The youth HIV policy advisors programme: Creating change agents and policy leaders

Abstract

Background:

In 2018, Georgia ranked fourth in the USA for the number of people living with HIV/AIDS (PLWHA) and first for rate of new HIV diagnoses. Structural barriers to HIV prevention and care include homelessness, inadequate access to healthcare, insufficient sexual health education, HIV criminalisation and incarceration.

Objective:

Georgia Equality created the Youth HIV Policy Advisors (YHPA) Programme in 2015 to increase the meaningful involvement of young PLWHA in health policy and leadership.

Design, setting and method:

The YHPA Programme trains young PLWHA in the structural and social determinants of HIV risk and imparts HIV policy advocacy knowledge and skills. The programme typically involves weekend training events held between June and December, the creation of a policy agenda, and facilitation of a culminating World AIDS Day event. We conducted a mixed-methods survey of 29 alumni (91%) to understand programme engagement, benefits and skills gained.

Results:

Quantitative results showed average gains of 1.4 in HIV-related skills and 2.4 in policy-related skills (6-point scales). Qualitative analysis revealed important increases in knowledge and skills, self-awareness, social capital, political connections and social support that equipped youth to become change agents.

Conclusion:

Policy advocacy and leadership programmes are a unique and important mechanism to promote the meaningful involvement of young PLWHA in critical decisions about the structural changes necessary to end the epidemic. YHPA alumni engagement in future integrated strategies to address HIV prevention and care is essential.

Keywords

LGBTQ meaningful involvement of people living with HIV policy advocacy education youth empowerment

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References

Adimora

Ramirez

Schoenbach

, et al. (2014) Policies and politics that promote HIV infection in the Southern United States. AIDS 28(10): 1393–1397.

AIDS United (n.d.) Meaningful involvement of people living with HIV/AIDS (MIPA). Available at: https://www.aidsunited.org/resources/meaningful-involvement-of-people-with-hivaids-mipa

Braun

Clarke

(2006) Using thematic analysis in psychology. Qualitative Research in Psychology 3: 71–101.

Carter

Flores

(2019) Improving the HIV prevention landscape to reduce disparities for Black MSM in the south. AIDS and Behavior 23(3): 331–339.

Centers for Disease Control and Prevention (CDC) (2020) HIV surveillance report, 2018 (updated). Available at: http://www.cdc.gov/hiv/library/reports/hiv-surveillance.html

Centers for Disease Control Prevention (CDC) and National Center for HIV/AIDS Viral Hepatitis STD TB and Prevention (2015) Georgia state health profile. Available at: https://www.cdc.gov/nchhstp/stateprofiles/pdf/georgia_profile.pdf

Clark

Babu

Wiewel

, et al. (2017) Diagnosed HIV infection in transgender adults and adolescents: Results from the national HIV surveillance system, 2009-2014. AIDS Behavior 21(9): 2774–2783.

Department of Health and Human Services (DHHS), Office of Infectious Disease and HIV/AIDS Policy (2020) About ending the HIV epidemic: Plan for America: Overview. Available at: https://www.hiv.gov/federal-response/ending-the-hiv-epidemic/overview

Department of Health and Human Services (DHHS), Office of Infectious Disease and HIV/AIDS Policy and National HIV/AIDS Strategy Federal Interagency Workgroup (2017) National HIV/AIDS strategy for the United States: Updated to 2020, 2017 progress report. Available at: https://files.hiv.gov/s3fs-public/NHAS_Progress_Report_2017.pdf

10.

Douglass

Thomson

Zhao

(2012) The learning outcomes race: The value of self-reported gains in large research universities. Higher Education 54(3): 317–335.

11.

Fletcher

Kisler

Reback

(2014) Housing status and HIV risk behaviors among transgender women in Los Angeles. Archives of Sexual Behavior 43(8): 1651–1661.

12.

Garofalo

Deleon

Osmer

, et al. (2006) Overlooked, misunderstood and at-risk: Exploring the lives and HIV risk of ethnic minority male-to-female transgender youth. Journal of Adolescent Health 38(3): 230–236.

13.

Georgia Department of Public Health (GDPH) (2016) Georgia integrated HIV prevention & care plan 2017–2021. Available at: https://dph.georgia.gov/document/document/georgia-integrated-hiv-prevention-and-care-plan-cy-2017-2021/download

14.

Georgia Department of Public Health (GDPH) ( 2020) HIV/AIDS epidemiology section HIV surveillance summary, Georgia 2018. Available at: https://dph.georgia.gov/data-fact-sheet-summaries

15.

Georgia Equality (2015) 2015/2016 policy agenda-youth living with HIV in Atlanta. Available at: https://georgiaequality.org/wp-content/uploads/2015/09/November-17-Draft-Policy-Agenda-for-WAD2015-1.pdf

16.

Georgia Equality (2016) 2016 recommendations-youth living with HIV in Atlanta. Available at: http://s11863.pcdn.co/wp-content/uploads/2018/04/Policy-Action-Luncheon-2016.pdf

17.

Georgia Equality (2017a) 2017 recommendations. Available at: http://s11863.pcdn.co/wp-content/uploads/2018/04/Youth-HIV-Housing-Policy-Agenda-2017.pdf

18.

Georgia Equality ( 2017b) HIV & youth homelessness in Atlanta: World AIDS Day 2017. Available at: https://www.youtube.com/watch?v=UF3eTZrjB3Y&feature=youtu.be

19.

Georgia Equality (2018) Youth HIV policy advisors program resource tool kit. Available at: https://www.seroproject.com/wp-content/uploads/2018/05/YouthHIVPolicyAdvisorsResourceToolKit.pdf

20.

Georgia Equality (2021) Welcome to Georgia Equality. Available at: https://georgiaequality.org/

21.

HIV.gov (n.d.) HIV and national strategic plan (2021–2025). Available at: https://www.hiv.gov/federal-response/hiv-national-strategic-plan/hiv-plan-2021-2025

22.

Nuttbrock

Bockting

Rosenblum

, et al. (2013) Gender abuse, depressive symptoms, and HIV and other sexually transmitted infections among male-to-female transgender persons: A three-year prospective study. American Journal of Public Health 103(2): 300–307.

23.

Reisner

Bailey

Sevelius

(2014) Racial/ethnic disparities in history of incarceration, experiences of victimization, and associated health indicators among transgender women in the U.S. Women Health 54(8): 750–767.

24.

Sipe

Barham

Johnson

, et al. (2017) Structural interventions in HIV prevention: A taxonomy and descriptive systematic review. AIDS Behavior 21(12): 3366–3430.

25.

Sullivan

Rosenberg

Sanchez

, et al. (2015) Explaining racial disparities in HIV incidence in black and white men who have sex with men in Atlanta, GA: A prospective observational cohort study. Annals of Epidemiology 25(6): 445–454.

26.

Szymanski

(2001) Relations among dimensions of feminism and internalized heterosexism in lesbians and bisexual women. Sex Roles 51(3–4): 145–159.

27.

UNAIDS (1999) The greater involvement of people living with HIV (GIPA) policy brief. Available at: http://data.unaids.org/pub/report/2007/jc1299-policybrief-gipa_en.pdf

28.

US Census Bureau (n.d.) Population estimates program: Quick facts Georgia. Available at: https://www.census.gov/quickfacts/GA

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