Evidence-based models are critical for understanding caregiver well-being and treatment interventions from a holistic perspective. This study introduces the Indivisible Self: An Evidence-Based Model of Wellness (IS-WEL) as a means for examining the holistic wellness of pediatric stroke caregivers. In this exploratory study, 161 participants completed a demographic survey and the Five-Factor Wellness Inventory (FF-WEL). Results indicate significant wellness score differences between the current sample of pediatric stroke caregivers and the FF-WEL norming sample on the higher order Total Wellness factor, the second-order wellness factors of Creative Self and Social Self, and the third-order wellness factors of thinking, emotions, control, positive humor, and love. These results support the veracity of the IS-WEL as an additional empirically sound holistic approach for understanding and addressing the well-being of stroke caregivers. The authors discuss practical clinical and research implications for utilizing the IS-WEL with pediatric stroke caregivers.
AbmaR. K. (2010). Diagnosing and treating childhood stroke. Neurology Reviews, 18(9), Article 7.
2.
AdlerA. (1954). Understanding human nature. New York, NY: Fawcett.
3.
AneshenselC. S.PearlinL. I.MullanJ. T.ZaritS. H.WhitlatchC. J. (1995). Profiles in caregiving: The unexpected career. New York, NY: Academic Press.
4.
BanduraA. (1997). Self-efficacy: The exercise of control. New York, NY: Freeman.
5.
BanduraA.CervoneD. (1983). Self-evaluative and self-efficacy mechanisms governing the motivational effects of goal systems. Journal of Personality and Social Psychology, 45, 1017–1028.
6.
BergA.PalomakiH.LonnqvistJ.LehtihalmesM.KasteM. (2005). Depression among family caregivers of stroke survivors. Stroke, 36, 639–643.
7.
BradburnN. M. (1969). The structure of psychological well-being. Chicago, IL: Aldine.
8.
CameronJ. I.GignacM. A. (2008). “Timing it right”: A conceptual framework for addressing the support needs of family caregivers to stroke survivors from the hospital to the home. Patient Education and Counseling, 70, 305–314.
9.
CameronJ. I.NaglieG.SilverF. L.GignacM. A. M. (2013). Stroke family caregivers’ support needs change across the care continuum: A qualitative study using the timing it right framework. Disability and Rehabilitation, 35, 315–324.
10.
CervoneD. (2000). Thinking about self-efficacy. Behavior Modification, 24, 30–56.
11.
ChangJ. H.ChenH. C.HsuC. C.ChanY. C.ChangY. L. (2015). Flexible humor styles and the creative mind: Using a typological approach to investigate the relationship between humor styles and creativity. Psychology of Aesthetics, Creativity, and the Arts, 93, 306–312.
12.
ChaseM. A. (2001). Children’s self-efficacy, motivational intentions, and attributions in physical education and sport. Research Quarterly for Exercise and Sport, 72, 47–54.
13.
ChemersM.HuL.GarciaB. (2001). Academic self-efficacy and first year college student performance and adjustment. Journal of Educational Psychology, 93, 55–64.
14.
ChenY.FeeleyT. (2013). Social support, social strain, loneliness, and well-being among older adults: An analysis of the health and retirement study. Journal of Social and Personal Relationships, 31, 141–161.
15.
CheungC. K.YueX. D. (2013). Humor styles, optimism, and their relationship with distress among undergraduates in three Chinese cities. Humor: International Journal of Humor Research, 26, 351–370.
16.
ChronisterJ.ChanF. (2006). A stress process model of caregiving for individuals with traumatic brain injury. Rehabilitation Psychology, 51, 190–201.
17.
ChwaliszK. (1996). The perceived stress model of caregiver burden: Evidence from spouses of personal with brain injuries. Rehabilitation Psychology, 41, 91–114.
18.
CohenS. (2004). Social relationships and health. American Psychologist, 59, 678–684.
19.
CurletteW. L.KernR. M. (2010). The importance of meeting the need to belong in lifestyle. Journal of Individual Psychology, 66, 30–42.
20.
DayK. L.McGuireL. C.AndersonL. A. (2009). The center for disease control and prevention’s healthy brain initiative: Emerging implications of cognitive impairment. Generations, 33, 11–17.
21.
De SchryverL.KapelleL.Jennekens-SchinkelA.Boudewyn PetersA. (2000). Prognosis of ischemic stroke in childhood: A long-term follow-up study. Developmental Medicine & Child Neurology, 42, 313–318.
