HindeSWeatherlyHWalkerGFraserLK.What does economic evaluation mean in the context of children at the end of their life?Int J Environ Res Publ Health. 2021;18(21):11562. doi:10.3390/ijerph182111562.
3.
RosenbergAArnoldRMSchenkerY.Holding hope for patients with serious illness. JAMA. 2021;326(13):1259-1260. doi:10.1001/jama.2021.14802.
4.
CraigJWGlickCPhillipsRHallSLSmithJBrowneJ.Recommendations for involving the family in developmental care of the NICU baby. J Perinatol. 2015;35(suppl 1):S5-S8. doi:10.1038/jp.2015.142.
5.
JacobsSDaviesNButterickKLOswellJLSiapkaKSmithCH.Shared decision-making for children with medical complexity in community health services: a scoping review. BMJ Paediatr Open. 2023;7(1):e001866. doi:10.1136/bmjpo-2023-001866.
6.
WyattKDListBBrinkmanWB, et al. Shared decision making in pediatrics: a systematic review and meta-analysis. Acad Pediatr. 2015;15(6):573-583. doi:10.1016/j.acap.2015.03.011.
7.
BronsteinMGKakkisED. Patients as key partners in rare disease drug development. Nat Rev Drug Discov. 2016;15(11):731-732. doi:10.1038/nrd.2016.133.