autism, 9(4), 377–391.
37.
HastingsR. P.TauntH. M. (2002). Positive perceptions in families of children with developmental disabilities. American Journal on Mental Retardation, 107(2), 116–127.
38.
HawleyC. A.WardA. B.MagnayA. R.LongJ. (2003). Parental stress and burden following traumatic brain injury amongst children and adolescents. Brain Injury, 17(1), 1–23.
39.
HoeM. S.ParkB. S. (2015). Testing measurement invariance of the 11-item Korean version CES-D scale. Mental Health Social Work, 43(2), 313–339.
40.
HongS.MalikM. L.LeeM.-K. (2003). Testing configural, metric, scalar, and latent mean invariance across genders in sociotropy and autonomy using a non-Western sample. Educational and Psychological Measurement, 63(4), 636–654.
41.
HuL. T.BentlerP. M. (1999). Cutoff criteria for fit indexes in covariance structure analysis: Conventional criteria versus new alternatives. Structural Equation Modeling: A Multidisciplinary Journal, 6(1), 1–55.
42.
JeonJ. A.LeeN. H. (2015). Depression, its concurrent chronic illnesses, and related health service use in the Korea welfare panel data. Welfare Forum, 219, 75–84.
43.
JobsonJ. (1991). Multiple linear regression. In JobsonJ. (Ed.), Applied multivariate data analysis (pp. 219–398). Springer.
44.
KetelaarM.VolmanM.GorterJ.VermeerA. (2008). Stress in parents of children with cerebral palsy: What sources of stress are we talking about?Child: Care, Health and Development, 34(6), 825–829.
45.
KlineR. (2005). Methodology in the social sciences: Principles and practice of structural equation modeling (2nd ed.). Guilford Press.
46.
KrakovichT. M.McGrewJ. H.YuY.RubleL. A. (2016). Stress in parents of children with autism spectrum disorder: An exploration of demands and resources. Journal of Autism and Developmental Disorders, 46(6), 2042–2053.
47.
KratzA. L.SanderA. M.BrickellT. A.LangeR. T.CarlozziN. E. (2017). Traumatic brain injury caregivers: A qualitative analysis of spouse and parent perspectives on quality of life. Neuropsychological Rehabilitation, 27(1), 16–37.
48.
LeeH. J. (2013). The perceived stress and life-satisfaction among mothers of children with disability with focus on the cerebral palsy. Journal of Korean Physical Therapy Science, 20(1), 77–88.
49.
LeeH. J.EoY. S. (2000). A study on family functioning and burden of parents with cerebral palsy children. Korean Journal of Child Health Nursing, 6(2), 199–211.
50.
LeeJ. W. (2000). Quality of life of mothers with cerebral palsy children and influencing factors. Journal of the Korean Society of Maternal and Child Health, 4(1), 47–54.
51.
LeeM. H. (2015). A discussion of needs and difficulties felt by families and children with severe brain lesions: Focusing on mothers and specialists. The Korean Journal of Early Childhood Special Education, 15(2), 257–281.
52.
LeeM. H.MatthewsA. K.ParkC. (2019). Determinants of health-related quality of life among mothers of children with cerebral palsy. Journal of Pediatric Nursing, 44, 1–8.
53.
LehmannV.MakineC.KarşıdağÇ.KadıoğluP.KarşıdağK.PouwerF. (2011). Validation of the Turkish version of the Centre for Epidemiologic Studies Depression Scale (CES-D) in patients with type 2 diabetes mellitus. BMC Medical Research Methodology, 11(1), Article 109.
54.
LuM.YangG.SkoraE.WangG.CaiY.SunQ.LiW. (2015). Self-esteem, social support, and life satisfaction in Chinese parents of children with autism spectrum disorder. Research in Autism Spectrum Disorders, 17, 70–77.
55.
MaciasM. M.SaylorC. F.RoweB. P.BellN. L. (2003). Age-related parenting stress differences in mothers of children with spina bifida. Psychological Reports, 93(Suppl. 3), 1223–1232.
