The Mediating Role of Death Obsessions in the Relationship Between Caregiver Burden and Somatic Symptoms: A Study on the Informal Dementia Caregivers in India

Abstract

This study aimed to analyze the relationship between the caregiver burden, death obsessions, and somatic symptoms; and whether the death obsessions are playing a mediating role in the relationship between the caregiver burden and somatic symptoms. The study was done on the informal dementia caregivers residing in India. Three questionnaires in a google form were circulated. The correlational and mediation analysis revealed that there was a significant and positive correlation between the caregiver burden, death obsessions, and somatic symptoms. Further, the death obsessions significantly mediated the relationship between caregiver burden and somatic symptoms.

Keywords

caregiver burden death obsessions somatic symptoms informal dementia caregivers India

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References

Abdel-Khalek

A. M.

(1998). The structure and measurement of death. Personality and Individual Differences, 24(2), 159–165. https://doi.org/10.1016/S0191-8869(97)00144-X

Adelman

R. D.

Tmanova

L. L.

Delgado

Dion

Lachs

M. S.

(2014). Care of the aging patient: From evidence to action. Clinical Review and Education, 311(10), 1052–1059. https://doi.org/10.1001/jama.2014.304

American Psychiatric Association (2021). Online assessment measures. American Psychiatric Association. Online Assessment Measures (psychiatry.org).

Bachner

Y. G.

O’Rourke

Carmel

(2011). Amp; carmel, SFear of death, mortality communication, and psychological distress among secular and religiously observant family caregivers of terminal cancer patients. Death Studies, 35(2), 163–187. https://doi.org/10.1080/07481187.2010.535390

Crettaz

Marziniak

Willeke

Young

Hellhammer

Stumpf

Burgmer

(2013). Stress-induced allodynia– evidence of increased pain sensitivity in healthy humans and patients with chronic pain after experimentally induced psychosocial stress. PLoS One, 8(8), Article e69460. https://doi.org/10.1371/journal.pone.006946010.1371/journal.pone.0069460

Donelan

Hill

C. A.

Hoffman

Scoles

Feldman

P. H.

Levine

Gould

(2002 Jul-Aug). Challenged to care: Informal caregivers in a changing health system. Health Affairs, 21(4), 222–231. https://doi.org/10.1377/hlthaff.21.4.222

Etters

Goodall

Harrison

B. E.

(2008). Caregiver burden among dementia patient caregivers: A review of the literature. Journal of the American Association of Nurse Practitioners, 20(8), 423–428. https://doi.org/10.1111/j.1745-7599.2008.00342.x10.1111/j.1745-7599.2008.00342.x

Furer

Walker

J. R.

(2008). Death anxiety: A cognitive–behavioral approach. Journal of Cognitive Psychotherapy, 22(2), 167–182. https://doi.org/10.1891/0889-8391.22.2.167

Graessel

Berth

Lichte

Grau

(2014). Subjective caregiver burden: Validity of the 10-item short version of the burden scale for family caregivers BSFC-s. BMC Geriatrics, 14(1), 23–29. https://doi.org/10.1186/1471-2318-14-23

10.

Gräsel

(1995 Nov-Dec). Somatic symptoms and caregiving strain among family caregivers of older patients with progressive nursing needs. Arch Gerontol Geriatr, 21(3):253–266. https://doi.org/10.1016/0167-4943(95)00660-D

11.

Hayes

A. F.

(2012). Process: A versatile computational tool for observed variable mediation, moderation, and conditional process modeling [White paper]. http://www.afhayes.com/public/process2012.pdf

12.

Joling

K. J.

van Marwijk

H. W.

Veldhuijzen

A. E.

van der Horst

H. E.

Scheltens

Smit

van Hout

H. P.

(2015). The two-year incidence of depression and anxiety disorders in spousal caregivers of persons with dementia: Who is at the greatest risk? American Journal of Geriatric Psychiatry: Official Journal of American Association for Geriatric Psychiatry, 23(3), 293–303. https://doi.org/10.1016/j.jagp.2014.05.005

13.

Kroenke

Spitzer

R. L.

Williams

J. B.

(2002 Mar-Apr). The PHQ-15: Validity of a new measure for evaluating the severity of somatic symptoms. Psychosomatic Medicine, 64(2), 258–266. https://doi.org/10.1097/00006842-200203000-00008

14.

Leggett

Polenick

C. A.

Maust

D. T.

Kales

H. C.

(2018 Mar-Apr). What hath night to do with sleep? The caregiving context and dementia caregivers’ nighttime awakenings. Clinical Gerontologist, 41(2), 158-166. https://doi.org/10.1080/07317115.2017.1352057

15.

Lilly

M. B.

Robinson

C. A.

Holtzman

Bottorff

J. L.

(2012). Can we move beyond burden and burnout to support the health and wellness of family caregivers to persons with dementia? Evidence from British Columbia, Canada. Health Soc Care Community, 20(1), 103–112. https://doi.org/10.1111/j.1365-2524.2011.01025.x

16.

Maddi

(1980). Developmental value of fear of death. The Journal of Mind and Behavior, 1(1), 85–92. https://www.jstor.org/stable/43852811.

17.

