Racial,Ethnic,and Language Disparities in Early Childhood Developmental/Behavioral Evaluations

Healthy people 2020: mental health and mental disorders. http://www.healthypeople.gov/2020/topicsobjectives2020/objectiveslist.aspx?topicId=28. Accessed August 5, 2013.

Halfon N Newacheck PW . Prevalence and impact of parent-reported disabling mental health conditions among U.S. children. J Am Acad Child Adolesc Psychiatry. 199;38:600-609.

Pastor PN Reuben CA . Diagnosed attention deficit hyperactivity disorder and learning disability: United States, 2004-2006. Vital Health Stat 10. 2008;(237):1-14.

Blumberg SJ Bramlett MD Kogan M Schieve LA Jones JR Lu MC . Changes in parent-reported prevalence of autism spectrum disorder in school-aged U.S. children: 2007 to 2011-12. Natl Health Stat Rep 65. 2013. http://www.cdc.gov/nchs/data/nhsr/nhsr065.pdf. Accessed August 5, 2013.

Kogan MD Blumberg SJ Schieve LA . Prevalence of parent-reported diagnosis of autism spectrum disorder among children in the US, 2007. Pediatrics. 2009;124:1395-1403.

Autism and Developmental Disabilities Monitoring Network Surveillance Year 2008 Principal Investigators. Prevalence of autism spectrum disorders—autism and developmental disabilities monitoring network, 14 sites, United States, 2008. MMWR Surveill Summ. 2012;61(3):1-19.

Jacobson JW Mulick JA . System and cost research issues in treatments for people with autistic disorders. J Autism Dev Disord. 2000;30:585-593.

Swensen AR Birnbaum HG Secnik K Marynchenko M Greenberg P Claxton A . Attention-deficit/hyperactivity disorder: increased costs for patients and their families. J Am Acad Child Adolesc Psychiatry. 2003;42:1415-1423.

Pelham WE Foster EM Robb JA . The economic impact of attention-deficit/hyperactivity disorder in children and adolescents. J Pediatr Psychol. 2007;32:711-727.

Shonkoff JP Phillips DA . From Neurons to Neighborhoods. Washington, DC: National Academies Press; 2000.

Flores G , Committee on Pediatric Research. Technical report—racial and ethnic disparities in the health and health care of children. Pediatrics. 2010;125:e979-e1020.

Flores G Tomany-Korman SC . Racial and ethnic disparities in medical and dental health, access to care, and use of services in US children. Pediatrics. 2008;121:e286-e298.

Mandell DS Wiggins LD Carpenter LA . Racial/ethnic disparities in the identification of children with autism spectrum disorders. Am J Public Health. 2009;99:493-498.

Mandell DS Listerud J Levy SE Pinto-Martin JA . Race differences in the age at diagnosis among Medicaid-eligible children with autism. J Am Acad Child Adolesc Psychiatry. 2002;41:1447-1453.

Palmer RF Walker T Mandell D Bayles B Miller CS . Explaining low rates of autism among Hispanic schoolchildren in Texas. Am J Public Health. 2010;100:270-272.

Croen LA Grether JK Selvin S . Descriptive epidemiology of autism in a California population: who is at risk? J Autism Dev Disord. 2002;32:217-224.

Fountain C King MD Bearman PS . Age of diagnosis for autism: Individual and community factors across 10 birth cohorts. J Epidemiol Community Health. 2011;65:503-510.

Pedersen A Pettygrove S Meaney FJ . Prevalence of autism spectrum disorders in Hispanic and non-Hispanic white children. Pediatrics. 2012;129:e629-e635.

Pastor PN Reuben CA . Racial and ethnic differences in ADHD and LD in young school-age children: parental reports in the national health interview survey. Public Health Rep. 2005;120:383-392.

Stevens J Harman JS Kelleher KJ . Race/ethnicity and insurance status as factors associated with ADHD treatment patterns. J Child Adolesc Psychopharmacol. 2005;15:88-96.

Bussing R Schoenberg NE Perwien AR . Knowledge and information about ADHD: evidence of cultural differences among African-American and white parents. Soc Sci Med. 1998;46:919-928.

Bussing R Zima BT Gary FA Garvan CW . Barriers to detection, help-seeking, and service use for children with ADHD symptoms. J Behav Health Serv Res. 2003;30:176-189.

Stevens GD . Gradients in the health status and developmental risks of young children: the combined influences of multiple social risk factors. Matern Child Health J. 2006;10:187-199.