56.
MeyersJ. L.GrayL. N. (2001). The relationships between family primary caregiver characteristics and satisfaction with hospice care, quality of life, and burden. Oncology Nursing Forum, 28(1), 73–82.
57.
MugnoD.RutaL.D’ArrigoV. G.MazzoneL. (2007). Impairment of quality of life in parents of children and adolescents with pervasive developmental disorder. Health and Quality of Life Outcomes, 5(1), 22.
58.
MurphyN. A.ChristianB.CaplinD. A.YoungP. C. (2007). The health of caregivers for children with disabilities: Caregiver perspectives. Child: Care, Health and Development, 33(2), 180–187.
59.
NamS. J.ParkE. Y. (2017). Relationship between caregiving burden and depression in caregivers of individuals with intellectual disabilities in Korea. Journal of Mental Health, 26(1), 50–56.
60.
NeeceC. L.GreenS. A.BakerB. L. (2012). Parenting stress and child behavior problems: A transactional relationship across time. American Journal on Intellectual and Developmental Disabilities, 117(1), 48–66.
61.
NovakM.GuestC. (1989). Application of a multidimensional caregiver burden inventory. The Gerontologist, 29(6), 798–803.
62.
OelofsenN.RichardsonP. (2006). Sense of coherence and parenting stress in mothers and fathers of preschool children with developmental disability. Journal of Intellectual and Developmental Disability, 31(1), 1–12.
63.
OhH.LeeE. K. O. (2009). Caregiver burden and social support among mothers raising children with developmental disabilities in South Korea. International Journal of Disability, Development and Education, 56(2), 149–167.
64.
OlssonM. B.HwangC. (2001). Depression in mothers and fathers of children with intellectual disability. Journal of Intellectual Disability Research, 45(6), 535–543.
65.
ParkE. Y. (2019). The characteristics of social support and its relationship with depression in mothers of children with cerebral palsy. Korean Journal of Special Education, 53(4), 59–81.
66.
ParkE. Y.KimJ. H. (2019). Depression and life satisfaction among parents caring for individuals with developmental disabilities in South Korea. Journal of Developmental and Physical Disabilities, 31(4), 453–469.
67.
ParkH. C.ParkE. Y.ParkS. Y.NohS. H. (2015). Service delivery status and policy support directions for people with brain lesions. Ministry of Health and Welfare.
68.
PattonK. A.WareR.McPhersonL.EmersonE.LennoxN. (2018). Parent-related stress of male and female carers of adolescents with intellectual disabilities and carers of children within the general population: A cross-sectional comparison. Journal of Applied Research in Intellectual Disabilities, 31(1), 51–61.
69.
PerleszA.KinsellaG.CroweS. (1999). Impact of traumatic brain injury on the family: A critical review. Rehabilitation Psychology, 44(1), 66–35.
70.
PicardiA.GigantescoA.TarollaE.StoppioniV.CerboR.CremonteM.. . . NardocciF. (2018). Parental burden and its correlates in families of children with autism spectrum disorder: A multicentre study with two comparison groups. Clinical Practice and Epidemiology in Mental Health, 14, 143–176.
71.
PinquartM.SörensenS. (2003). Differences between caregivers and non-caregivers in psychological health and physical health: A meta-analysis. Psychology and Aging, 18(2), 250–267.
72.
ReschJ. A.ElliottT. R.BenzM. R. (2012). Depression among parents of children with disabilities. Families, Systems, & Health, 30(4), 291–301.
73.
RhindC.SalernoL.HibbsR.MicaliN.SchmidtU.GowersS.. . . Lo CocoG. (2016). The objective and subjective caregiving burden and caregiving behaviours of parents of adolescents with anorexia nervosa. European Eating Disorders Review, 24(4), 310–319.
74.