22.
de VeberG. (2005). In pursuit of evidence-based treatments for paediatric stroke: The UK and chest guidelines. The Lancet, 4, 432–436.
23.
DouglasJ. M.SpellacyF. J. (2000). Correlates of depression in adults with severe traumatic brain injury and their carers. Brain Injury, 14(1), 71–88.
24.
DyckK. T. H.HoltzmanS. (2013). Understanding humor styles and well-being: The importance of social relationships and gender. Personality and Individual Differences, 55, 53–58.
25.
ElliotT.ShewchuckR.RichardsJ. (2001). Family caregiver problem solving abilities and adjustment during the initial year of the caregiver role. Journal of Counseling Psychology, 50, 223–232.
26.
FalconierM. K.NussbeckF.BodenmannG. (2013). Immigration stress and relationship satisfaction in Latino couples: The role of dyadic coping. Journal of Social and Clinical Psychology, 32, 813–843.
27.
FrainM. P.BervinN. L.TschoppM. K.LeeG. K.TanseyT.ChronisterJ. (2007). Use of the resiliency model of family stress, adjustment and adaptation by rehabilitation counselors. Journal of Rehabilitation, 73(3), 18–25.
28.
GauglerJ. E. (2010). The longitudinal ramifications of stroke caregiving: A systemic review. Rehabilitation Psychology, 55, 108–125.
29.
GordonA.GanesanV.TowellA.KirkhamF. (2002). Functional outcome following stroke in children. Journal of Child Neurology, 17, 429–434.
30.
GrafR.LeLaurinJ.SchmitzbergerM.Magaly FreytesI.OrozcoT.DangS.UpholdC. (2017). The stroke caregiving trajectory in relation to caregiver depressive symptoms, burden, and intervention outcomes. Topics in Stroke Rehabilitation, 24, 488–495.
31.
GranelloP. F. (2013) Wellness Counseling. Upper Saddle River, NJ: Pearson Education, Inc.
32.
GranelloP. F.WitmerJ. M. (2013). The wellness challenge. In GranelloP.F. (Ed.), Wellness counseling (pp. 2-9). Upper Saddel River: Pearson Education, Inc.
33.
GrantJ.WeaverM.ElliottT.BartolucciA.Newman-GigerJ. (2004). Family caregivers of stroke survivors: Characteristics of caregivers at risk for depression. Rehabilitation Psychology, 49, 172–179.
34.
GreenbergerD.PadeskyC. A. (1995). Mind over mood. New York, NY: Guilford Press.
35.
HanB.HaleyW. (1999). Family care giving for patients with stroke: Review and analysis. Stroke, 30, 1478–1485.
36.
HerzbergP. Y. (2013). Coping in relationships: The interplay between individual and dyadic coping. Anxiety, Stress & Coping: An International Journal, 26, 136–153.
37.
Hunnicut-HolenbaughK. M. (2013). Emotional regulation: Stones and water. In GranelloP. F. (Ed.), Wellness counseling (pp. 92–99). Upper Saddle River, NJ: Pearson Education.
38.
HurvitzE.WarschauskyS.BergM.TsaiS. (2004). Long-term functional outcomes of pediatric stroke survivors. Topics in Stroke Rehabilitation, 11, 51–59.
39.
HysingM.ElgenI.GilbergC.LieS.LundervoldA. (2007). Chronic physical illness and mental health in children: Results from a large-scale study. The Journal of Child Psychology and Psychiatry, 48, 785–792.
40.
KleiberD.NimrodG. (2009). “I can’t be very sad”: Constraint and adaptation in the leisure of a “learning in retirement” group. Leisure Studies, 28, 67–83.
41.
KreutzerJ. S.SrioC. D.BergquistS. (1994). Family needs after brain injury: A quantitative analysis. Journal of Head Trauma Rehabilitation, 9, 104–115.
42.
LockeE. A.LathamG. P. (1990). Work motivation and satisfaction: Light at the end of the tunnel. Psychological Science, 14, 240–246.
43.
LuiM.RossF.ThompsonD. (2005). Supporting family caregivers in stroke care: A review of the evidence for problem solving. Stroke, 36, 2514–2522.
44.
LynchJ.HirtzD.DeVeberG.NelsonK. B. (2002). Report of the National Institute of Neurological Disorders and Stroke workshop on perinatal and childhood stroke. Pediatrics, 109, 116–123.
45.
MackenzieA.GreenwoodN. (2012). Positive experiences of caregiving in stroke: A systemic review. Disability and Rehabilitation, 34, 1413–1422.
46.