Chabra A Chavez GF Harris ES . Mental illness in elementary-school-aged children. West J Med. 1999;170:28-34.

Chabra A Chavez GF Harris ES Shah R . Hospitalization for mental illness in adolescents: risk groups and impact on the health care system. J Adolesc Health. 1999;24:349-356.

Zimmerman FJ . Social and economic determinants of disparities in professional help-seeking for child mental health problems: evidence from a national sample. Health Serv Res. 2005;40(5 pt 1):1514-1533.

Leslie LK Weckerly J Landsverk J Hough RL Hurlburt MS Wood PA . Racial/ethnic differences in the use of psychotropic medication in high-risk children and adolescents. J Am Acad Child Adolesc Psychiatry. 2003;42:1433-1442.

Garland AF Lau AS Yeh M McCabe KM Hough RL Landsverk JA . Racial and ethnic differences in utilization of mental health services among high-risk youths. Am J Psychiatry. 2005;162:1336-1343.

US Census Bureau. Most children younger than age 1 are minorities, Census Bureau reports. http://www.census.gov/newsroom/releases/archives/population/cb12-90.html. Accessed August 5, 2013.

National Council of La Raza. Toward a more vibrant and youthful nation: Latino children in the 2010 census. http://www.nclr.org/index.php/publications/toward_a_more_vibrant_and_youthful_nation_latino_children_in_the_2010_census/. Accessed August 5, 2013.

Rowland AS Umbach DM Stallone L Naftel AJ Bohlig EM Sandler DP . Prevalence of medication treatment for attention deficit-hyperactivity disorder among elementary school children in Johnston County, North Carolina. Am J Public Health. 2002;92:231-234.

Miller TW Nigg JT Miller RL . Attention deficit hyperactivity disorder in African American children: what can be concluded from the past ten years? Clin Psychol Rev. 2009;29:77-86.

Liptak GS Benzoni LB Mruzek DW . Disparities in diagnosis and access to health services for children with autism: data from the National Survey of Children’s Health. J Dev Behav Pediatr. 2008;29:152-160.

Jarquin VG Wiggins LD Schieve LA Van Naarden-Braun K . Racial disparities in community identification of autism spectrum disorders over time; metropolitan Atlanta, Georgia, 2000-2006. J Dev Behav Pediatr. 2011;32:179-187.

Johnson CP Myers SM ; American Academy of Pediatrics Council on Children With Disabilities. Identification and evaluation of children with autism spectrum disorders. Pediatrics. 2007;120:1183-1215.

Council on Children With Disabilities, Section on Developmental Behavioral Pediatrics, Bright Futures Steering Committee, Medical Home Initiatives for Children With Special Needs Project Advisory Committee. Identifying infants and young children with developmental disorders in the medical home: an algorithm for developmental surveillance and screening. Pediatrics. 2006;118:405-420.

National Center for Infants, Toddlers, and Families. Parenting infants and toddlers today: research findings. http://www.zerotothree.org/parentsurvey. Accessed August 5, 2013.

Pachter LM Dworkin PH . Maternal expectations about normal child development in 4 cultural groups. Arch Pediatr Adolesc Med. 1997;151:1144-1150.

Bornstein MH Cote LR . “Who is sitting across from me?” Immigrant mothers’ knowledge of parenting and children’s development. Pediatrics. 2004;114:e557-e564.

Keels M . Ethnic group differences in early head start parents’ parenting beliefs and practices and links to children’s early cognitive development. Early Child Res Q. 2009;24:381-397.

Yeh M Hough RL McCabe K Lau A Garland A . Parental beliefs about the causes of child problems: exploring racial/ethnic patterns. J Am Acad Child Adolesc Psychiatry. 2004;43:605-612.

Bussing R Gary FA Mills TL Garvan CW . Parental explanatory models of ADHD: gender and cultural variations. Soc Psychiatry Psychiatr Epidemiol. 2003;38:563-575.

Bussing R Schoenberg NE Rogers KM Zima BT Angus S . Explanatory models of ADHD: do they differ by ethnicity, child gender, or treatment status? J Emot Behav Disord. 1998;6:233-242.

Garcia S Mendez-Perez A Ortiz AA . Mexican American mothers’ beliefs about disabilities: implications for early childhood intervention. Remedial Spec Educ. 2000;21:90.