Moore

C. C.

Williamson

J. B.

(2003). The universal fear of death and cultural response. In Bryant

C. D.

(Ed.), Handbook of death and dying. Sage.

18.

Pattanayak

R. D.

Jena

Tripathi

Khandelwal

SK.

(2010). Assessment of burden in caregivers of Alzheimer’s disease from India. Asian Journal of Psychiatry, 3(3), 112–116. https://doi.org/10.1016/j.ajp.2010.06.002

19.

Pinquart

Sörensen

(2003). Differences between caregivers and noncaregivers in psychological health and physical health: A meta-analysis. Psychol Aging, 18(2), 250–267. https://doi.org/10.1037/0882-7974.18.2.250

20.

Rajabi

(2009). The psychometric properties of death obsession scale in freshman undergraduate students. Journal of Applied Sciences, 9(2), 360–365. https://doi.org/10.3923/jas.2009

21.

IBM Corp. Released . (2011). IBM SPSS statistics for windows, version 20.0. IBM Corp.

22.

Richardson

T. J.

Lee

S. J.

Berg-Weger

Grossberg

G. T.

(2013). Caregiver health: Health of caregivers of Alzheimer’s and other dementia patients. Current Psychiatry Reports, 15(7), 367. https://doi.org/10.1007/s11920-013-0367-2

23.

Rivera

Requena

(2013). Variables de riesgo asociadas al burnout entre cuidadores familiares de enfermos de Alzheimer en el oeste de puerto rico. [PhD Thesis, Universidad de León, Fundación Universitaria Iberoamericana]. https://buleria.unileon.es/bitstream/handle/10612/2880/tesis_d5d851.PDF?sequence1

24.

Sallim

A. B.

Sayampanathan

A. A.

Cuttilan

(2015). Prevalence of mental health disorders among caregivers of patients with Alzheimer disease. Journal of the American Medical Directors Association, 16(12), 1034–1041. https://doi.org/10.1016/j.jamda.2015.09.007

25.

Schoenmakers

Buntinx

Delepeleire

(2009). What is the role of the general practitioner towards the family caregiver of a community-dwelling demented relative? A systematic literature review. Scandinavian Journal of Primary Health Care, 27(1), 31–40. https://doi.org/10.1080/02813430802588907

26.

Silliman

R. A.

(1989 May-Jun). Caring for the frail older patient: the doctor-patient-family caregiver relationship. Journal of General Internal Medicine, 4(3), 237–241. https://doi.org/10.1007/BF02599531

27.

Sitnikova

Dijkstra-Kersten

S. M. A.

Mokkink

L. B.

Terluin

van Marwijk

H. W. J.

Leone

S. S.

van der Horst

H. E.

van der Wouden

J. C.

(2017). Systematic review of measurement properties of questionnaires measuring somatization in primary care patients. Journal of Psychosomatic Research, 103, 42–62. https://doi.org/10.1016/j.jpsychores.2017.10.005

28.

Song

J. A.

Park

Cheon

H. J.

Lee

(2018). Patient and caregiver interplay in behavioral and psychological symptoms of dementia: Family caregiver’s experience. Clinical Nursing Research, 27(1), 12–34. https://doi.org/10.1177/1054773816678979

29.

Starcevic

(2005). Fear of death in hypochondriasis: Bodily threat and its treatment implications. Journal of Contemporary Psychotherapy, 35(3), 227–237. https://doi.org/10.1007/s10879-005-4317-0

30.

Tarlow

B. J.

Wisniewski

S. R.

Belle

S. H.

Rubert

Ory

M. G.

Gallagher-Thompson

(2004). Positive aspects of caregiving: contributions of the REACH project to the development of new measures for Alzheimer’s caregiving. Research on Aging, 26(4), 429–453. https://doi.org/10.1177/0164027527264437

31.

Taylor

B. J.

Irish

L. A.

Martire

L. M.

Siegle

G. J.

Krafty

R. T.

Schulz

Hall

M. H.

(2015 Nov-Dec). Avoidant coping and poor sleep efficiency in dementia caregivers. Psychosomatic Medicine, 77(9), 1050–1057. https://doi.org/10.1097/PSY.0000000000000237

32.

Walker

Possin

K. L.

Boeve

B. F.

Aarsland

(2015). Lewy body dementias. Lancet, 386(10004), 1683–1697. https://doi.org/10.1016/S0140-6736(15)00462-6

33.

Yalom

I. D.

(1980). Existential psychotherapy. Basic Books.

34.

Zarit

S. H.

Todd

P. A.

Zarit

J. M.

(1986). Subjective burden of husbands and wives as caregivers: A longitudinal study. Gerontologist, 26(3), 260–266. https://doi.org/10.1093/geront/26.3.260

35.

Zucca

Isella

Lorenzo

R. D.

Marra

Cagnin

Cupidi

Bonanni

Laganà

Rubino

Vanacore

Agosta

Caffarra

Sambati

Quaranta

Guglielmi

Appollonio

I. M.

Logroscino

Filippi

Tedeschi

SINdem COVID-19 Study Group . (2021). Being the family caregiver of a patient with dementia during the coronavirus disease 2019 lockdown. Frontiers in Aging Neuroscience, 13, 132, 652533. https://doi.org/10.3389/fnagi.2021.653533.