RillottaF.KirbyN.ShearerJ.NettelbeckT. (2012). Family quality of life of Australian families with a member with an intellectual/developmental disability. Journal of Intellectual Disability Research, 56(1), 71–86.
75.
RissanenT.LehtoS. M.HintikkaJ.HonkalampiK.SaharinenT.ViinamäkiH.Koivumaa-HonkanenH. (2013). Biological and other health related correlates of long-term life dissatisfaction burden. BMC Psychiatry, 13(1), Article 202.
76.
ShinW. W. (2011). The study on relationship between physical and psychological health characteristics and life satisfaction of older adults: Focused on moderating effect of volunteer participation. Journal of Welfare for the Aged, 54, 135–163.
77.
Siman-TovA.KanielS. (2011). Stress and personal resource as predictors of the adjustment of parents to autistic children: A multivariate model. Journal of Autism and Developmental Disorders, 41(7), 879–890.
78.
SingerG. H.FloydF. (2006). Meta-analysis of comparative studies of depression in mothers of children with and without developmental disabilities. American Journal on Mental Retardation, 111(3), 155–169.
79.
SkokA.HarveyD.ReddihoughD. (2006). Perceived stress, perceived social support, and wellbeing among mothers of school-aged children with cerebral palsy. Journal of Intellectual and Developmental Disability, 31(1), 53–57.
80.
StaintonT.BesserH. (1998). The positive impact of children with an intellectual disability on the family. Journal of Intellectual and Developmental Disability, 23(1), 57–70.
81.
ThompsonR. J.Jr.GustafsonK. E. (1996). Adaptation to chronic childhood illness. American Psychological Association.
82.
TramontiF.BonfiglioL.Di BernardoC.UliviC.VirgillitoA.RossiB.CarbonciniM. C. (2015). Family functioning in severe brain injuries: Correlations with caregivers’ burden, perceived social support and quality of life. Psychology, Health & Medicine, 20(8), 933–939.
83.
TyermanE.EcclesF. J.GrayV. (2017). The experiences of parenting a child with an acquired brain injury: A meta-synthesis of the qualitative literature. Brain Injury, 31(12), 1553–1563.
84.
VeissonM. (1999). Depression symptoms and emotional states in parents of disabled and non-disabled children. Social Behavior and Personality: An International Journal, 27(1), 87–97.
85.
WadaK.TanakaK.TheriaultG.SatohT.MimuraM.MiyaokaH.AizawaY. (2007). Validity of the Center for Epidemiologic Studies Depression Scale as a screening instrument of major depressive disorder among Japanese workers. American Journal of Industrial Medicine, 50(1), 8–12.
86.
Webster-StrattonC. (1990). Stress: A potential disruptor of parent perceptions and family interactions. Journal of Clinical Child Psychology, 19(4), 302–312.
87.
WhiteN.HastingsR. P. (2004). Social and professional support for parents of adolescents with severe intellectual disabilities. Journal of Applied Research in Intellectual Disabilities, 17(3), 181–190.
88.
WoleryM. (1999). Children with disabilities in early elementary school. In PiantaR. C.CoxM. J. (Eds.), The transition to kindergarten (pp. 253–280). Paul H. Brookes.
89.
YunC. K. (2017). Relationship between the quality of life of the caregiver and motor function of children with cerebral palsy. Physical Therapy Rehabilitation Science, 6(1), 26–32.
90.
YunE. (2010). A research on the how caregiving burden for the frail elder effect on caregiver’s guilt: Comparing between home-care elderly and nursing home elderly. Journal of Welfare for the Aged, 47, 289–307.
91.
ZablotskyB.BlackL. I.BlumbergS. J. (2017). Estimated prevalence of children with diagnosed developmental disabilities in the United States, 2014-2016. NCHS Data Brief, 291, 1–8.
92.
ZimetG. D.DahlemN. W.ZimetS. G.FarleyG. K. (1988). The Multidimensional Scale of Perceived Social Support. Journal of Personality Assessment, 52(1), 30–41.