Kummerer SE Lopez-Reyna NA Hughes MT . Mexican immigrant mothers’ perceptions of their children’s communication disabilities, emergent literacy development, and speech-language therapy program. Am J Speech Lang Pathol. 2007;16:271-282.

Guarnaccia PJ Parra P . Ethnicity, social status, and families’ experiences of caring for a mentally ill family member. Community Ment Health J. 1996;32:243-260.

Yeh M McCabe K Hough RL Lau A Fakhry F Garland A . Why bother with beliefs? examining relationships between race/ethnicity, parental beliefs about causes of child problems, and mental health service use. J Consult Clin Psychol. 2005;73:800-807.

Rajakumar K Thomas SB Musa D Almario D Garza MA . Racial differences in parents’ distrust of medicine and research. Arch Pediatr Adolesc Med. 2009;163:108-114.

Stevens J Wang W Fan L Edwards MC Campo JV Gardner W . Parental attitudes toward children’s use of antidepressants and psychotherapy. J Child Adolesc Psychopharmacol. 2009;19:289-296.

Richardson LA . Seeking and obtaining mental health services: what do parents expect? Arch Psychiatr Nurs. 2001;15:223-231.

McKay MM Pennington J Lynn CJ McCadam K . Understanding urban child mental health service use: two studies of child, family, and environmental correlates. J Behav Health Serv Res. 2001;28:475-483.

Flores G Abreu M Tomany-Korman SC . Why are Latinos the most uninsured racial/ethnic group of US children? A community-based study of risk factors for and consequences of being an uninsured Latino child. Pediatrics. 2006;118:e730-e740.

Shapiro J Monzo LD Rueda R Gomez JA Blacher J . Alienated advocacy: perspectives of Latina mothers of young adults with developmental disabilities on service systems. Ment Retard. 2004;42:37-54.

Kataoka SH Zhang L Wells KB . Unmet need for mental health care among U.S. children: variation by ethnicity and insurance status. Am J Psychiatry. 2002;159:1548-1555.

Shi L Stevens GD . Disparities in access to care and satisfaction among U.S. children: the roles of race/ethnicity and poverty status. Public Health Rep. 2005;120:431-441.

Stevens GD Seid M Mistry R Halfon N . Disparities in primary care for vulnerable children: the influence of multiple risk factors. Health Serv Res. 2006;41:507-531.

Ngui EM Flores G . Unmet needs for specialty, dental, mental, and allied health care among children with special health care needs: are there racial/ethnic disparities? J Health Care Poor Underserved. 2007;18:931-949.

Bethell C Reuland CH Halfon N Schor EL . Measuring the quality of preventive and developmental services for young children: national estimates and patterns of clinicians’ performance. Pediatrics. 2004;113(6 suppl):1973-1983.

Guerrero AD Chen J Inkelas M Rodriguez HP Ortega AN . Racial and ethnic disparities in pediatric experiences of family-centered care. Med Care. 2010;48:388-393.

Schuster MA Duan N Regalado M Klein DJ . Anticipatory guidance: what information do parents receive? What information do they want? Arch Pediatr Adolesc Med. 2000;154:1191-1198.

Guerrero AD Rodriguez MA Flores G . Disparities in provider elicitation of parents’ developmental concerns for US children. Pediatrics. 2011;128:901-909.

Montes G Halterman JS . White-Black disparities in family-centered care among children with autism in the United States: evidence from the NS-CSHCN 2005-2006. Acad Pediatr. 2011;11:297-304.

Zuckerman KE Boudreau AA Lipstein EA Kuhlthau KA Perrin JM . Household language, parent developmental concerns, and child risk for developmental disorder. Acad Pediatr. 2009;9:97-105.

Sices L Feudtner C McLaughlin J Drotar D Williams M . How do primary care physicians identify young children with developmental delays? A national survey. J Dev Behav Pediatr. 2003;24:409-417.

Halfon N Regalado M Sareen H . Assessing development in the pediatric office. Pediatrics. 2004;113(6 suppl):1926-1933.

Zuckerman KE Mattox K Baghaee A Batbayar O Donelan K Bethell C . Pediatrician identification of Latino children at risk for autism spectrum disorder. Pediatrics. 2013. 132; 445-453.

Stein MT Flores G Graham EA Magana L Willies-Jacobo L . Cultural and linguistic determinants in the diagnosis and management of development delay in a four year old. J Dev Behav Pediatr. 2004;25(5 suppl):S43-S48.

