Purpose: This study aimed to determine the feasibility and acceptability of using videography to alleviate the stress of anticipatory mourning in pediatric palliative care patients. A secondary aim was to expand palliative/end of life care research by performing a more comprehensive examination of children’s experiences with life-shortening illness. Methods: Eligible patients ages eight and older made a legacy video with the assistance of investigative staff and completed a questionnaire to evaluate their emotional states before and after making the video. Bereaved parents also received a questionnaire to assess the impact of the legacy. Results: Nine patients enrolled and eight completed the study through the therapeutic exit interview. Most reported decreased anxiety and a positive experience. Conclusion: Therapeutic videography is feasible and acceptable to accomplish and can improve the emotional state of participants. Conducting research requiring active participation of patients very near the end of life proved to be challenging.
AkardTFDietrichMSFriedmanDLHindsPSGivenBWraySGilmerMJ (2015). Digital storytelling: an innovative legacy-making intervention for children with cancer. Pediatric Blood & Cancer, 62(4), 658-665. https://doi.org/10.1002/pbc.25337.
2.
BestP.ManktelowR.TaylorB. (2014). Online communication, social media and adolescent wellbeing: A systematic narrative review. Children and Youth Services Review, 41, 27-36. https://doi.org/10.1016/j.childyouth.2014.03.001.
3.
BraunV.ClarkeV. (2012). Thematic analysis. In CooperH. (Ed.), APA Handbook of Research Methods in Psychology (Vol. 2, pp. 57-71). American Psychological Association. https://doi.org/10.1037/13620-004.
4.
ChalfenR (1998). Family photograph appreciation: Dynamics of medium, interpretation and memory. Communication & Cognition. Monographies, 31(2-3), 161-178. https://doi.org/10.1177/0956797613504438.
5.
CottonSBerryD (2007). Religiosity, spirituality, and adolescent sexuality. Adolescent Medicine: State of the Art Reviews, 18(3), 471-483, vi. http://www.ncbi.nlm.nih.gov/pubmed/18453228.
6.
CottonSGrossoehmeDMcGradyME (2012). Religious coping and the use of prayer in children with sickle cell disease. Pediatric Blood & Cancer, 58(2), 244-249. https://doi.org/10.1002/pbc.23038.
7.
CottonSZebrackiKRosenthalSLTsevatJDrotarD (2006). Religion/spirituality and adolescent health outcomes: a review. The Journal of Adolescent Health : Official Publication of the Society for Adolescent Medicine, 38(4), 472-480. https://doi.org/10.1016/j.jadohealth.2005.10.005, [pii] 10/j.jadohealth.2005.10.005.
8.
DuranB (2013). Posttraumatic growth as experienced by childhood cancer survivors and their families: a narrative synthesis of qualitative and quantitative research. Journal of Pediatric Oncology Nursing : Official Journal of the Association of Pediatric Oncology Nurses, 30(4), 179-197. https://doi.org/10.1177/1043454213487433.
9.
GrossoehmeD. H.SzczesniakR. D.MrugS.DimitriouS. M.MarshallA.McPhailG. L (2016). Adolescents’ spirituality and cystic fibrosis airway clearance treatment adherence: Examining mediators. Journal of Pediatric Psychology, Jsw024, 41(9), 1022–1032. https://doi.org/10.1093/jpepsy/jsw024.
10.
Keim-MalpassJAdelsteinKKavalieratosD (2015). Legacy making through illness blogs: Online spaces for young adults approaching the end-of-life. Journal of Adolescent and Young Adult Oncology, 4(4), 209-212. https://doi.org/10.1089/jayao.2015.0003.
11.
KuntzN.AnazodoA.BowdenV.SenderL.MorganH. (2019). Pediatric cancer patients' treatment journey: Child, adolescent, and young adult cancer narratives. Journal of Pediatric Nursing, 48, 42-48. https://doi.org/10.1016/j.pedn.2019.06.003.
MartinsonI. M.PapadatouD. (1994). Care of the dying child and the bereaved. In BearisonD. J.MulhernR. K. (Eds.), Pediatric Psychooncology: Psychological Perspectives on Children with Cancer (pp. 193-214). Oxford University Press.
15.
PargamentK. I (1997). Psychology of religious coping. Guilford Press.
PidermanKMBreitkopfCRJenkinsSMLovejoyLADuloheryYMMarekDVDurlandHLHeadDLSwansonSWHoggJTEvansJLJorgensonSEBunkowskiLJJonesKLEuerleTTKweteGMMillerKAMorrisJRYoderTJLapidMIJatoiA (2015). The feasibility and educational value of Hear My Voice, a chaplain-led spiritual life review process for patients with brain cancers and progressive neurologic conditions. Journal of Cancer Education : The Official Journal of the American Association for Cancer Education, 30(2), 209-212. https://doi.org/10.1007/s13187-014-0686-y.
20.
PidermanKMEggintonJSIngramCDoseAMYoderTJLovejoyLASwansonSWHoggJTLapidMIJatoiARemtemaMSTataBSBreitkopfCR (2017). I'm Still Me: Inspiration and Instruction from Individuals with Brain Cancer. Journal of Health Care Chaplaincy, 23(1), 15-33. https://doi.org/10.1080/08854726.2016.1196975.
21.
PidermanKMRadecki BreitkopfCJenkinsSMLapidMIKweteGMSytsmaTTLovejoyLAYoderTJJatoiA (2017). The impact of a spiritual legacy intervention in patients with brain cancers and other neurologic illnesses and their support persons. Psycho-oncology, 26(3), 346-353. https://doi.org/10.1002/pon.4031.
22.
ReynoldsNMrugSBrittonLGuionKWolfeKGutierrezH (2014). Spiritual coping predicts 5-year health outcomes in adolescents with cystic fibrosis. Journal of Cystic Fibrosis : Official Journal of the European Cystic Fibrosis Society, 13(5), 593-600. https://doi.org/10.1016/j.jcf.2014.01.013.
23.
Rigazio-DigilioS (2001). Videography: Re-storying the lives of clients facing terminal illness. In NeimeyerR.A. (Ed.), Meaning Reconstruction and the Experience of Loss (pp. 331-344). American Psychological Association. https://doi.org/10.1037/10397-017.
24.
SytsmaTTBjorkLBJenkinsSMChatterjeeKPidermanKM (2020). "Slowed down but not stopped": A spiritual life review intervention in patients with neurodegenerative disease. The Journal of Pastoral Care & Counseling : JPCC, 74(2), 108-114. https://doi.org/10.1177/1542305020913054.
25.
TangJ.GibsonS. (2005). A psychophysical evaluation of the relationship between trait anxiety, pain perception, and induced state anxiety. The Journal of Pain, 6(9), 612–619. https://doi.org/10.1016/j.jpain.2005.03.009.
26.
Taylor-BrownS.WienerL. (1993). Making videotapes of HIV-infected women for their children. Families in Society: The Journal of Contemporary Social Services, 74(8), 468–480. https://doi.org/10.1177/104438949307400803.