MadduxJ.BrawleyL.BoykinA. (1995). Self-efficacy and health behavior: Prevention, promotion, and detection. In MadduxJ. E. (Ed.), The Plenum series in social/clinical psychology: Self-efficacy, adaptation, and adjustment: Theory, research, and application (pp. 173–202). New York, NY: Plenum Press.
47.
McCubbinH. L.ThompsonA.McCubbinM. A. (1996). Family assessment: Resiliency, coping and adaptation. Madison: University of Wisconsin.
48.
MoosR. H.SchaeferJ. A. (1993). Coping resources and processes: Current concepts and measures. In GoldbergerL.BreznitzS. (Eds.), Handbook of stress: Theoretical and clinical aspects (2nd ed., pp. 234–257). New York, NY: Free Press.
49.
MorrisA. S.SilkJ. S.SteinbergL.MyersS. S.RobinsonL. R. (2007). The role of the family context in the development of emotion regulation. Social Development, 16, 361–388.
50.
MyersJ.SweeneyT. (2005). The indivisible self: An evidence-based model of wellness (reprint). Journal of Individual Psychology, 61, 269–279.
51.
MyersJ.SweeneyT. (2008). Wellness counseling: The evidence base for practice. Journal of Counseling & Development, 86, 482–493.
52.
MyersJ.SweeneyT.WitmerJ. (2000). The wheel of wellness counseling for wellness: A holistic model for treatment planning. Journal of Counseling & Development, 78, 251–266.
53.
O’KeeffeF.LiegeoisF.EveM.GanesanV.KingJ.MurphyT. (2013). Neuropsychological and neurobehavioral outcome following arterial ischemic stroke: Attention deficits, emotional dysregulation, and executive dysfunction. Child Neuropsychology, 20, 557–582.
54.
O’KeeffeG. V.KingJ.MurphyT. (2012). Quality-of-life and psychosocial outcome following arterial ischaemic stroke. Brain Injury, 26, 1072–1083.
55.
PomeroyH.ClarkA. (2015). Self-efficacy and early recollections in the context of Adlerian and wellness theory. Journal of Individual Psychology, 71, 24–33.
56.
PressmanS. D.MatthewsK. A.CohenS.MartireL. M.ScheierM.BaumA.SchulzR. (2009). Association of enjoyable leisure activities with psychological and physical well-being. Psychosomatic Medicine, 71, 725–732.
57.
RiggarT. F.MakiD. R. (Eds.). (2004). Handbook of rehabilitation counseling. New York, NY: Springer.
58.
RubinoC.PerryS.MilamA.SpitzmuellerC.ZapfD. (2012). Demand-control-person: Integrating the demand-control and conservation of resources models to test an expanded stressor-strain model. Journal of Occupational Health Psychology, 17, 456–472.
59.
ShanmughamK.CanoM.ElliottT.DavisM. (2009). Social problem-solving abilities, relationship satisfaction and depression among family caregivers of stroke survivors. Brain Injury, 23, 92–100.
60.
SmithK. P.ChristakisN. A. (2008). Social networks and health. Annual Review of Sociology, 34, 405–429.
61.
SultanoffS. M. (2013). Integrating humor into psychotherapy: Research, theory, and the necessary conditions for the presence of therapeutic humor in helping relationships. The Humanistic Psychologist, 41, 388–399.
62.
TanigoshiH.KontosA. P.RemleyT. P. (2008). The effectiveness of individual wellness counseling on the wellness of law enforcement officers. Journal of Counseling & Development, 86, 64–74.
63.
TokerS.GavishI.BironM. (2013). Job demand-control-support and diabetes risk: The moderating role of self-efficacy. European Journal of Work and Organizational Psychology, 22, 711–724.
64.
VedesA.BodenmannG.NussbeckF. W.RandallA.LindW. (2015). The role of we-ness in mediating the association between dyadic coping and relationship satisfaction. Journal of Social and Personal Relationships, 1–30.
65.
VedesA.HilpertP.NussbeckF.RandallA.BodenmannG.LindW. (2016). Love styles, coping, and relationship satisfaction: A dyadic approach. Personal Relationships, 23, 84–97.
66.
VitalianoP. P.RussoJ.BecerkJ.MaiuroR. D. (1991). The screen for caregiver burden. Gerontologist, 31, 76–83.
67.
WaldsteinS. R.EliasM. F. (2003). Introduction to the special section on health and cognitive function. Health Psychology, 22, 555–558.
68.
XieB. (2007). Using the Internet for offline relationship formation. Social Science Computer Review, 25, 396–404.