Kuhlthau K Nyman RM Ferris TG Beal AC Perrin JM . Correlates of use of specialty care. Pediatrics. 2004;113(3 pt 1):e249-e255.

Kuhlthau K Ferris TG Beal AC Gortmaker SL Perrin JM . Who cares for Medicaid-enrolled children with chronic conditions? Pediatrics. 2001;108:906-912.

Feinberg E Silverstein M Donahue S Bliss R . The impact of race on participation in part C Early Intervention Services. J Dev Behav Pediatr. 2011;32:284-291.

Rosenberg SA Zhang D Robinson CC . Prevalence of developmental delays and participation in Early Intervention Services for young children. Pediatrics. 2008;121:e1503-e1509.

Barfield WD Clements KM Lee KG Kotelchuck M Wilber N Wise PH . Using linked data to assess patterns of Early Intervention (EI) referral among very low birth weight infants. Matern Child Health J. 2008;12:24-33.

Clements KM Barfield WD Kotelchuck M Wilber N . Maternal socio-economic and race/ethnic characteristics associated with early intervention participation. Matern Child Health J. 2008;12:708-717.

Hosp JL Reschly DJ . Disproportionate representation of minority students in special education: academic, demographic, and economic predictors. Except Child. 2004;70:185-199.

US Commission on Civil Rights. Minorities in special education briefing report, April, 2009. http://www.usccr.gov/pubs/MinoritiesinSpecialEducation.pdf. Accessed August 5, 2013.

Artiles AJ Harry B Reschly DJ Chinn PC . Over-identification of students of color in special education: a critical overview. http://www.monarchcenter.org/pdfs/overidentification.pdf. Accessed August 5, 2013.

Cuccaro ML Wright HH Rownd CV Abramson RK Waller J Fender D . Professional perceptions of children with developmental difficulties: the influence of race and socioeconomic status. J Autism Dev Disord. 1996;26:461-469.

Martin TW . White therapists’ differing perceptions of Black and White adolescents. Adolescence. 1993;28:281-289.

Bailey DB Jr Hebbeler K Spiker D Scarborough A Mallik S Nelson L . Thirty-six-month outcomes for families of children who have disabilities and participated in Early Intervention. Pediatrics. 2005;116:1346-1352.

Sontag JC Schacht R . An ethnic comparison of parent participation and information needs in Early Intervention. Except Child. 1994;60:422-433.

Thomas KC Ellis AR McLaurin C Daniels J Morrissey JP . Access to care for autism-related services. J Autism Dev Disord. 2007;37:1902-1912.

Bailey DB Jr Skinner D Correa V . Needs and supports reported by Latino families of young children with developmental disabilities. Am J Ment Retard. 1999;104:437-451.

Markus A Rosenbaum S Stewart A Cox M . How medical claims simplification can impede delivery of child developmental services. The Commonwealth Fund; 2005. Report No. 851. http://www.commonwealthfund.org/Publications/Fund-Reports/2005/Aug/How-Medical-Claims-Simplification-Can-Impede-Delivery-of-Child-Developmental-Services.aspx. Accessed August 5, 2013.

Sturm R Ringel JS Andreyeva T . Geographic disparities in children’s mental health care. Pediatrics. 2003;112:e308.

Zuckerman KE Perrin JM Hobrecker K Donelan K . Barriers to specialty care and specialty referral completion in the community health center setting. J Pediatr. 2013;162:409.e1-414.e1.

Camp BW . Evaluating bias in validity studies of developmental/behavioral screening tests. J Dev Behav Pediatr. 2007;28:234-240.

Rydz D Shevell MI Majnemer A Oskoui M . Developmental screening. J Child Neurol. 2005;20:4-21.

Squires J Twombly E Bricker D Potter L . ASQ-3 User’s Guide. Baltimore, MD: Paul H. Brookes; 2009.

Glascoe FP . Collaborating With Parents: Using Parents’ Evaluation of Developmental Status (PEDS) to Detect and Address Developmental and Behavioral Problems. Nashville, TN: Ellsworth & Vandermeer; 2002.

Laing SP Hamhi A . Alternative assessment of language and literacy in culturally and linguistically diverse populations. Lang Speech Hear Serv Sch. 2003;34:44.

Robins DL Fein D Barton ML Green JA . The Modified Checklist for Autism in Toddlers: an initial study investigating the early detection of autism and pervasive developmental disorders. J Autism Dev Disord. 2001;31:131-144.

