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References
1.Centers for Disease Control and Prevention . Sexually Transmitted Infections Surveillance 2023 . US Department of Health and Human Services ; 2024 . Accessed November 30, 2025 . https://www.cdc.gov/sti-statistics/media/pdfs/2025/09/2023_STI_Surveillance_Report_FINAL_508.pdf
2.South Dakota Department of Health . Infectious disease dashboard . Updated November 2025. Accessed November 24, 2025 . https://doh.sd.gov/health-data-reports/data-dashboards/infectious-disease-dashboard
3.US Department of Health and Human Services, Office of Minority Health . American Indian/Alaska Native health . Updated May 2025. Accessed November 30, 2025 . https://minorityhealth.hhs.gov/node/8/revisions/3303/view
4.Great Plains Tribal Leaders’ Health Board . 2025 . Accessed March 7, 2025 . https://www.greatplainstribalhealth.org/about-us.html
5.25 USC 1621m: Epidemiology centers . Updated January 14, 2025. Accessed January 15, 2025 . https://uscode.house.gov/view.xhtml?req=(title:25%20section:1621m%20edition:prelim)
6.
O’Connell
MC
Duran
T
Shewbrooks
S
, et al . Incentivized community-based syphilis screening: uptake, yield, and cost . Sex Transm Dis . 2025 ;52 (12 ):775 -779 . doi:10.1097/OLQ.0000000000002219
7.Centers for Disease Control and Prevention, National Center for HIV/AIDS, Viral Hepatitis, STD, and TB Prevention, Division of STD Prevention . STD outbreak response plan guide . December 2020 . Accessed February 28, 2025 . https://stacks.cdc.gov/view/cdc/119813
8.Research and Investigations Generally, 42 USC §241 . 2024 . Accessed March 19, 2026 . https://www.govinfo.gov/app/details/USCODE-2024-title42/USCODE-2024-title42-chap6A-subchapII-partA-sec241
9.General Grant of Authority for Cooperation, 42 USC §243 . 2024 . Accessed March 19, 2026 . https://www.govinfo.gov/app/details/USCODE-2024-title42/USCODE-2024-title42-chap6A-subchapII-partB-sec243
10.Epidemic Intelligence Service . Requesting EIS services . Updated December 12, 2024. Accessed November 30, 2025 . https://www.cdc.gov/eis/php/request-services/index.html
11.South Dakota Department of Health . Reducing an unprecedented rise in syphilis rates by enhanced screening & testing . September 2023 . Accessed February 13, 2026 . https://doh.sd.gov/media/gi1b4rwt/reducingsyphilis_2023.pdf
12.Centers for Disease Control and Prevention, National Center for HIV/AIDS, Viral Hepatitis, STD, and TB Prevention, Division of STD Prevention . Undetermined risk factors for syphilis transmission among American Indians—Great Plains area, 2022-2023, out briefing presentation . July 21 , 2023 . Updated August 1, 2023. Accessed January 15, 2025 . https://www.greatplainstribalhealth.org/downloads/health-topics/tribal-epidemiology-center/sexual-health-education/180-gptlhb-epi-aid-syphilis-transmission-risk-factors-out-briefing-presentation-8-1-23/file.html
13.Commerce Clause, US Constitution, Art I, §8, cl 3 .
14.Centers for Disease Control and Prevention . Tribal emergency preparedness law . Updated May 16, 2024. Accessed January 15, 2025 . https://www.cdc.gov/phlp/php/tribal-public-health/tribal-emergency-preparedness-law.html
15.Definitions, 45 CFR §164.501 . Accessed February 28, 2025 . https://www.ecfr.gov/current/title-45/subtitle-A/subchapter-C/part-164/subpart-E/section-164.501
16.Uses and disclosures for which an authorization or opportunity to agree or object is not required, 45 CFR §164.512(b)(1)(i) . Accessed February 28, 2025 . https://www.ecfr.gov/current/title-45/subtitle-A/subchapter-C/part-164/subpart-E/section-164.512
17.US Government Accountability Office . Tribal Epidemiology Centers: HHS actions needed to enhance data access . March 2022 . Accessed January 15, 2025 . https://www.gao.gov/products/gao-22-104698
18.
O’Connell
MC
Abourezk
C.
Facilitating the urgent public health need to improve data sharing with Tribal Epidemiology Centers . Public Health Rep . 2023 ;138 (2 Suppl ):80S-83S. doi:10.1177/00333549231152197
19.HHS Office of the Chief Data Officer . Tribal data home-page . Updated December 7, 2024 . Accessed January 15, 2025 . https://cdo.hhs.gov/s/tribal-data
20.
Schmit
CD
O’Connell
MC
Shewbrooks
S
, et al . Dying in darkness: deviations from data sharing ethics in the US public health system and the data genocide of American Indian and Alaska Native communities . J Med Internet Res . 2025 ;27 :e70983. doi:10.2196/70983
21.The Raven Collective . A Journey to End Syphilis in Indian Country . Regional Syphilis Partnerships Summit Report. 2025 . Accessed March 7, 2025 . https://www.theravencollective.org/resources/a-journey-to-end-syphilis-in-indian-country-53a89