The growing complexities with long term ventilated children: A personal perspective

The National Confidential Enquiry into Patient Outcome and Death. Balancing the pressures. A review of the quality of care provided to children and young people aged 0–24 years who were receiving long-term ventilation. London, 2020.

https://www.england.nhs.uk/commissioning/wp-content/uploads/sites/12/2015/01/e07-spec-paedi-long-ventilation.pdf (2015, accessed 2 November 2022).

https://patientexperiencenetwork.org/wp-content/uploads/2019/10/Paediatric-Long-Term-Ventilation-Report-v12-final.pdf (2019, accessed 2 November 2022).

https://www.england.nhs.uk/commissioning/spec-services/npc-crg/group-e/e07/ (accessed 2 November 2022).

Everitt L Wilkinson S Evans H. The national paediatric Long-Term Ventilation (LTV) advisory group – a new initiative. Arch Dis Child 2022; 107: A243–A244. UK 10.1136/archdischild-2022-rcpch.392 (Abstract)

https://thecharliegardfoundation.org/about/what-is-charlies-law/ (last accessed 2 November 2022).

University Hospitals of North Midlands NHS Trust v AS & Ors (Serious Medical Treatment) [2021] EWHC 2927 (Fam).

Yates and Gard v Great Ormond Street Hospital for Children NHS Foundation Trust [2017] EWCA Civ 410.

Fine-Goulden M Ray S Brierley J. Decision making in long-term ventilation for children. Lancet Respir Med 2015; 3(10): 745–746.

Ray S Brierley J Bush A , et al. Towards developing an ethical framework for decision making in long-term ventilation in children. Arch Dis Child 2018; 0: 1–5. doi:10.1136/archdischild-2018-314997

The pan-London LTV ethical framework – webinar, https://www.youtube.com/watch?v=BtTWVc2CEUU (2020, accessed 2 November 2022).

Larcher V Craig F , Bhogal K , et al, on behalf of the Royal College of Paediatrics and Child Health. Making decisions to limit treatment in life-limiting and life-threatening conditions in children: a framework for practice. Arch Dis Child 2015; 100(Suppl 2): s1–s23. doi:10.1136/archdischild-2014-306666