Few studies have investigated user involvement initiatives in whole organizations. The aim was to explore the experiences of professionals and user representatives taking part in the implementation of a user involvement plan.
Materials:
A qualitative study in a mental health hospital included interviews and observational data.
Discussion:
Three different stories emerged. The first described the implementation as a success. The second described the implementation as a success, but after overcoming several obstacles. The third described that the development plan had limited impact.
Conclusions:
Close attention should be made to decision-making and resource allocation when implementing user involvement.
AndreassenT. (2007). Assymetric mutuality: User involvement as a government-voluntary sector relationship in Norway. Nonprofit and Voluntary Sector Quarterly, 37, 281–299.
2.
AndreassenT. (2009). The consumerism of ‘voice’ in Norwegian health policy and its dynamics in the transformation of health services. Public Money & Management, 29, 117–122.
3.
BennettsW.CrossW.BloomerM. (2011). Understanding consumer participation in mental health: Issues of power and change. International Journal of Mental Health Nursing, 20, 155–164.
4.
BradshawP. L. (2008). Service user involvement in the NHS in England: Genuine user participation or a dogma-driven folly?Journal of Nursing Management, 16, 673–681.
5.
BrooksF. (2008). Nursing and public participation in health: An ethnographic study of a patient council. International Journal of Nursing Studies, 45, 3–13.
6.
ChristensenT. (2005). The Norwegian state transformed?West European Politics, 28, 721–739.
7.
CorbinJ.StraussA. (2008). Basics of qualitative research techniques and procedures for developing grounded theory. Thousand Oaks, CA: SAGE.
8.
CoulterA. (2002). The autonomous patient. London: Nuffield Trust.
9.
CoulterA.EllinsJ. (2006). Patient-focused interventions: A review of the evidence. London: The Health Foundation.
10.
DaykinN.SanidasM.BarleyV.EvansS.McNeillJ.PalmerN.… TurtonP. (2002). Developing consensus and interprofessional working in cancer services: The case of user involvement. Journal of Interprofessional Care, 16, 405–406.
11.
DaykinN.SanidasM.TritterJ.RimmerJ.EvansS. (2004). Developing user involvement in a UK cancer network: Professionals’ and users’ perspective. Critical Public Health, 14, 277–294.
12.
EldhA. C.EkmanI.EhnforsM. (2006). Conditions for patient participation and non-participation in health care. Nursing Ethics, 13, 503–514.
13.
European Commission. (2001). White paper: European governance. Brussels: European Commission.
14.
FlorinD.DixonJ. (2004). Public involvement in health care. British Medical Journal, 328, 159–161.
15.
FudgeN.WolfeC. D.McKevittC. (2008). Assessing the promise of user involvement in health service development: Ethnographic study. British Medical Journal, 336, 313–317.
16.
GrolR.WensingM. (2004). What drives change? Barriers to and incentives for achieving evidence-based practice. Medical Journal of Australia, 180, S57–S60.
17.
HaighC. A. (2008). Exploring the evidence base of patient involvement in the management of health care services. Journal of Nursing Management, 16, 452–462.
18.
HardingE.BrownD.HaywardM.PettinariC. J. (2010). Service user perceptions of involvement in developing NICE mental health guidelines: A grounded theory study. Journal of Mental Health, 19, 249–257.
19.
HendyJ.BarlowJ. (2012). The role of the organizational champion in achieving health system change. Social Science & Medicine, 74, 348–355.
20.
HuiA.StickleyT. (2007). Mental health policy and mental health service user perspectives on involvement: A discourse analysis. Journal of Advanced Nursing, 59, 416–426.
21.
JoostenE. A.Defuentes-MerillasL.de WeertG. H.SenskyT.van der StaakC. P.de JongC. A. (2008). Systematic review of the effects of shared decision-making on patient satisfaction, treatment adherence and health status. Psychotherapy and Psychosomatics, 77, 219–226.
22.
KvaleS.BrinkmannS. (2008). Interviews: An introduction to qualitative reserach. London: SAGE.
23.
LockettA.CurrieG.WaringJ.FinnR.MartinG. (2012). The role of institutional entrepreneurs in reforming healthcare. Social Science & Medicine, 74, 356–363.
24.
LongtinY.SaxH.LeapeL.SheridanS.DonaldsonL.PittetD. (2010). Patient participation: Current knowledge and applicability to patient safety. Mayo Clinical Proceedings, 85, 53–62.
25.
MartinG. P.FinnR. (2011). Patients as team members: Opportunities, challenges and paradoxes of including patients in multi-professional healthcare teams. Sociology of Health and Illness, 33, 1050–1065.
26.
Norwegian Directorate of Health. (2006). [District prychiatric centres – Looking towards the communities while supported by specialized hospital functions]. Oslo: Norwegian Directorate of Health.
27.
RiseM. B.GrimstadH.SolbjorM.SteinsbekkA. (2011). Effect of an institutional development plan for user participation on professionals’ knowledge, practice, and attitudes: A controlled study. BMC Health Services Research, 11, 296.
28.
RiseM. B.SolbjorM.LaraM. C.WesterlundH.GrimstadH.SteinsbekkA. (2011). Same description, different values: How service users and providers define patient and public involvement in health care. Health Expectations. doi: 10.1111/J.1369-7625.2011.00713.X.
29.
RoseD. (2003). Partnership, co-ordination of care and the place of user involvement. Journal of Mental Health, 12, 59–70.
30.
RoseD.FleischmannP.SchofieldP. (2009). Perceptions of user involvement: A user-led study. International Journal of Social Psyciatry, 56, 389–401.
31.
RutterD.ManleyC.WeaverT.CrawfordM.FulopN. (2004). Patients or partners? Case studies of user involvement in the planning and delivery of adult mental health services in London. Social Science & Medicine, 58, 1973–1984.
32.
SolbjorM.RiseM. B.WesterlundH.SteinsbekkA. (2011). Patient participation in mental healthcare: When is it difficult? A qualitative study of users and providers in a mental health hospital in Norway. International Journal of Social Psyciatry, 59, 107–113.
33.
SolbjorM.SteinsbekkA. (2011). User involvement in hospital wards: Professionals negotiating user knowledge. A qualitative study. Patient Education and Counseling, 85, e144–e149.
34.
StevensonF.ScamblerG. (2005). The relationship between medicine and the public: The challenge of concordance. Health, 9, 5–21.
35.
StickleyT. (2006). Should service user involvement be consigned to history? A critical realist perspective. Journal of Psychiatric Mental Health Nursing, 13, 570–577.
36.
TempferC.NowakP. (2011). Consumer participation and organizational development in health care: A systematic review. Wiener Klinische Wochenschrift, 123, 408–414.
37.
TritterJ.BarleyV.DaykinN.EvansS.McneillJ.RimmerJ.… TurtonP. (2003). Divided care and the third way: User involvement in statutory and voluntary sector cancer services. Sociology of Health and Illness, 25, 429–456.
38.
TritterJ.KoivusaloM.OllilaE.DorfmanP. (2010). Globalisation, markets and healthcare policy: Redrawing the patient as consumer. New York: Routledge.
39.
WHO (World Health Organization) Regional Office for Europe. (1996). The Ljubljana charter on reforming health care. British Medical Journal, 312, 1664–1665.
