Experiencing a brain injury is a traumatic event not only for the child who is directly affected, but also for his or her family system. Recently, attention has turned toward the potentially deleterious effects of having a child with a traumatic brain injury (TBI) on parents, siblings, and extended family members. Specifically, families of TBI survivors may suffer major psychological, financial, role, and relationship risks. Therefore, treating the child with a brain injury is only one component of a comprehensive recovery program. This article describes common experiences of families following a child's brain injury, and specific strategies that might help families through the recovery/reentry process.
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References
1.
Allen, K., Linn, R. T., Gutierrez, H., & Willer, B. S. (1994). Family burden following traumatic brain injury. Rehabilitation Psychology, 39, 30–48.
2.
Asarnow, R. F., Lewis, R., & Neumann, E. (1991). Behavior problems and adaptive functioning in children with mild and severe closed head injury. Journal of Pediatric Psychology, 16, 545–555.
3.
Barry, P., & O'Leary, J. (1989). Roles of the psychologist on a traumatic brain injury rehabilitation team. Rehabilitation Psychology, 34(2), 83–90.
4.
Ben-Yishay, Y., & Prigatano, G. P. (1990). Cognitive rehabilitation. In M. Rosenthal, M. R. Bond, J. D. Miller, & E. R. Griffith (Eds.). Rehabilitation of the adult and child with traumatic brain injury (2nd ed., pp. 393–409). Philadelphia: Davis.
5.
Bigler, E. E. (1989). Behavioural and cognitive changes in traumatic brain injury: A spouse's perspective. Brain Injury, 3, 73–78.
6.
Black, P., Jeffries, J. J., Blumer, D., Wellner, A., & Walker, A. E. (1969). The posttraumatic syndrome in children. In A. E. Walker, E. E. Caveness, & M. Critchley (Eds.), The late effects of head injury (pp. 187–201). Springfield, IL: Thomas.
7.
Bond, M. R. (1983). Effects on the family system. In M. Rosenthal, E. R. Griffith, & M. R. bond (Eds.), Rehabilitation of the head injured adult (pp. 209–217). Philadelphia: F. A. Davis.
8.
Bragg, R. M., Klockars, A. J., & Berninger, V. W. (1992). Comparison of families with and without adolescents with traumatic brain injury. Journal of Head Trauma Rehabilitation, 7(3), 94–108.
9.
Breslau, N. (1982). Siblings of disabled children: Birth order and age-spacing effects. Journal of Abnormal Child Psychology, 10, 85–96.
10.
Breslau, N. (1983). The psychological study of chronically ill and disabled children: Are healthy siblings appropriate controls?Journal of Abnormal Child Psychology, 11, 379–391.
11.
Brooks, D. N. (1984). Head injury and the family. In D. N. Brooks (Ed.), Closed head injury: Psychological, social and family consequences (pp. 123–147). Cambridge, England: Oxford University Press.
12.
Brooks, D. N. (1991a). The head-injured family. Journal of Clinical Experimental Neuropsychology, 13, 155–188.
13.
Brooks, D. N. (1991b). The effectiveness of post-acute rehabilitation. Brain Injury, 1, 5–19.
14.
Brooks, D. N., Campsie, L., Symington, C., Beattie, A., & McKinlay, W. (1986). The five-year outcome of severe blunt head injury: A relative's view. Journal of Neurology, Neurosurgery, and Psychiatry, 49, 764–800.
15.
Brooks, D. N., Campsie, L., Symington, C., Beattie, A., & McKinlay, W. (1987). The effects of severe-head injury on patient and relatives within seven years of injury. Journal of Head Trauma Rehabilitation, 2(2), 1–13.
16.
Brooks, D. N., & McKinlay, W. (1983). Personality and behavioral changes after severe blunt head injury: A relative's view. Journal of Neurology, Neurosurgery, and Psychiatry, 46, 336–344.
17.
Chadwick, O. (1985). Psychological sequelae of head injury in children. Developmental Medicine and Child Neurology, 27, 69–79.
18.
Chinitz, S. P. (1981). A sibling group for brothers and sisters of handicapped children. Children Today, 15, 21–23.
19.
DePompei, R., & Zarski, J. J. (1989). Families, head injury, and cognitive-communicative impairments: Issues for family counseling. Topics in Language Disorders, 9, 78–89.
20.
Dyson, L., Edgar, E., & Crnic, K. (1989). Psychological predictors of adjustment by siblings of developmentally disabled children. American Journal of Mental Retardation, 94, 292–302.