Canal-Bedia R García-Primo P Martín-Cilleros MV . Modified Checklist for Autism in Toddlers: cross-cultural adaptation and validation in Spain. J Autism Dev Disord. 2011;41:1342-1351.

Scarpa A Reyes NM Patriquin MA, et al . The Modified Checklist for Autism in Toddlers: reliability in a diverse rural American sample [published online February 6, 2013]. J Autism Dev Disord. doi:10.1007/s10803-013-1779-x.

Albores-Gallo L Roldan-Ceballos O Villarreal-Valdes G . M-CHAT Mexican version validity and reliability and some cultural considerations. ISRN Neurol. 2012;2012:408694.

Oesterheld JR Haber J . Acceptability of the Conners Parent Rating Scale and Child Behavior Checklist to Dakotan/Lakotan parents. J Am Acad Child Adolesc Psychiatry. 1997;36:55-63.

Magana S Parish SL Rose RA Timberlake M Swaine JG . Racial and ethnic disparities in quality of health care among children with autism and other developmental disabilities. Intellect Dev Disabil. 2012;50:287-299.

Hillemeier MM Foster EM Heinrichs B Heier B ; Conduct Problems Prevention Research Group. Racial differences in parental reports of attention-deficit/hyperactivity disorder behaviors. J Dev Behav Pediatr. 2007;28:353-361.

Mann EM Ikeda Y Mueller CW . Cross-cultural differences in rating hyperactive-disruptive behaviors in children. Am J Psychiatry. 1992;149:1539-1542.

Locke LM Prinz RJ . Measurement of parental discipline and nurturance. Clin Psychol Rev. 2002;22:895-929.

Western Psychological Services. ADOS frequently asked questions. http://portal.wpspublish.com/portal/page?_pageid=53,84992&_dad=portal&_schema=PORTAL. Accessed August 5, 2013.

Smedley BD Stith AY Nelson AR , eds. Unequal Treatment: Confronting Racial and Ethnic Disparities in Healthcare. Washington, DC: National Academies Press; 2003.

Guyer B Hughart N Strobino D Jones A Scharfstein D . Assessing the impact of pediatric-based development services on infants, families, and clinicians: challenges to evaluating the Healthy Steps program. Pediatrics. 2000;105:E33.

Healthy Families America. About us. http://www.healthyfamiliesamerica.org/about_us/index.shtml. Accessed August 5, 2013.

Nurse-Family Partnership. Proven results. http://www.nursefamilypartnership.org/proven-results. Accessed August 5, 2013.

Guerrero AD Garro N Chang JT Kuo AA . An update on assessing development in the pediatric office: has anything changed after two policy statements? Acad Pediatr. 2010;10:400-404.

Earls MF Hay SS . Setting the stage for success: implementation of developmental and behavioral screening and surveillance in primary care practice—the North Carolina Assuring Better Child Health and Development (ABCD) project. Pediatrics. 2006;118:e183-e188.

Guidelines for cultural and linguistic adaptation of ASQ-3 and ASQ:SE. Baltimore, MD: Paul H. Brookes; 2013. http://archive.brookespublishing.com/documents/ASQ-cultural-and-linguistic-adaptation.pdf. Accessed August 5, 2013.

Pinto-Martin JA Dunkle M Earls M Fliedner D Landes C . Developmental stages of developmental screening: steps to implementation of a successful program. Am J Public Health. 2005;95:1928-1932.

Pennsylvania Child Welfare Training Program. Developmental screening research project. http://www.pacwcbt.pitt.edu/ASQ.htm. Accessed August 5, 2013.

Bogin J . Enhancing developmental services in primary care: The Help Me Grow experience. J Dev Behav Pediatr. 2006;27(suppl 1):S8-S12.

Kaczorowski J Aligne CA Halterman JS Allan MJ Aten MJ Shipley LJ . A block rotation in community health and child advocacy: improved competency of pediatric residency graduates. Ambul Pediatr. 2004;4:283-288.

Commonwealth Fund. Disparities in patient experiences, health care processes, and outcomes: the role of patient-provider racial, ethnic, and language concordance. 2004. http://www.commonwealthfund.org/Publications/Fund-Reports/2004/Jul/Disparities-in-Patient-Experiences–Health-Care-Processes–and-Outcomes–The-Role-of-Patient-Provide.aspx. Accessed August 5, 2013.