21.
Eiben, C. F., Anderson, T. P., Lockman, L., Matthews, D. J., Dryjia, R., Martin, J., Burrill, C, Gottesman, N., O'Brian, P., & Witte, L. (1984). Functional outcome of closed head injury in children and young adults. Archives of Physical Medicine Rehabilitation, 65, 168–170.
22.
Ferrari, M. (1984). Chronic illness: Psychosocial effects on siblings—I. Chronically ill boys. Journal of Child Psychology and Psychiatry, 25, 459–476.
23.
Fletcher, J. M., Ewing-Cobbs, L., Miner, M. E., Levin, H. S., & Eisenberg, H. M. (1990). Behavioral changes after closed head injury in children. Journal of Consulting and Clinical Psychology, 58, 93–98.
24.
Frankowski, R. F. (1985). Head injury mortality in urban populations and its relation to the injured child. In B. F. Brooks (Ed.), The injured child (pp. 20–29). Austin: University of Texas Press.
25.
Gardner, R. A. (1973). The family book about minimal brain dysfunction.New York: Jason Aronson.
26.
Goldstein, F. C., & Levin, H. S. (1987). Epidemiology of pediatric head injury: Incidence, clinical characteristics, and risk factors. Journal of Learning Disabilities, 20, 518–525.
27.
Hall, K. M., Karzmark, P., Stevens, M., Englander, J., O'Hare, P., & Wright, J. (1994). Family stressors in traumatic brain injury: A two year follow-up. Archives of Physical Medicine and Rehabilitation, 75, 876–884.
28.
Harvey, D. H. P., & Greenway, A. P. (1984). The self concept of physically handicapped children and their non-handicapped siblings: An empirical investigation. Journal of Child Psychology and Psychiatry, 25, 273–284.
29.
Jackson, A., & Haverkamp, D. E. (1991). Family response to traumatic brain injury. Counseling Psychology Quarterly, 4, 355–356.
30.
Kaplan, S. P. (1988). Adaptation following serious brain injury: An assessment after one year. Journal of Applied Rehabilitation Counseling, 19(3), 3–7.
31.
Katz, R. T., & Deluca, J. (1992). Sequelae of minor traumatic brain injury. American Family Physician, 46, 1491–1498.
32.
Kratochwill, T. R., & Bergan, J. R. (1990). Behavioral consultation in applied settings: An individual guide.New York: Plenum.
33.
Kreutzer, J. S., Marwitz, J. H., & Kepler, K. (1992). Traumatic brain injury: Family response and outcome. Archives of Physical Medicine and Rehabilitation, 73, 771–778.
34.
Lavigne, J. V., & Ryan, M. (1979). Psychologic adjustment of siblings of children with chronic illness. Pediatrics, 63, 616–622.
35.
Leaf, L. E. (1993). Traumatic brain injury: Affecting family recovery. Brain Injury, 7, 543–546.
36.
Lehr, E. (1990). Psychological management of traumatic brain injuries in children and adults.Rockville, MD: Aspen.
37.
Lezak, M. D. (1978). Living with a characterologically altered brain injured patient. Journal of Clinical Psychiatry, 39, 592–598.
38.
Lezak, M. D. (1986). Psychological implications of traumatic brain damage for the patient's family. Rehabilitation Psychology, 31, 241–250.
39.
Lezak, M. D. (1988). Brain damage is a family affair. Journal of Clinical and Experimental Neuropsychology, 10, 111–123.
40.
Livingston, M. G., & Brooks, D. N. (1988). The burden on families of the brain injured: A review. Journal of Head Trauma Rehabilitation, 2(4), 6–15.
41.
Livingston, M. G., Brooks, D. N., & Bond, M. R. (1985a). Three months after severe head injury: Psychiatric and social impact on relatives. Journal of Neurology, Neurosurgery, and Psychiatry, 48, 870–875.
42.
Livingston, M. G., Brooks, D. N., & Bond, M. R. (1985b). Patient outcome in the year following severe head injury and relatives' psychiatric and social functioning. Journal of Neurology, Neurosurgery, and Psychiatry, 48, 527–533.
43.
Martin, D. A. (1988). Children and adolescents with traumatic brain injury: Impact on the family. Journal of Learning Disabilities, 21, 464–470.
44.
Mauss-Clum, N., & Ryan, M. (1981). Brain injury and the family. Journal of Neurosurgical Nurses, 13, 165–169.
45.
McGuire, T. L., & Rothenberg, M. B. (1986). Behavioral and psychosocial sequelae of pediatric brain injury. Journal of Head Trauma Rehabilitation, 1(4), 1–6.
46.
Miller, L. (1993). Family therapy of brain injury: Syndromes, strategies, and solutions. The American Journal of Family Therapy, 21, 111–121.
47.
National Head Injury Foundation. (1985). An educator's manual: What educators need to know about students with traumatic brain injury.Framingham, MA: Author.
48.
Orsillo, S. M., McCaffrey, R. J., & Fisher, J. M. (1993). Siblings of head-injured individuals: A population at risk. Journal of Head Trauma Rehabilitation, 8, 102–115.
49.
Panting, A., & Mercy, P. (1972). The long term rehabilitation of severe head injuries with particular reference to the need for social and medical support for the patient's family. Rehabilitation, 38, 33–37.
50.
Parke, R. D. (1986). Fathers, families, and support systems: Their role in the development of at-risk and retarded infants and children. In J. J. Gallagher & P. M. Vietze (Eds.), Families of handicapped persons: Research, programs, and policy issues (pp. 101–113). Baltimore: Brookes.
51.
Rivara, J. B., Fay, G. C., Jaffe, K. M., Pollissar, N. L., Shurtleff, H. A., & Martin, K. M. (1992). Predictors of family functioning one year following traumatic brain injury in children. Archives of Physical Medicine and Rehabilitation, 73, 899–910.
52.
Rivara, J. B., Jaffe, K. M., Fay, G. C., Pollissar, N. L., Martin, K. M., Shurtleff, H. A., & Liao, S. (1993). Family functioning and injury severity as predictors of child functioning one year following traumatic brain injury. Archives of Physical Medicine and Rehabilitation, 74, 1047–1055.
53.
Romano, M. D. (1974). Family response to traumatic head injury. Scandinavian Journal of Rehabilitation Medicine, 6, 1–5.
54.
Rosenthal, M., & Muir, C. A. (1983). Methods of family intervention. In M. Rosenthal, E. R. Griffith, & M. R. Bond (Eds.), Rehabilitation of the head injured adult (pp. 407–419). Philadelphia: F. A. Davis.
55.
Rosenthal, M., & Young, T. (1988). Effective family intervention after traumatic brain injury: Theory and practice. Journal of Head Trauma Rehabilitation, 3, 42–50.
56.
Sheridan, S. M., & Kratochwill, T. R. (1992). Behavioral parent–teacher consultation: Conceptual and research considerations. Journal of School Psychology, 30, 117–139.
57.
Sheridan, S. M., Kratochwill, T. R., & Bergan, J. R. (1996). Conjoint behavioral consultation: A procedural manual.New York: Plenum.
58.
Simeonsson, R. J., & Bailey, D. B. (1986). Siblings of handicapped children. In J. J. Gallagher & P. M. Vietze (Eds.), Families of handicapped persons: Research, programs, and policy issues (pp. 67–77). Baltimore: Brookes.
59.
Slater, E. J., & Rubenstein, E. (1987). Family coping with trauma in adolescents. Psychiatric Annals, 17, 786–794.
60.
Taylor, S. C. (1980). The effect of chronic childhood illnesses upon well siblings. Maternal–Child Nursing Journal, 9, 109–116.
61.
Testani-Dufour, L., Chappel-Aiken, L., & Gueldner, S. (1992). Traumatic brain injury: A family experience. Journal of Neuroscience Nursing, 24, 317–323.
62.
Waaland, P. K. (1990). Family response to childhood brain injury. In J. S. Kreutzer & P. H. Wehman (Eds.), Community integration following traumatic brain injury (pp. 224–247). Baltimore: Brookes.
63.
Waaland, P. K., & Kreutzer, J. S. (1988). Family response to childhood traumatic brain injury. Journal of Head Trauma Rehabilitation, 3(4), 51–63.
64.
Zarski, J. J., DePompei, R., & Zook, A. (1988). Traumatic head injury: Dimensions of family responsivity. Journal of Head Trauma Rehabilitation, 3(4), 31–41.
65.
Zarksi, J. J., Hall, D. E., & DePompei, R. (1987). Closed head injury patients: A family therapy approach to the rehabilitation process. American Journal of Family Therapy, 15(1), 62–68.
